Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chrone's & Celiac? Or Ulscers?


raisin

Recommended Posts

raisin Enthusiast

I'm kind of freaking out. In 2 weeks I will have my medical records, but not officially have insurance for another full month (If I really rush it, maybe 3 weeks), and just want some information or peace of mind to hold me off until I can get formal testing done. For reference, I am age 19 and female.

I feel fine in the morning, and in the evening/night, I get sick. Practically every day for years. Salad makes me feel better. One of my parents has a hernia, and suspected stomach ulcers when my age, but testing wasn't available at that time. I'm getting tested for H. Pylori (stomach ulcers), but now I am also wondering about Chrone's or Ulcerative Colitis? Most alarmingly, I have been finding recently, bloating (constipation), then that there is mucus in my stools, and maybe rectal bleeding??

Current condition in simple terms :

* No vomiting, cramping, or diareah problems at all.

* No vitamin deficiencies, recently (finally) gained a little weight.

* A "spell of sickness" = stomach pains, belching, dizziness/tiredness, bloating, shaking hands, feeling cold? usually 1-2 hours

* Eczema, acne, constipation & mucus, eye irritation, tonsil swelling. (But that sounds like allergy symptoms??)

* As a child : chronic tonsillitis, large/long-lasting mouth ulcers, delayed growth, skinny, picky with food, stomach/joint pains.

*Temperature normally 97.6-97.8 (f)

Something other than just celiac is wrong with me, any idea as to what??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heathen Apprentice
I'm kind of freaking out. In 2 weeks I will have my medical records, but not officially have insurance for another full month (If I really rush it, maybe 3 weeks), and just want some information or peace of mind to hold me off until I can get formal testing done. For reference, I am age 19 and female.

I feel fine in the morning, and in the evening/night, I get sick. Practically every day for years. Salad makes me feel better. One of my parents has a hernia, and suspected stomach ulcers when my age, but testing wasn't available at that time. I'm getting tested for H. Pylori (stomach ulcers), but now I am also wondering about Chrone's or Ulcerative Colitis? Most alarmingly, I have been finding recently, bloating (constipation), then that there is mucus in my stools, and maybe rectal bleeding??

Current condition in simple terms :

* No vomiting, cramping, or diareah problems at all.

* No vitamin deficiencies, recently (finally) gained a little weight.

* A "spell of sickness" = stomach pains, belching, dizziness/tiredness, bloating, shaking hands, feeling cold? usually 1-2 hours

* Eczema, acne, constipation & mucus, eye irritation, tonsil swelling. (But that sounds like allergy symptoms??)

* As a child : chronic tonsillitis, large/long-lasting mouth ulcers, delayed growth, skinny, picky with food, stomach/joint pains.

*Temperature normally 97.6-97.8 (f)

Something other than just celiac is wrong with me, any idea as to what??

If you are not having the big D, crohn and ulcerative colitis are way down on the list of possibilities. rectal bleeding can be from hemorrhoids--especially if you've been having constipation and straining. you may want to check out your thyroid function, or you could just have a bug to explain the fatigue and chills. I think many of us are really sensitive to any changes in our bodies, and we tend to think that we have another big disorder because we suffered so long without a diagnosis for the Celiac Disease--kinda like "once bitten, twice shy." i hope it turns out to be something simple and easy to treat.

raisin Enthusiast

First, it was very comforting to hear that neither of those chronic (and rather scary) conditions would likely apply to me. I also really couldn't see it being a bug, based on how long my symptoms had lasted. I will at least talk to my doctor about thyroid, but because my general blood tests always shout "100% normal and healthy and every way," they told me once before that it was unlikely. I'm still going to get tested for H. Pylori, too, as ulcers still fit the bill.

Mainly; It's very strange.. The day after I posted this, my constipation and related oddities just stopped, and have yet to return. The day after that, and every day (excluding the two days after I ate a bowl of grapes), my dyspepsia has been absent, too..! I am no longer sure I'm bloated, and thinking.. maybe I'm just finally gaining more weight? I don't know how to tell the difference, sense I have essentially never gained weight before. But my bras went up a size, sense going gluten-free year ago, and my thighs and butt actually fit into a size 1 now, so probably? I just didn't think women gained lower-stomach-weight easily.

The change seemed to root from diet. I removed coffee and one gluten-free product from my diet, along with every single Birch-related food. I started to finally change my sleeping schedule back to semi-human hours, have had enough energy to clean up my apartment and go out for walks, and even started eating CornThins and Oranges for the first time in a long time!

Sadly, now my diet is pushed to a pretty extreme limit, but with a couple of months of allergy testing and finding a good nutritionist, it should only get better.

ravenwoodglass Mentor

I am glad to hear you are feeling better. Don't loose heart with the extememly limited diet you are currently having to do. After you have had some more time to heal you can try cautiously adding back in one item a week, 3 times a day, in a pure a form as possible and watch for a reaction. Often after we have healed the gut for a while other intolerances may abate.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,325
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.