Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trouble With All Grains

glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast
glutenfreegirl
Posted

Hi there

it seems since my diagnosis I am having trouble with all grains, rice, buckwheat, amaranth etc.

Has anyone else had these problems at first and will it gradually go away?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gfresh404 Enthusiast
Gfresh404
Posted
Hi there

it seems since my diagnosis I am having trouble with all grains, rice, buckwheat, amaranth etc.

Has anyone else had these problems at first and will it gradually go away?

I have never had issues with grains except for those containing insoluble fiber.

But I would not be too concerned, it doesn't seem that unlikely and many people do have issues with most grains when initially going gluten free. Just avoid them for a while and slowly reintroduce them back into your diet. I'd recommending starting with white rice. You really do not need them to be healthy anyway, it just takes more work since all your carbs have to come from fruits and vegetables.

The problem should eventually resolve itself, just be patient, give it time, and listen to your body. There is not set time, only you can know.

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author
I have never had issues with grains except for those containing insoluble fiber.

But I would not be too concerned, it doesn't seem that unlikely and many people do have issues with most grains when initially going gluten free. Just avoid them for a while and slowly reintroduce them back into your diet. I'd recommending starting with white rice. You really do not need them to be healthy anyway, it just takes more work since all your carbs have to come from fruits and vegetables.

The problem should eventually resolve itself, just be patient, give it time, and listen to your body. There is not set time, only you can know.

Thank you for your help and advice i really appreciate it, many times I have posted here for help or direction and never get a response...so your time is very appreciated in this very frustrating time.

Gfresh404 Enthusiast
Gfresh404
Posted
Thank you for your help and advice i really appreciate it, many times I have posted here for help or direction and never get a response...so your time is very appreciated in this very frustrating time.

You are welcome. Someone (Momma Goose!) was nice enough to me to answer nearly all my questions. She was/is an expert on everything Celiac. So, I feel I owe something to the community since they have been so great to me. If you have any further questions feel free to PM me.

Ms. Skinny Chic Explorer
Ms. Skinny Chic
Posted
Hi there

it seems since my diagnosis I am having trouble with all grains, rice, buckwheat, amaranth etc.

Has anyone else had these problems at first and will it gradually go away?

I have a problem with all grains too. I only eat rice..

rice pasta, rice bread...you get the idea...

When, I started eating gluten free..every grain irritated me immensely.

Have you tried Millet??? I can't eat it, but lots of other people hear eat it.

Maybe, it will go away in time for you...

Gfresh404 Enthusiast
Gfresh404
Posted
I have a problem with all grains too. I only eat rice..

rice pasta, rice bread...you get the idea...

When, I started eating gluten free..every grain irritated me immensely.

Have you tried Millet??? I can't eat it, but lots of other people hear eat it.

Maybe, it will go away in time for you...

I believe your issues with other grains are probably due to the insoluble fiber content - it is very rough on the digestive tract, scraping it clean. Do you have issues with cruciferous vegetables like broccoli and lettuce as well?

rinne Apprentice
rinne
Posted

I have problems with all grains but since I started the SCD (Specific Carbohydrate Diet) I no longer miss them. I do my baking with almond flour.

I have seen studies that suggest some do not heal on only a gluten free diet but perhaps this is just a stage and you will be able to reintroduce them later on. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LandonL Contributor
LandonL
Posted
I believe your issues with other grains are probably due to the insoluble fiber content - it is very rough on the digestive tract, scraping it clean. Do you have issues with cruciferous vegetables like broccoli and lettuce as well?

I am having some problems with broccoli and lettuce, what can I do to help that?

Gfresh404 Enthusiast
Gfresh404
Posted
I am having some problems with broccoli and lettuce, what can I do to help that?

Unfortunately not much. The only thing you can really do is minimize your intake of them as much as possible and give yourself time to heal until you can tolerate them again.

I, personally have just replaced broccoli and lettuce with carrots and peas. Arguably just as healthy and they contain no insoluble fiber. Potatoes and sweet potatoes without the skin are also very easy on the system and very nutritious as well.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    2. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    3. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    5. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • RMJ
      nothing has changed

      By RMJ · Posted

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.