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Olympic Tri In A Year Anyone?


lissys

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lissys Newbie

Hi Everyone,

I'm almost newly diagnosed. I've been struggling with the process for almost three years now and I'm pretty sure I'm celiac. I've always had Reynaud's, last year my rheumatologist thought I was starting lupus (my ANA was 1:1240 speckled - now I know that may be from celiac!) and then I got vitiligo. Just had my biopsies done yesterday. The doctor said he didn't see anything, but the bloodwork was suspect. I was back on wheat for two weeks pre-test so I'm pretty sure! Guess we'll have to see what the biopsy results say. Anyway, regardless of the results I'm going gluten-free. I know how my body reacts!

Four years ago, before I found out I was pregnant, I was training for a sprint tri and loved how healthy I felt. Then I had my daughter and the autoimmune issues jumped up. I've lost a lot of weight (I'm 5'8" and my weight's gone from 200 back to about 145) but I'm not in shape at all - the joint pain has really stopped me. I'm hoping that now I'm off the gluten I can start thinking about starting up again. It's also just a good "get my spirits up" goal. I've been really down on my body with all of this ridiculousness.

So - my husband and I are moving our family to Saipan - a tiny island in the middle of the Pacific Ocean (aka Land of the Eternal Bikini). I'm not interested in a weight loss goal per se, but they do have a huge triathlon event there every spring. I figure if I start now I should be ready in a year to complete. Not sure which one I want to shoot for, but either of the first two I think. Open Original Shared Link Anyone want to join me? Not necessarily for this particular race, but for the process of getting ready for one?

Lissy

  • 1 month later...

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CaroCakes Newbie

Lissy-

I realize this is old, but I thought I'd try anyway. I'm extremely interested in getting into triathlons. I'm training with the hopes of a sprint distance triathlon (probably later rather than sooner). I'd love to feel ready enough to compete in a year or so, but I really don't have a timeframe. This is a completely new world to me but I'm excited to learn!

I hope your move went smoothly, moving to a small island must be quite the experience! I hope to hear all about it.

Caroline

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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