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Is Chronic Rhinitus A Symptom Of Celieac


dolphin

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dolphin Newbie

Thank you to those who still visit this forum to help those of us trying to make sense of our symptoms. My daughter who is 18 has had every symptom that I have seen on this website, but one she has that I have not seen mentioned on the forum pages is chronic rhinitus. She has had chronic rhinitus for 13 years with constant post nasal drip. I have seen this mentioned on one other site but would like to know if anyone else has experienced this. She has chronic fatique, terrible allergies, headaches, joint pain, can't sleep, brain fog and craves carbs. She is in college but will be home for the summer so I am going prepare all gluten free meals for her to see if it helps.

Does anyone have any great book suggestions to help get me started with meals.

Thank you


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one more mile Contributor
Thank you to those who still visit this forum to help those of us trying to make sense of our symptoms. My daughter who is 18 has had every symptom that I have seen on this website, but one she has that I have not seen mentioned on the forum pages is chronic rhinitus. She has had chronic rhinitus for 13 years with constant post nasal drip. I have seen this mentioned on one other site but would like to know if anyone else has experienced this. She has chronic fatique, terrible allergies, headaches, joint pain, can't sleep, brain fog and craves carbs. She is in college but will be home for the summer so I am going prepare all gluten free meals for her to see if it helps.

Does anyone have any great book suggestions to help get me started with meals.

Thank you

I just checked the definition

"It is caused by chronic or acute inflammation of the mucous membrane of the nose due to viruses, bacteria or irritants."

Six weeks after being gluten free I woke up with the oddest sensation. The inside of my nose actually felt bigger, it felt like a cavern had opened up in my face. I think my nose was swollen for so long I did not know it was. I did not list it because I did not know it had a name. Nose feels shut most of the time sounds odd. I feel like I could stick a matchbox truck in my nose now.

Why not talk to her now about being gluten free? I did not preach to my 19 year old. She saw the difference in me and i pointed her to this site. After she read a bit she figured it out on her own and really seems to be sticking to it. We talk from time to time. I did send her a list of the alcohol that is gluten free figuring that most college kids drink. Now her hang overs are much less and her urge to get drunk is less.

With my college kid needing to be gluten free she also needs her own kitchen. Some schools can help but they just do not really understand cross contamination. You two may want to think about this soon since I know that drawings for rooms are soon. I have lost so much in my life due to this illness that I do not mind the expense of an apartment for her. Write me if you need ideas or want to talk.

mikehall117 Rookie

I also suffer from chronic rhinitus and have done since I was a teenager. I have a constant post-nasal drip and have seen several specialists about it. I have been told that it is most likely an allergy and is probably made worse by pollution (I live in the middle of London). I am allergic to dust and have mild hay-fever so I have just accepted this diagnosis and learned to live with it.

I haven't been gluten-free for very long so I don't know if it is related. At present I haven't noticed any change to my symptoms however having read this I shall watch with interest to see if there is a change over the coming weeks.

jerseyangel Proficient

I was also diagnosed with chronic rhinitus for years before finding out I had Celiac. The ENT used to tell me how "angry and red" my nasal passages were. I honestly don't know if it's connected or not, but I have had much less sinus problems since being gluten-free. I still have seasonal allergies, but I no longer use antihistimines or steroid nasal sprays regularly. I have not had a sinus infection either. I used to get several a year.

Salax Contributor

I was diagnosed with that as well. I noticed the post nasal drip has been better since going gluten-free and casein free. I also get ear infections yearly. I have severe allergies as well. I get sinus infections every couple of months. :(

Best of luck!

ang1e0251 Contributor

My post nasal drip of years improved so much gluten-free, that I no longer had to use antihistamines round the clock. Now I take a low dose one only occasionally, as needed.

dolphin Newbie
I just checked the definition"It is caused by chronic or acute inflammation of the mucous membrane of the nose due to viruses, bacteria or irritants."Six weeks after being gluten free I woke up with the oddest sensation. The inside of my nose actually felt bigger, it felt like a cavern had opened up in my face. I think my nose was swollen for so long I did not know it was.

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dolphin Newbie
I also suffer from chronic rhinitus and have done since I was a teenager. I have a constant post-nasal drip and have seen several specialists about it. I have been told that it is most likely an allergy and is probably made worse by pollution (I live in the middle of London). I am allergic to dust and have mild hay-fever so I have just accepted this diagnosis and learned to live with it.

I haven't been gluten-free for very long so I don't know if it is related. At present I haven't noticed any change to my symptoms however having read this I shall watch with interest to see if there is a change over the coming weeks.

Thank you for writing. I don't know if you saw the other post but she wrote that she noticed a drastic difference at 6 weeks. I hope that happens for you.

Good Luck

beanpot Apprentice

I have had chronic allergic rhinitus since I was a child. Terrible year round allergies to dust, molds, and pollens, and cats. I take 24 hr Rx allergy medicine. However, I noticed a long time ago that if I avoid milk, my allergice symptoms are much milder. Since I've gone gluten free, my breathing is better altogether and allergies calmer. Itchy skin is better too.

Allergy is very different but I think if you cut out something that is causing inflammation, like gluten, your overall inflammation like from allergies goes down. I'm not an expert however.

Good luck, allergies have always been a curse for me.

leadmeastray88 Contributor

Interestingly enough, I noticed this past week that I have tonsil stones and related this to my post-nasal drip that I've been suffering from for a few months now. I ignored it because I thought I had a cold but it's obviously something more. I've been gluten free for almost a year so I don't think there's a connection there..

Does anyone know of any other food intolerances associated with post-nasal drip? I have no other symptoms.

Rebecca's mom Rookie
This is amazing.
  • 2 weeks later...
one more mile Contributor
This is amazing.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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