Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Find Out Tomorrow About Gluten Intolerance

helgih88

Recommended Posts

helgih88 Newbie
helgih88
Posted

Tomorrow I'll call my allergy doctor to find out if I'm a celiac or not (I hope he tested me, I didn't expect gluten at the time). To be honest, I actually wish this to be true, just so my life will improve (how sad is that?). I don't know when this all started, I've been like this since I've remembered but always suspected something was wrong. So now I'm in college and I just can't focus on anything (I've always been a slow learner but such a nerd). I'm also tired all the time so this has really started to affect me (in college you can't slack off like in high school). I'm this typical goody boy who tries to do his best every time but I just can't meet the demands any more, and as I grow older people will start to expect more of me (I'm 20, male) and I do a lot of stupid mistakes at work (I'm really aware of how stupid I am) and this work is the one that actually gives a lot of room for mistakes (so I feel a bit safe for now). I also do these mistakes when talking to other people, and they probably think I'm ,,special'' or something. Okay, enough with the whining (I get really emotional at evenings, ha ha).

So I strongly believe I'm a celiac. I have most of the major symptoms and I've been off gluten for a few days with much improvements for my bowels. I always thought this was something else (ADD or something, In denial), so I was totally shocked when I found a chart that showed how many symptoms I actually had. I just discovered this website today and I read a lot of your posts. I'm really inspired by you guys (applaud), I hope this will change my life. I've always been this really stubborn guy (damn me) so I've persisted through the years without going to a doctor (even though it's really cheap in my country, denial). I thought to myself, If everything checks out fine, then that just means I'm really stupid and I'll achieve nothing in life. So that's why I'm so excited to continue gluten free diet, to use all of my potentials. Maybe the symptoms themselves keep you away from doctors, like being lazy and cranky all the time and not be interested in getting an appointment. I just can't believe how no one has mentioned this gluten intolerance to me before. I've been to two doctors before and they never even suggested something was wrong with me. I told the first one how I had a hard time hearing what people say and she said ,,it's just a lack of concentration'' like this was some typical teenager thing (maybe she was right about the concentration but I had less than low). If I were a doctor I would at least ask a couple of more question about how I was doing and so on. The next doctor gave me something for my dandruff, which went away but I didn't bother to keep buying this drug she gave me (just really gave my scalp a beating when washing it, that outta do it!). After avoiding gluten, this ,,dandruff'' or cough scalp eczema cough, went mostly away by itself (of course). This doctor never even mentioned this could be food related! I'm losing my faith in doctors fast, they are so narrow minded and never think of doing what helps the patient the most (which should be telling them to see a better doctor).

Okay, I've definitely been whining a lot (happens every time I go online) so I'll get to my point. Through time, I've always had these really weak ankles and I keep hurting them badly when tripping over. I just read from the user One More Mile that he had the same problem. Could this really be gluten related (or from malnutrition)? Also, I've been gaining poorly from the gym over the last 2 years, will this mean my overall strength will be increased? Yeah, and you could also just share your experience about what I've been talking about. Thanks guys (and ladies) for your input.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

This is one place where you can 'whine' all you want. Many of us had a long hard road to diagnosis and dealt with clueless doctors so you are not alone. Do keep in mind that the blood testing and even the biopsy process can definately tell you that you have celiac but it can not definately tell you that you don't. Do make sure to stay on gluten until you are done with testing and then after all testing is done go gluten free for a bit no matter what the results. Often it is the response to the diet that is most telling.

I have a condition that causes loose tendons and ligaments and suffered many, many injuries in the dumbest ways, I even 'dislocate' when sleeping on occasion. I did find that once the inflammation from the celiac went down it seems to occur less often. Something else that helped was seeing a PT who showed me excercises to strengthen the muscles around the joints I have the most issues with, my knees and ankles, and also helped me with balance issues from gluten ataxia. Celiac of course effects the nutrients we absorb from our food so it could be impacting your abilities and growth in the gym also.

I hope you get some answers soon.

helgih88 Newbie
helgih88
Posted
  • Author

Wow, guess what. I talked to my doctor and it turns out, he tested me for wheat allergy but not gluten intolerance (OMG). He didn't find out any other allergies so I'm putting my money on gluten intolerance. Now I have to wait a month to get results. You weren't kidding when you said there was a long hard road to diagnosis.

ravenwoodglass Mentor
ravenwoodglass
Posted
Wow, guess what. I talked to my doctor and it turns out, he tested me for wheat allergy but not gluten intolerance (OMG). He didn't find out any other allergies so I'm putting my money on gluten intolerance. Now I have to wait a month to get results. You weren't kidding when you said there was a long hard road to diagnosis.

Try to make sure he does a full celiac panel and also checks for anemia and your B12 levels while he is at it. Also even if tests come out negative be sure to try the diet after they are finished.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,956
    • Most Online (within 30 mins)
      7,748
    Crismedin
    Newest Member
    Crismedin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.