Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Speed Recovery Progress?

helgih88

Recommended Posts

helgih88 Newbie
helgih88
Posted

Okay, I have not been officially diagnosed but felt much improvement to my stomach and bowels after cutting out gluten. Most of my symptoms are still there though which I think are contributed to my ,,colitis'' or ,,leaky gut'' from the gluten. In fact I'm not sure, but it can't hurt to make extra precautions (that's one of the dilemmas of self diagnosis).

I feel like caffeine gives me a huge boost but it definitely has an affect on my GI, so If I've eaten something with gluten then caffeine speeds up next toilet trip (may sound weird, ha ha). But now when I have caffeine, I don't feel the same ,,punch in the stomach'' kind of feeling any more so I feel I have made a little progress. This is probably the reason stress has similar effect on me (adrenaline), but thankfully I've cooled down over the years so some might think I'm mellow (well, I act mellow for two reasons: I can't think fast, and stress only makes things worse). I was really hyper as a kid and I want to feel as energetic as back then.

So, regarding this recovery. I still have the usual symptoms of sleepiness, lack of memory and concentration. When I see rashes forming on my arms and legs (little red bumps, usually just one here and there), that's when I feel the worst. That's also why I want my intestines to recover faster so I don't get those allergy reactions, damn allergies. I notice it takes me forever to get to the point: What's your experience with marshmallow root caps? I'm probably going to the pharmacy and get some tomorrow. If you know of any other non-prescription drugs then that would help a lot.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gfresh404 Enthusiast
Gfresh404
Posted
Okay, I have not been officially diagnosed but felt much improvement to my stomach and bowels after cutting out gluten. Most of my symptoms are still there though which I think are contributed to my ,,colitis'' or ,,leaky gut'' from the gluten. In fact I'm not sure, but it can't hurt to make extra precautions (that's one of the dilemmas of self diagnosis).

I feel like caffeine gives me a huge boost but it definitely has an affect on my GI, so If I've eaten something with gluten then caffeine speeds up next toilet trip (may sound weird, ha ha). But now when I have caffeine, I don't feel the same ,,punch in the stomach'' kind of feeling any more so I feel I have made a little progress. This is probably the reason stress has similar effect on me (adrenaline), but thankfully I've cooled down over the years so some might think I'm mellow (well, I act mellow for two reasons: I can't think fast, and stress only makes things worse). I was really hyper as a kid and I want to feel as energetic as back then.

So, regarding this recovery. I still have the usual symptoms of sleepiness, lack of memory and concentration. When I see rashes forming on my arms and legs (little red bumps, usually just one here and there), that's when I feel the worst. That's also why I want my intestines to recover faster so I don't get those allergy reactions, damn allergies. I notice it takes me forever to get to the point: What's your experience with marshmallow root caps? I'm probably going to the pharmacy and get some tomorrow. If you know of any other non-prescription drugs then that would help a lot.

I personally have never taken marshmellow root caps.. but I can tell you what I do/have taken that seem to have actually helped a lot.

A good multivitamin - definitely need to get one of these.

Enteric Coated peppermint oil pills - really only need these if you have bacterial overgrowth, but I actually did find them to be very soothing when I had IBS.

Flax Seed Oil/Omega 3 Fish Oil - Flax oil seemed to help somewhat, though I stopped taking them because I usually get bloated with oils, have yet to take fish oil.

Vitamin B Complex Supplement - I would highly recommend one of these, good for added energy and helping to rebuild/restore the villi.

Calcium Supplement - Really only needed if lactose intolerant, but also highly recommended.

Echinacea + Golden Seal Complex - Also highly recommended, as they have anti-inflammatory effects, but do not take for more than two as it will lose it's effect. Go two weeks on and two weeks off.

Digestive Enzymes - Have saved my life, def. get a good one of these with a lot of lipase if you are struggling with fats. Awesome for a boost of energy or if you're having any digestive issues, also helps in the absorption of nutrients and food allergies if any exist.

Aloe Vera - Haven't taken yet, but supposed to be very helpful and soothing to the intestines, however excess can cause D so you might want to avoid if you're having issues with it.

Royal Jelly - Supposedly very helpful in providing energy, I have also yet to try these.

Supplement can make all the difference in the world, they sure have helped me a lot. If you're going to get any of the above, I'd start off with a good multi, a vitamin B Complex, Echinacea + Golden Seal Complex, and digestive enzymes. These have gave me so much extra energy. Hope this helps, let me know if you have any other questions.

I think t

ang1e0251 Contributor
ang1e0251
Posted

I'll add to that. I felt the sublingual B12 (methyl type) was a big help to me. They are soothing and give me energy and a sense of well being. Also increasing my dose of magnesium has really been great. It improved my BM's, relaxed the muscles in my neck and shouders and has improved my sleep a lot.

helgih88 Newbie
helgih88
Posted
  • Author

Great answers.

So far I've got digestive enzymes and some probiotics. The enzymes include something that's supposed to sooth the intestine and speed recovery. I also have a multivitamin and b vitamin. I even dug up some L-glutamine that should strengthen the immune system and is also an important nutrient for the intestine. I was going to get some lactaid but for some reason the pharmacy said they haven't had it for a while. I'm a little afraid to increase the dosages of the vitamins (A, D, E, K overdose) if I'm in fact not a celiac so this should do just fine until my doctor has done some testing. I'm scheduled to meet another one next Monday and very soon after that he's going to put some camera inside of me (I can never get over that part, ha ha). This way, I should get some results hopefully next week. I know the blood results are still on the way but this is inevitable if I want to see how much damage has been done (and to rule out some things). By now, I'm hoping for a positive on celiac disease since that is at least curable. I would give away so much just to be healthy so if I have to stop eating certain food, then so be it.

It's great to hear about your recovery, I hope I will have mine one day. I've been on a gluten free diet for a week now with little problems.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.