Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had My Test Done Today


Nadia2009

Recommended Posts

Nadia2009 Enthusiast

Hi everyone,

I had the blood tests done today. It was about time because since I switched back to gluten containing food for the last weeks I was feeling bad. Especially the last two weeks were sooooooo bad. My nose is clocked and I can't breathe well. I am coughing and that even makes it worst to breathe. I didn't have a good sleep either and I am more stressed out. I don't know if it is all due to the gluten but I know everytime I go back to gluten/wheat products, it accumulates and the first week is fine the second week is ok third week starts with problems and in the fourth week, I have many symptoms.

I stayed away from Milk during a period of two months (just had a few times maximum 3 caffeinated drinks with cream) and I am starting to think that milk isn't my problem. For me, it must be gluten or just wheat. Anyway, checking for lactose and fructose intolerance is the second step.

I went back to the gluten food to help the diagnostic if I had celiac but now my blood tests are done, I want to eat much less gluten to start with and eventually to stop eating it at all.

So, what kind of food do you eat when you have celiac? I think I am going to be Ms Rice very soon...rice potatoes rice potatoes rice potatoes.

The nice thing is that I will be losing the few pounds I gained lately. I know they will be melting down once I stop eating wheat products. I have already had the experience.

Ciao,

Rice Potatoe Girl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JW88 Newbie

Nadia:

There are sooooo many things you CAN eat.

When I first went gluten-free a little over a year ago, I wondered the same thing, though. What can I eat? Just start doing research. You can find lists of ingredients to avoid and lists of which ones are safe. I took my lists with me to the store, as well as a gluten-free grocery guide and had to read the labels on EVERYTHING for a few months, but finally got to a point where I knew what I could and could not eat.

And there's TONS of recipes all over the Internet for gluten-free food. Yes, you will have to start cooking if you don't already. You just can't trust restaurants and there's not a humongous variety of prepped meals that are gluten-free.

If you have a Whole Foods Market near you, they carry a lot of gluten-free food and ingredients, and they offer gluten-free cooking classes (at least the one near me does). You can also buy gluten-free cookbooks at (Company Name Removed - They Spammed This Forum and are Banned) or other websites.

I have an incredible gluten-free salad dressing recipe. Email me and I will send it to you. Salads and vegetables have become a staple in my diet now that I'm gluten-free. That's another way you can get healthier and lose the weight the wheat threw on you. ;)

I have a ton of food allergies (so it's not just wheat I have to avoid), so if I can manage to get variety in my diet, anyone can! :D It just might take a lot of work on the front end. Do google searches for "gluten-free food" or "celiac disease" and you'll get lots of links and sublinks to browse through. Oh, and another trick I use is when I find a food I'm not sure is gluten-free, I'll do a google search, "Is Daisy sour cream gluten-free?" or "Is Oscar Meyer smoked ham gluten-free?" or "What Ben & Jerry's Ice Creams are gluten-free?" I usual get an instant answer.

Good luck.

  • 2 weeks later...
Nadia2009 Enthusiast
Nadia:

There are sooooo many things you CAN eat.

When I first went gluten-free a little over a year ago, I wondered the same thing, though. What can I eat? Just start doing research. You can find lists of ingredients to avoid and lists of which ones are safe. I took my lists with me to the store, as well as a gluten-free grocery guide and had to read the labels on EVERYTHING for a few months, but finally got to a point where I knew what I could and could not eat.

And there's TONS of recipes all over the Internet for gluten-free food. Yes, you will have to start cooking if you don't already. You just can't trust restaurants and there's not a humongous variety of prepped meals that are gluten-free.

If you have a Whole Foods Market near you, they carry a lot of gluten-free food and ingredients, and they offer gluten-free cooking classes (at least the one near me does). You can also buy gluten-free cookbooks at (Company Name Removed - They Spammed This Forum and are Banned) or other websites.

I have an incredible gluten-free salad dressing recipe. Email me and I will send it to you. Salads and vegetables have become a staple in my diet now that I'm gluten-free. That's another way you can get healthier and lose the weight the wheat threw on you. ;)

I have a ton of food allergies (so it's not just wheat I have to avoid), so if I can manage to get variety in my diet, anyone can! :D It just might take a lot of work on the front end. Do google searches for "gluten-free food" or "celiac disease" and you'll get lots of links and sublinks to browse through. Oh, and another trick I use is when I find a food I'm not sure is gluten-free, I'll do a google search, "Is Daisy sour cream gluten-free?" or "Is Oscar Meyer smoked ham gluten-free?" or "What Ben & Jerry's Ice Creams are gluten-free?" I usual get an instant answer.

Good luck.

Thank you JW,

My test came negative. But I am staying away from most gluten containing food. I still have a bit here and there. But I am not eating pasta, bread and pastries (oh I had half a croissant yesterday! A quiet cheater) I eat more veggies and I eat potatoes, sweet potatoes and rice as carbs.

You are right there must a lot to eat but I am just lazy and miss my easy found bread from the supermaket.

Nadia

ravenwoodglass Mentor
Thank you JW,

My test came negative. But I am staying away from most gluten containing food. I still have a bit here and there. But I am not eating pasta, bread and pastries (oh I had half a croissant yesterday! A quiet cheater) I eat more veggies and I eat potatoes, sweet potatoes and rice as carbs.

You are right there must a lot to eat but I am just lazy and miss my easy found bread from the supermaket.

Nadia

Hi Nadia, If you want to see if the diet will help with your issues you really do need to be strict on the diet. Being gluten light just won't do. It may help make your gut reactions less frequent but it will not stop the antibody reaction that leads to lots of other issues. Those antibodies can invade any organ of your body from joints and muscles to gallbladder, liver, brain and can have a negative impact if you should decide you want to have children.

There is a lot of gluten-free food available and not all of it is a hassle to prepare. One of my favorite lazy day meals is Thai Kitchen thin rice noodles smothered in single ingredient frozen peas, corn, broccoli and either frozen shrimp or left over meat of some kind that has been 'sauteed' in butter and olive oil. The whole thing takes less than 5 minutes to fix when using frozen veggies. If you use fresh maybe 10 minutes so you can wash and cut them up. You can also prepare large quantities of many things that can be frozen and reheated when time or energy are tight. When you get down to it fixing stuff at home is not only cheaper but also takes less time than running to a fast food shop or restaurant.

Nadia2009 Enthusiast
Hi Nadia, If you want to see if the diet will help with your issues you really do need to be strict on the diet. Being gluten light just won't do. It may help make your gut reactions less frequent but it will not stop the antibody reaction that leads to lots of other issues. Those antibodies can invade any organ of your body from joints and muscles to gallbladder, liver, brain and can have a negative impact if you should decide you want to have children.

There is a lot of gluten-free food available and not all of it is a hassle to prepare. One of my favorite lazy day meals is Thai Kitchen thin rice noodles smothered in single ingredient frozen peas, corn, broccoli and either frozen shrimp or left over meat of some kind that has been 'sauteed' in butter and olive oil. The whole thing takes less than 5 minutes to fix when using frozen veggies. If you use fresh maybe 10 minutes so you can wash and cut them up. You can also prepare large quantities of many things that can be frozen and reheated when time or energy are tight. When you get down to it fixing stuff at home is not only cheaper but also takes less time than running to a fast food shop or restaurant.

Thanks for the reminder. I am so stubborn I know. But I am not sure I have celiac though...my doctor's office called me on Friday and I missed the call but I think he may be sending me for the colonscopy. If I really have celiac I will go cold turkey otherwise I will give up gluten progressively. I already dont eat it as a main dish neither as bread to accompany dishes. I dont have bread in the morning 3/4 of the time. I have rice :lol: my Asian friends would be proud of me if they knew I had rice in the morning. I want to buy a bread machine and learn how to make "bread that doesnt hurt" at home. I have never been a cookie person...usually snacks on fruits and dry fruits etc. but only in the last couple of years my moods is down specially in the winter and then I buy comford food. I learned I am low on vit D...dont know how low but the nurse told me on the phone I shouldnt be at 62...and I googled the symptoms of a low vit D and found it was fatigue, depression and migraines with bones hurting.

Thanks for your recipe. I am actually happy because I love eating rice and meat and my newly found love is potatoes/sweet potatoes.

I dont want to get used to manufactured snacks that are gluten free. But it is good to know where I can find them in case of craving. And you are absolutely right fixing things at home once we passed the laziness is cheaper and healthier. I think I am going to learn to make my own snacks gluten free. It is a new world to me and it is kinda exciting! You know maybe there is a good reason I never really learned to bake pastries. My sixth sense was telling me to be careful to flour but now is the time to learn using good flour and making bread with rice, corn and potatoes.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748

    Dogdad21
    Newest Member
    Dogdad21
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.