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Narcolepsy Research--autoimmune


mushroom

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mushroom Proficient

Narcolepsy has been discovered to be an autoimmune disease:

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The genetics involve HLA and they suspect it could be linked to multiple sclerosis and juvenile diabetes. And perhaps celiac??? Who knows!


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flourgirl Apprentice

I wouldn't be surprised if one day "they" decide that many of these things are linked, and if some of them may actually be manifestations of the same thing. I would not be surprised to hear that a great many maladies stem from all of the "stuff" we pump into the air, ground, food etc. We are no better than geese who poop where we eat....so to speak.

ravenwoodglass Mentor

My soon to be ex-husband suffered from narcolepsy for years. For him it was definately linked to celiac. He has gotten much better since he went gluten-free. He no longer falls asleep in the middle of conversations and doesn't need a nap after every meal.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
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    • Samanthaeileen1
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