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Vitamins?

Gluten Ogre

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Gluten Ogre Rookie
Gluten Ogre
Posted

Howdy,

My mom has celiac and I am trying to figure out which vitamin supplements are really important for her to be taking?

Any thoughts or ideas would be greatly appreciated.

By the way I don't know if I posted this in the right place but, I guess I will find out.

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tarnalberry Community Regular
tarnalberry
Posted

She should ask to be tested by her provider for vitamin levels, because it *really* depends on what her body has been able to absorb.

As a safe start, I'd go with a Calcium/Magnesium supplement (a 2:1 Ca to Mg ratio), and a VitD supplement. Fabulous for bone health and supporting the immune system (but not *stimulating* it, like some herbals can do - that's not so great for autoimmune issues including celiac if there's any chance you could get glutened).

Newbie Celiac Newbie
Newbie Celiac
Posted

Calcium and Vitamin D3. Making it D3 is important since that is what the body absorbs. Also, take them both with food and the D3 especially with fat. I take mine with dinner as I'm more likely to have meat or butter or some sauce that has a bit of fat which helps absorption. My nutritionist said it was very important as many people take these pills in the morning and skip breakfast and then they are less likely to absorb any of the nutrients.

Gluten Ogre Rookie
Gluten Ogre
Posted
  • Author

Thanks for the advise.

Are there any other vitamins that I should be looking for?

Liveenjoylife Apprentice
Liveenjoylife
Posted

I to take calcium and magnisium together. I also take b12 for blood cells, real good for celiac disease. and a multivitamin.

joellen Newbie
joellen
Posted

I am curious about that myself. It seems there are a multitude of opinions. The doctor that told me I had a gluten sensitivity (which I'm still not completely convinced is true), also recommended something called Ortho Molecular Products; Alpha Base Foundation Pak, which is a pre-packaged vitamin supplement combo. From what I can tell, it's multiple B vitamins, Omega 3's, vitamin E, and some other things. Each packet has about 5-6 pills. Then there's the magnesium supplement, the Vitamin D3 supplement, the iron supplement, and of course, the other stuff I normally take; Green tea extract, chromium picolinate, pro biotics, and my prescription meds. That's a lot of pills. Some before meals, some with meals, some after meals, some in the am, some in the pm. Seems I'm always swallowing a fistful of capsules. And honestly, I haven't noticed a bit of difference. Even in the vitamin categories, I tested in the normal range, but low normal for some. So, I guess not even "normal" is normal! It's hard to know if I'm being "sold" things I don't need, or if these really are worth the cost. And I'm pretty sure there are high quality supplements out there that cost less than what I paid; I just don't know how to find out what they are and where to get them. You can order anything, but which is the best quality for the money?

I also wonder about the probiotics. I noticed at Whole Foods, some of them are in the refrigerated section, I'm assuming to keep them fresh and perhaps they have "live" cultures? Would those be better? Oh, and digestive enzymes, I have those as well. As you can tell, I am a bit cynical and mistrustful, having been run round the block by medical professionals in the past, sometimes with detrimental results.

  • 4 weeks later...
BBadgero Newbie
BBadgero
Posted
I also wonder about the probiotics. I noticed at Whole Foods, some of them are in the refrigerated section, I'm assuming to keep them fresh and perhaps they have "live" cultures? Would those be better? Oh, and digestive enzymes, I have those as well. As you can tell, I am a bit cynical and mistrustful, having been run round the block by medical professionals in the past, sometimes with detrimental results.

I can only imagine that the refridgerated probiotics are better as they are much less processed than the shelf pills... also, as far as vitamins, I've just picked up some great vitamines from BetterHealth that are soy, corn, gluten, dairy, and shellfish free... so far so good, and they do have the D3 and multiple B's....

As far as digestive enzymes - I can honestly say that I don't think they work (at least for me). I've taken them while dining out and still have gotten sick (although it may have been much less so possibly)...

Anyway, as far as vitamins, I just get the ones with least allergens and make sure I follow the rule "5 is fine, 9 is divine" when it comes to fruits and veggies.... nothing beats natural f & v!

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BBadgero Newbie
BBadgero
Posted
I to take calcium and magnisium together. I also take b12 for blood cells, real good for celiac disease. and a multivitamin.

Hey Liveenjoylife, the comment about blood cells makes me want to ask you and anyone else here... anyone ever get a low white blood count blood draw result with everything else (including no fever, etc) fine? I had one recently with my physical and know I was just coming off of an episode of being glutened, etc. I read someplace on Dr. Laura Power's website that one of the T cell reactions could affect white blood cells in some way.... too technical for me, but was wondering if anyone else has had something similar?

Thanks.

shirleyujest Contributor
shirleyujest
Posted

This is a question that's been on my mind too. I seem to go around in circles trying this and that supplement. Some I really notice a difference with, others not so much.

Like everyone says, Vit. D3, calc/mag and iron are musts for me as I've tested low in those. (not mag but must go w/calc).

I've tried probiotics, both the room temp. and fridge, never noticed a diff. Then again, this was when I was oblivious to the gluten problem so was not gluten-free. I would say for sure try and see what they do, and yes the point of the chilled ones is to maintain "live," although who knows how many expire before you get to them. (those capsules seem awfully stuffy :o )

Also I've done CLA capsules (conjugated linoleic acid, essential fatty acids), multivit and I especially like Solgar chelated multi minerals. Please someone tell me if they're not gluten-free, but based on my reading they should be. They break down in the large intestine where minerals are normally absorbed. They definitely have helped me in the past more than "normal" mineral supps.

Also anecdotally I've taken grape seed extract and vit. K to help skin healing, and I've noticed one or both of those helps cuts heal much more quickly and easily.

I've tried papaya enzymes to help with my reflux but didn't really notice a diff so stopped.

There are others I forget now but if you want to be ambitious put together a list from suggestions. Remember Vit A and selenium and even too much D can cause bad reactions so check w/doctor before having your mom take too much of anything.

jkr Apprentice
jkr
Posted
Hey Liveenjoylife, the comment about blood cells makes me want to ask you and anyone else here... anyone ever get a low white blood count blood draw result with everything else (including no fever, etc) fine? I had one recently with my physical and know I was just coming off of an episode of being glutened, etc. I read someplace on Dr. Laura Power's website that one of the T cell reactions could affect white blood cells in some way.... too technical for me, but was wondering if anyone else has had something similar?

Thanks.

I have had a low WBC for quite some time and I think I've had celiac since I was a child. I just got diagnosed last year. I work for a hematologist and she just calls it "cyclical neutropenia" but maybe it is due to the celiac. I will ask my GI doctor.

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    • Aretaeus Cappadocia
      Gluten free nuts

      By Aretaeus Cappadocia · Posted

      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

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    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

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    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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