Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intolerant...


Nikki69

Recommended Posts

Nikki69 Newbie

Hi,

I'm newly diagnosed with Coeliac. I've been really careful to be gluten free but I've been really sick and in pain since yesterday evening. All I can trace it to is the cottage cheese and milk as the only other things I ate was plain chicken salad!!

I've read you can be lactose intolerant at the beginning. If that is the case, and the thought really does my head in, how long do you have to give it up for? I was hoping I wasn't as really struggling with the gluten-free :(

Thanks for your help.

Nikki


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Storm Apprentice

I am exactly the same. I cooked a meal yesterday, chicken in olive oil, mushrooms and cheese / potato slices ( that say they are gluten free ). I was SO careful not to gluten myself and I am 99.9% sure I didn't, however, I was really ill last night.

I spoke with my girlfriend and we also thought that I could be lactose intolerant. I am so sick of this and I would like to ask the same question as Nikki...could it be lactose as I am so early diagnosed??

Thank you :)

Gobbie Apprentice

Lactose Intolerant.

*Milk, yogurt and cream.

Well, I have been with this sensitivity for many years now and it is easier than gluten!

There are many LACTOSE FREE products available on the market.

I live in the UK and there is a LACTO TREE milk -semi skim & whole available.

It is found in most of supermarket's shelves and they are trust worthy.

On TV ads and everything.

I have replaced ordinary milk to this few years ago and it is SAFE!

My body is sensitive to almost everything so I am a good guinea pig when testing these things.

It tastes nice and has never triggered any symptoms!

This company also does LACTO FREE YOGURT and CREAM. :)

Open Original Shared Link - their branding is strong so easily spotted!

*Cheese or Sheese.

Alternative cheese that are lactose free!

I have not tried them out myself yet but they are available on Alternative food stores.

There are different types of them as well, mozzarella, cheddar, etc.

As far as I am concerned, lactose intolerant is fightable.

Make sure it is not the ALLERGY that you have.. it is only the INTOLERANCE you can cope with.

I am intolerant to it so about 7 years ago, I drank a glass or more of ordinary semi skimmed milk everyday to beat it off as I heard if you include it in your diet reguarly it does go away *though you have to maintain this.

So I did exactly that for about a month or so, ofcourse initially the symptoms showed-indigestion, cramps, and other digestive problems but I was determined. After a month or so, drinking milk became problem free although highly concentrated cheese or cream did trouble my stomach a little but never the less, better than before. Although it was hard to maintain regular intake of milk. Because of the busy life style and so on, I was off milk for few days ... and the symptoms started to return in milder form. Then after a week, drinking milk cause bad symptoms AGAIN.

Yea, so it is do-able but you have got to stick to it is my conclusion.

I am not a milk person anyway so I drink lacto free or soya light milk instead.

Oh, and flavoured soy milk usually taste lovely too and they are not heavy as cow's milk.

There is Rice milk also, if you want to try.

Hope this helps!

GFinDC Veteran

You can get Lactaid brand pills here in the US to take. They are gluten-free pills that contain the lactase enzyme to digest lactose sugar. One thing to watch out for is that some store brands etc contain wheat, so do check the ingredients.

I have been mostly dairy free for 12 years now, although once in a while I get stupider then usual and try a little of the stuff. It never works out well for me. I can deal with the lactose sugar better now as long as I take some lactaid, but if I eat dairy I can't get to sleep, it''s like being on super go juice. Takes me 3 days to get past that, and get back to a somewhat normal sleep pattern. I do take calcium pills every day due to the reduced amount of calcium I get in my diet. So my thing is both a lactose and casein problem, which not everybody has of course. DPP-IV is supposed to help with casein, but I haven't noticed any improvement with it.

If'n I was to guess though, I'd say your ability to eat lactose might improve after 6 months to a year, depending on your ability to follow the gluten-free diet consistently. That's just a guess though.

ang1e0251 Contributor

Like gluten symptoms vary from person to person, so do lactose symptoms. I cannot have anything close to fresh; milk, cottage cheese, yogurt or sour cream. I can still tolerate butter, aged cheese. My daughter's symptoms are different from mine but she can use the Lactaid supplement and have a little ice cream. Not me, it just doesn't work for me.

So you both may have mixed results. The Lactaid supplement may work for you but maybe not. I'm not one of them but many have been able to avoid fresh dairy for a few months then add it back in after their body heals.

I would say avoid fresh dairy for awhile, you can substitute soy or almond milk. In a few months, try a little and see how you feel.

mushroom Proficient

You do have to distinguish between lactose and casein intolerance. Since the villi in the small intestine are damaged by gluten, and the tips of the villi produce the lactase that digests the lactose, most people with intestinal damage are intolerant to lactose until the intestine heals. The amount of time this takes depends on the amount of damage. Many people who are only lactose intolerant can eat yogurt, cheese (I can do butter and sour cream too) but have to avoid as a previous poster said, milk, cream, ice cream. If you are casein intolerant you can't handle anything with dairy of any kind and it is probably something that will stay with you unfortunately. It is easy to test which you are and which products bother you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748

    Newest Member

    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.