Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intolerant...


Nikki69

Recommended Posts

Nikki69 Newbie

Hi,

I'm newly diagnosed with Coeliac. I've been really careful to be gluten free but I've been really sick and in pain since yesterday evening. All I can trace it to is the cottage cheese and milk as the only other things I ate was plain chicken salad!!

I've read you can be lactose intolerant at the beginning. If that is the case, and the thought really does my head in, how long do you have to give it up for? I was hoping I wasn't as really struggling with the gluten-free :(

Thanks for your help.

Nikki


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Storm Apprentice

I am exactly the same. I cooked a meal yesterday, chicken in olive oil, mushrooms and cheese / potato slices ( that say they are gluten free ). I was SO careful not to gluten myself and I am 99.9% sure I didn't, however, I was really ill last night.

I spoke with my girlfriend and we also thought that I could be lactose intolerant. I am so sick of this and I would like to ask the same question as Nikki...could it be lactose as I am so early diagnosed??

Thank you :)

Gobbie Apprentice

Lactose Intolerant.

*Milk, yogurt and cream.

Well, I have been with this sensitivity for many years now and it is easier than gluten!

There are many LACTOSE FREE products available on the market.

I live in the UK and there is a LACTO TREE milk -semi skim & whole available.

It is found in most of supermarket's shelves and they are trust worthy.

On TV ads and everything.

I have replaced ordinary milk to this few years ago and it is SAFE!

My body is sensitive to almost everything so I am a good guinea pig when testing these things.

It tastes nice and has never triggered any symptoms!

This company also does LACTO FREE YOGURT and CREAM. :)

Open Original Shared Link - their branding is strong so easily spotted!

*Cheese or Sheese.

Alternative cheese that are lactose free!

I have not tried them out myself yet but they are available on Alternative food stores.

There are different types of them as well, mozzarella, cheddar, etc.

As far as I am concerned, lactose intolerant is fightable.

Make sure it is not the ALLERGY that you have.. it is only the INTOLERANCE you can cope with.

I am intolerant to it so about 7 years ago, I drank a glass or more of ordinary semi skimmed milk everyday to beat it off as I heard if you include it in your diet reguarly it does go away *though you have to maintain this.

So I did exactly that for about a month or so, ofcourse initially the symptoms showed-indigestion, cramps, and other digestive problems but I was determined. After a month or so, drinking milk became problem free although highly concentrated cheese or cream did trouble my stomach a little but never the less, better than before. Although it was hard to maintain regular intake of milk. Because of the busy life style and so on, I was off milk for few days ... and the symptoms started to return in milder form. Then after a week, drinking milk cause bad symptoms AGAIN.

Yea, so it is do-able but you have got to stick to it is my conclusion.

I am not a milk person anyway so I drink lacto free or soya light milk instead.

Oh, and flavoured soy milk usually taste lovely too and they are not heavy as cow's milk.

There is Rice milk also, if you want to try.

Hope this helps!

GFinDC Veteran

You can get Lactaid brand pills here in the US to take. They are gluten-free pills that contain the lactase enzyme to digest lactose sugar. One thing to watch out for is that some store brands etc contain wheat, so do check the ingredients.

I have been mostly dairy free for 12 years now, although once in a while I get stupider then usual and try a little of the stuff. It never works out well for me. I can deal with the lactose sugar better now as long as I take some lactaid, but if I eat dairy I can't get to sleep, it''s like being on super go juice. Takes me 3 days to get past that, and get back to a somewhat normal sleep pattern. I do take calcium pills every day due to the reduced amount of calcium I get in my diet. So my thing is both a lactose and casein problem, which not everybody has of course. DPP-IV is supposed to help with casein, but I haven't noticed any improvement with it.

If'n I was to guess though, I'd say your ability to eat lactose might improve after 6 months to a year, depending on your ability to follow the gluten-free diet consistently. That's just a guess though.

ang1e0251 Contributor

Like gluten symptoms vary from person to person, so do lactose symptoms. I cannot have anything close to fresh; milk, cottage cheese, yogurt or sour cream. I can still tolerate butter, aged cheese. My daughter's symptoms are different from mine but she can use the Lactaid supplement and have a little ice cream. Not me, it just doesn't work for me.

So you both may have mixed results. The Lactaid supplement may work for you but maybe not. I'm not one of them but many have been able to avoid fresh dairy for a few months then add it back in after their body heals.

I would say avoid fresh dairy for awhile, you can substitute soy or almond milk. In a few months, try a little and see how you feel.

mushroom Proficient

You do have to distinguish between lactose and casein intolerance. Since the villi in the small intestine are damaged by gluten, and the tips of the villi produce the lactase that digests the lactose, most people with intestinal damage are intolerant to lactose until the intestine heals. The amount of time this takes depends on the amount of damage. Many people who are only lactose intolerant can eat yogurt, cheese (I can do butter and sour cream too) but have to avoid as a previous poster said, milk, cream, ice cream. If you are casein intolerant you can't handle anything with dairy of any kind and it is probably something that will stay with you unfortunately. It is easy to test which you are and which products bother you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    2. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog

    5. - Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Gluten free nuts


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,274
    • Most Online (within 30 mins)
      7,748

    Alea sargent
    Newest Member
    Alea sargent
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.