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The Miracle That Is The Gluten Free Diet!

inskababy

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inskababy Rookie
inskababy
Posted

I cannot believe what a difference this had made for my oldest son! My youngest son had a celiac crisis and was diagnosed last month. I started to suspect that my oldest son might have gluten issues as well...after doing lots of reading, I realized he had very mild GI symptoms that could be linked to intolerance. He is almost always sick...lots of diarrhea episodes that have gotten increasingly worse, to the point of not being able to hold it after a taste of pretzel. He's also a very late talker, and while very sweet tempered, has some pretty crazy tantrums from time to time...ones that last for hours.

I got him tested two weeks ago and took him off gluten immediately thereafter, and I swear a different child is living in my house. He's chattering away all day now, with 10-15 new words a day -- he's sleeping 12 solid hours at night when I was lucky before to get 4 before he was crying for me to come get him -- not a single time out for two weeks -- no diarrhea and his first truly solid poop in 2 years. First time it didn't float either! It took forever to potty train him because he hated getting diarrhea in his big boy pants. He chows his dinner every night and has lost most of his pickiness issues. He willingly went shoe shopping and got his haircut without flipping out for the first time ever. He's gained 1/2 lb in just two weeks. Oddly enough I had to take his pants in on elastic despite weight gain because apparently his tummy has lost some swelling.

His blood tests came back two days ago as negative for celiac disease, but he was anemic which the dr said was a red flag regardless of the test result. The doctor felt strongly that he would still benefit from a gluten free diet (umm, duh) and thinks he does have celiac disease, given that my husband and youngest have it and he's gotten so much better. When we went to go get tested, he was scared of her, wouldn't speak and cried during the blood draw. When we went back for results, he bounced in, jumped on her lap and just started chattering away all while letting her actually examine him. She was blown away.

This is AMAZING. I'm just in tears...both in gratitude for the fix and that I'm sad that I didn't realize sooner that he wasn't just "delicate" or "high needs" or "sensitive" -- he was sick. I would be cranky all the time if I never felt good too.

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Congratulations!

taweavmo3 Enthusiast
taweavmo3
Posted

I'm so happy for you! I too have one child that tested positive after being very, very sick for a long time. Not too long after that, I ended up putting all my kids on the diet even though their tests were negative. We saw such positive results, we haven't looked back since! Hope you continue to see improvement, it's great to see the progress happen so fast.

lizajane Rookie
lizajane
Posted

me, too!!!

i was diagnosed in March AND my father in law has it. so seeing some possible symptoms in my 4 year old was enough for me to try gluten free for him. We didn't even have him tested, just took him off gluten. he finally sleeps all night (i wish he slept past 6am, though!) and he is pleasant nearly all day every day. and the tummy is gone!

hooray for you and your family!!!

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Isn't it just amazing! We also saw dramatic improvements in so many areas of our son's life. And we too wished we'd known sooner. When I look back at all the Ibuprofen we gave him just so he could get some sleep at night (he'd complain of his ankles and legs hurting so much as a toddler), it breaks my heart to know that his little body needed Calcium to grow properly. Or how much of his little childhood he slept through, because "he's a sleeper, you know." And all the doctors that told us he wanted attention at night, his arches weren't formed yet, he might have juvenile arthritis so let's get him tested, his intestinal issues are because he eats so many fruits and veggies, etc...UGH!

He is soooo much healthier, happier, active, etc. I'm so glad your little guy is doing so well too!!

ang1e0251 Contributor
ang1e0251
Posted

I'm so glad you have found the solution for your little guy! A sick child is such a worry.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

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      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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