Dq2 Positive, Now What?

[HopeMum]

My 2.5 year old daughter has celiac disease diagnosed last May by biopsy etc. Me and DH were tested at the time for antibodies and both negative. His father died in March from rectal cancer, made me think that DH should get genetic test. He's positive for DQ2.

He does get diarrhea occasionally and has had rectal fissures etc, we've been gluten light just because it's easier but should he be totally gluten-free now?

He doesn't cook, relies on me for our daughter's diet so I'm thinking I'll now have two gluten-free 'kids' on my hands! Any advice?

Claire

[leadmeastray88]

My 2.5 year old daughter has celiac disease diagnosed last May by biopsy etc. Me and DH were tested at the time for antibodies and both negative. His father died in March from rectal cancer, made me think that DH should get genetic test. He's positive for DQ2.

He does get diarrhea occasionally and has had rectal fissures etc, we've been gluten light just because it's easier but should he be totally gluten-free now?

He doesn't cook, relies on me for our daughter's diet so I'm thinking I'll now have two gluten-free 'kids' on my hands! Any advice?

Claire

Considering he has some symptoms, I would decide whether it's important to you or not to get a clinical diagnosis. If it is, he needs to be eating gluten to get the testing done. You said he had negative bloodwork - did he have a scope as well? Sometimes there are false negative blood tests. If a clinical diagnosis is not necessary for you, since your daughter has it anyway, it may be beneficial to go gluten free and see if his symptoms resolve. It's really the best test, but he needs to be completely rid of gluten to see if it works, not gluten light.

Hope that helps

[JennyC]

The fact that he's HLA-DQ-02 positive means that it is possible, genetically, for him to have celiac. Given his symptoms, he may want to consider going gluten free for a trial period to see if his symptoms improve.