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Got My 9 Month Panel Back

SGWhiskers

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SGWhiskers Collaborator
SGWhiskers
Posted

I got my 9 month panel back with some mixed results.

Good:

Cholesterol dropped 53 points without trying. Hurray, first time since I was 17 that everything is in the normal range.

Liver numbers backin the normal range.

Most Celiac numbers back in normal range

TtgA still 82. Number has dropped, but still high. I have had mini glutenings every 2 weeks or so as part of the learning curve and high sensitivity.

Serum Folate: Off the chart high. B12 is in the low range of normal (500s). What is the anemia thing? and how do we treat it? I got lazy and was off my vitamins for a month before this test.

I'm seeing the dietitian next week about vitamin balancing. I also have a whole series of doc appts lined up in the next month or two with GI, Neuro, physical medicine, and internist.

I would love to hear your experiences, about high folate. And is the TtgA one that is reflective of recent gluten, or old gluten? You folks are invaluable for helping me be an educated patient and hopefully better using my time with my medical team. Bring on the thoughts.

Thanks

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ravenwoodglass Mentor
ravenwoodglass
Posted
I got my 9 month panel back with some mixed results.

Good:

Cholesterol dropped 53 points without trying. Hurray, first time since I was 17 that everything is in the normal range.

Liver numbers backin the normal range.

Most Celiac numbers back in normal range

TtgA still 82. Number has dropped, but still high. I have had mini glutenings every 2 weeks or so as part of the learning curve and high sensitivity.

Serum Folate: Off the chart high. B12 is in the low range of normal (500s). What is the anemia thing? and how do we treat it? I got lazy and was off my vitamins for a month before this test.

I'm seeing the dietitian next week about vitamin balancing. I also have a whole series of doc appts lined up in the next month or two with GI, Neuro, physical medicine, and internist.

I would love to hear your experiences, about high folate. And is the TtgA one that is reflective of recent gluten, or old gluten? You folks are invaluable for helping me be an educated patient and hopefully better using my time with my medical team. Bring on the thoughts.

Thanks

The accidental glutening are the cause of the continued elevation in the Ttg. That will go down when the glutening stop.

The high folate is is likely a result of your vitamin intake and or eating foods that have been fortified with it. More important is that the high folate can block an accurate reading of the B12 and cause the B12 reading to be higher than it actually is. I would suggest that you start taking sublingual B12 tablets but do be sure to let you doctors know that you are supplementing it. With your having an appointment with the neuro I suspect that you are having neuro symptoms that often come with celiac disease. The B12 supplementation will help the nerves fire correctly and help aid in healing the damage. Nerves do take some time to heal but the B12 will help that process along.

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