Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Milk


KarenFe

Recommended Posts

KarenFe Contributor

I'm trying to find a milk replacement I can use without a problem. I first tried Rice Dream rice milk, but read it can cause problems. I don't think it was causing me any problems - I don't think. Then I tried Pacific, but read carrageenan can also cause problems even though it is not related to gluten. I read it also can cause other problems and is really nothing more than an unhealthy ingredient.

I can't find hemp milk in any of the grocery stores around me.

What can I possibly use? Is there any really great brand that is a favorite amongst those of us who need to eat gluten-free?

I'm so frustrated I could cry. I can't get my diet under control and I don't know what I can eat.

Thanks for any help you can offer!

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



puddleglum Newbie
I'm so frustrated I could cry. I can't get my diet under control and I don't know what I can eat.

Thanks for any help you can offer!

Karen

I hear you! I thought I was doing great with going gluten-free, then started having issues again and figured out it must be the milk. Then, I thought that was good and realized, tomatoes were setting me off. So, I am sort of hoping someone will figure out how to live on air...although I know many people here have more issues than just these, so I probably shouldn't complain. Anyway, if you are not allergic to soy, I have had pretty good luck with Silk Soy Milk. (I use it sometimes on gluten-free cereal, but I don't drink it, so I don't really consume it in large quantities). It is gluten free, but it does contain carageenan, so if this is causing you problems, then it may not work for you.

I also read, recently, on a vegan site I was visiting that coconut milk is a good substitute in baking. I haven't tried it yet, but I am thinking to have a go at it soon.

Hang in there. Sometimes it helps me just to know I am not alone...that is why I hang out on this forum on occasion.

:)

FMcGee Explorer

I like Almond Breeze milk, but I'm so early on this diet I can't tell if it's causing me problems. Anyone else tried this?

MamaJo Rookie
I'm trying to find a milk replacement I can use without a problem. I first tried Rice Dream rice milk, but read it can cause problems. I don't think it was causing me any problems - I don't think.

Karen

Two questions.

1) Can you share what you heard about the Rice Dream causing problems? Why, and what kind of problems? This is what we have been using and I had not heard anything negative.

2) If you don't feel that it was causing *you* troubles, do you really need to find another replacement?

KarenFe Contributor
Two questions.

1) Can you share what you heard about the Rice Dream causing problems? Why, and what kind of problems? This is what we have been using and I had not heard anything negative.

2) If you don't feel that it was causing *you* troubles, do you really need to find another replacement?

1) I read on this forum (and then more through a Google search) that Rice Dream can/may contain a very, very small amount of gluten and still be able to call their product gluten-free. Some people have a reaction to it as they would to any gluten intake.

2) I have not been able to get my body back to normal after 9 months of continuous diarrhea, so I don't know what is causing my troubles. I'm just trying to eliminate anything and everything I possibly can to regulate my body and figure out what I can and can't eat. If Rice Dream doesn't cause me any trouble, I'll be happy to stick with it. At this point I just don't know.

I certainly wouldn't change using Rice Dream if it works for you. I hope I didn't cause any confusion. :)

Karen

Nancym Enthusiast

There's another post on another forum about Rice Dream that might be of interest: Open Original Shared Link

Here's a direct link: Open Original Shared Link

For some reason, I have to click somewhere in the page before it actually loads, so if you see a blank screen on that link, just click the page and it should reload.

njbeachbum Explorer

almond breeze all the way! i use the chocolate to mix my protein shakes and the vanilla flavor is great with a very lightly sweetened cereal, like rice or corn chex :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taweavmo3 Enthusiast

We drink Almond Breeze too.....it is by far our favorite, and most easily tolerated milk sub. I use coconut milk for baking occasionally, and it works. There is also a new milk beverage out that is a drinkable coconut milk, by So Delicious. It is getting really great reviews, but I haven't been able to find it yet. The So Delicious coconut yogurt is really good, so I'm guessing the milk would be too.

FMcGee Explorer

Oh good! I'm glad I'm on the right track with Almond Breeze. Have any of you tried baking with it, or heating it (I like to make chai)?

SallyC Newbie

My nutritionist also recommends Almond milk as being the best and it is widely available.

brigala Explorer

Looks like the same sort of thing as Kikkoman's tests that show their soy sauce is gluten-free even though it contains wheat.

My theory is that if you change (denature) the gluten proteins enough you will no longer be able to detect them with a gluten test, and some people's immune systems will not recognize them and react to them -- but other people's immune systems won't be so easily fooled. In the case of soy sauce, some people clearly eat it and don't have a reaction (including people who are highly sensitive) and other people have been glutened by even tiny amounts of it.

I don't know whether I would react to Soy Sauce or not, but I choose a gluten-free/wheat-free version instead. I don't know whether Rice Dream's carob flavor drink contains the barley extract or not, but even though I didn't notice a reaction when I drank it I wouldn't buy it again since I now know Rice Dream uses ingredients I am not comfortable with.

Just my opinion and guesses...

-Elizabeth

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.