Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughter Has It - Do I?


3groovygirls

Recommended Posts

3groovygirls Contributor

Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LDJofDenver Apprentice
Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Very possibly. I mean, she had to get it from one parent's side or the other, it is genetic.

My adult son was diagnosed about 11 years ago -- I'd never heard of it, and at the time none of the doctors said anything to us about testing parents or siblings. Eventually, after 10 years of asking my personal physician to test me for it, with all my ongoing gut and touchy bowel problems, weird rashes (which I now know to be dermatitis herpetiformis), migraines, etc, he finally ordered the test. And, yup, I belong to the club as well. Irks me to no end that I've probably had it at least all my adult life, and that it took them 10 years to test even when I was asking!

Didn't mean to go on! My point is definitely get tested. If you have it, the sooner you know the better, in terms of healing.

nasalady Contributor
Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Please see the following topic in the Dermatitis Herpetiformis forum:

https://www.celiac.com/gluten-free/index.php?showtopic=57093

My husband had NO IDEA that he had a gluten problem until he went gluten free with the rest of the family and then drank beer during the Superbowl weekend! Poor guy! He's still paying for it....

I'm betting you are the one that your daughter inherited the problem from.

Good luck!

JoAnn

gfb1 Rookie
My husband had NO IDEA that he had a gluten problem until he went gluten free with the rest of the family and then drank beer during the Superbowl weekend! Poor guy! He's still paying for it....

Open Original Shared Link

its really not that bad --- my brotherinlaw was beer-free for over a year when redbridge was released. he thought it was nectar of the gods...

however, it definitely WON'T help symptoms of consuming one-too-many...

:)

OptimisticMom42 Apprentice

A lot of us found out we were celiacs by going gluten free thanks to the atkins diet and then could not return to the normal American diet. For me it was my 2008 New Years resolution to lose 30lbs. I did really well. Then gave up in July, was sick for six months before going to the dr. Three dr's latter, I'm a celiac, my mom's a celiac, my son is a celiac. Whoooo hooo! Atkins for life plus Fruity Pebbles :P

Welcome aboard, you're one of us!

OptimisticMom42

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    3. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.