Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Experience With Parasites?


mellowyellowmushroom

Recommended Posts

mellowyellowmushroom Rookie

I guess being gluten-ed to heck and back weakened my immune system--I'm full of parasites too.

Has anyone else gone through that? I was just thinking I felt better as I got through a few weeks free of all gluten, and then I started getting more GI symptoms and I've PARASITES.

What to do? Or I'd love just to hear if anyone else has gone through this. It's awful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jaknhk Newbie
I guess being gluten-ed to heck and back weakened my immune system--I'm full of parasites too.

Has anyone else gone through that? I was just thinking I felt better as I got through a few weeks free of all gluten, and then I started getting more GI symptoms and I've PARASITES.

What to do? Or I'd love just to hear if anyone else has gone through this. It's awful.

Hi - curious as to how you were diagnosed with the parasites?

mellowyellowmushroom Rookie
Hi - curious as to how you were diagnosed with the parasites?

[ See my reply in DV's thread about candida, parasites, et al. ]

mellowyellowmushroom Rookie
I guess being gluten-ed to heck and back weakened my immune system--I'm full of parasites too.

Has anyone else gone through that? I was just thinking I felt better as I got through a few weeks free of all gluten, and then I started getting more GI symptoms and I've PARASITES.

What to do? Or I'd love just to hear if anyone else has gone through this. It's awful.

No one else? In the healing /detoxing process?

LadyBugLuv Rookie

Actually, I found out that I had a parasite before I found out about anything else...

I got tired of the run around from every doctor on the planet, and decided to go to a chiropractor who is certified in naturopathic medicine and applied kinesiology.

Not quite sure how it all works, but it does.

Somehow, he figured out I had a parasite. So I took something called Vermifuge (NASTY). Basically it was black walnut and clove. but it got rid of Filbert (what I called my parasite... you gotta have a sense of humor). After that ordeal, he decided I had system wide inflammation (I knew that one), so I was on an elimination diet and had to take nutrition shakes. I felt great. Best I had in a while. I also took a couple of detoxification supplements during this period of time. After 3 HUGE canisters of this shake, I was good to go. So I started eating normal again. And felt icky again. (I don't get horrible stomach pain, just bloating, gas, nausea, reflux, and minor discomfort, and I get irregular). I also had the headaches again, the joint pain, the foggy brain, and the fatigue. It all came back. That's when I decided it was food, and took a test, and found out I have a gluten and soy intolerance. I tested positive for antibodies against gluten, so he said for all purposes I could be diagnosed as celiac. I haven't decided if I want further testing, being that I've almost been gluten-free for about a month, and feel great. I have been on a parasite detox due to the "kill off toxins" of the parasite. but I think I'm almost done with that.

Either way, the detox helped a great deal, too.

I did read somewhere, that parasites like to hide out in damaged villi areas... I guess it makes them harder to find. when your body starts to heal, it makes it easier to find. It wasn't hard to get rid of my parasite, though. And that seemed to relieve some other issues I had, also.

Hope this was helpful :)

mellowyellowmushroom Rookie
Actually, I found out that I had a parasite before I found out about anything else...

I got tired of the run around from every doctor on the planet, and decided to go to a chiropractor who is certified in naturopathic medicine and applied kinesiology.

Not quite sure how it all works, but it does.

Somehow, he figured out I had a parasite. So I took something called Vermifuge (NASTY). Basically it was black walnut and clove. but it got rid of Filbert (what I called my parasite... you gotta have a sense of humor). After that ordeal, he decided I had system wide inflammation (I knew that one), so I was on an elimination diet and had to take nutrition shakes. I felt great. Best I had in a while. I also took a couple of detoxification supplements during this period of time. After 3 HUGE canisters of this shake, I was good to go. So I started eating normal again. And felt icky again. (I don't get horrible stomach pain, just bloating, gas, nausea, reflux, and minor discomfort, and I get irregular). I also had the headaches again, the joint pain, the foggy brain, and the fatigue. It all came back. That's when I decided it was food, and took a test, and found out I have a gluten and soy intolerance. I tested positive for antibodies against gluten, so he said for all purposes I could be diagnosed as celiac. I haven't decided if I want further testing, being that I've almost been gluten-free for about a month, and feel great. I have been on a parasite detox due to the "kill off toxins" of the parasite. but I think I'm almost done with that.

Either way, the detox helped a great deal, too.

I did read somewhere, that parasites like to hide out in damaged villi areas... I guess it makes them harder to find. when your body starts to heal, it makes it easier to find. It wasn't hard to get rid of my parasite, though. And that seemed to relieve some other issues I had, also.

Hope this was helpful :)

That was EXTRAORDINARILY helpful. Thanks! It parallels some of my experience, though I went the other way and had a ton of parasite stuff show up as I seemed to begin to heal.

How long did it take you? I've been starving because with parasites and celiac, I weighed barely 94 lbs at 5'7" a week or two ago. But I can't eat normally or a lot without pain...

sharkmom Apprentice

I recently had a stool sample that detected roundworm & tapeworm. The thought nauseates me. I was put on a couple supplements to get rid of it. Did you get retested to know it was gone? Please don't say I'll poop it out :o because I think I'll faint. BTW, I've been taking supplements for 2 weeks, how long does it take to get rid of it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I've absolutely had this experience. I first became aware this was a possibility for celiacs due to compromised gut. I tried some home remedies: a bunch of fresh garlic several times a day, and then two days of fasting and eating pineapple and pumpkin seeds. I saw enough to convince me I did have parasites. :ph34r:

I then did a month of herbal treatment (Humaworm). Actually often you can't see the parasites at all, they are either too small or get digested. I repeated this treatment a couple of times over a few months.

Then my doctor put me on the SCD (7/08) due to testing that showed I was unable to digest carbohydrates (damage to villi is likely the culprit). The first week on the diet I saw a very disgusting clump of parasites--sorry for the TMI. On the diet I continued to see some things off and on the first month.

So after 3-4 months I did another round of the herbal treatment mentioned above. Right at the end of that I saw my MD, and he said the first thing he wanted to do is test for parasites. He has found a new test that is much much more accurate than most of the available tests. He said in the USA testing for parasites is woefully poor. The test is the Metametrix Microbial Ecology panel. It tests for the parasites DNA. This test picked up one very nasty remaining parasite, strongyloides. I took two rounds of treatment with a prescription med, then retested. The nasty things were still there. So then I did two rounds of a stronger prescription med. I had die-off reactions with both meds, but especially the second one. My MD also had me treat for protozoa, since both of the tests showed an "unknown protozoan". I just finished that. It was rather rough.

This treatment seems to have made a rather profound difference with constipation. (SCD diet has also helped immensely). My MD said he thought that clearing this infection may clear the remainder of my GI symptoms. I'm hoping over the next few weeks to be able to tell how much it has helped.

I will have to retest in the next month or two to make sure I am rid of the strongyloides.

My personal conclusion is that this is an area all celiacs should address, especially those who remain somewhat symptomatic.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.