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Bloating, Once Again...

adelaidez

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adelaidez Rookie
adelaidez
Posted

The bloating just won

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mellowyellowmushroom Rookie
mellowyellowmushroom
Posted
The bloating just won
emcmaster Collaborator
emcmaster
Posted

2 weeks may not be long enough for you to have sufficiently healed from the most recent glutening. I find that the longer it's been without an accident, the quicker I am to heal if I do get glutened. Case in point: I have spent the last 5 weeks bloated out of my mind because I have gotten glutened over and over again. I'm being super extra careful for the next few months so I can start healing pronto.

You also have to be super careful what you eat when you are healing. I have found that I can't tolerate beans, broccoli, etc. - anything that people with normal digestive systems sometimes have problems with, creates problems for me when my tummy is awfully unhappy.

Hang in there and eat lots of simple, clean foods til your tummy feels better.

Serversymptoms Contributor
Serversymptoms
Posted

I say give it more time, and probably eat soft things for a while... easier on stomach to digest. I think I may be celiac also, go to doctors tomorrow. I notice ( after looking closely at symptoms...) my stomach appers to bloat also when consuming wheat.

ang1e0251 Contributor
ang1e0251
Posted

I just cant deal with this diet if the main reason why im giving up (course could of health too) is to get this bloating feeling gone and to get my normal toned flat stomach... just makes me want to give up an eat everything in my site when this happened, I seriously have a binging problem in which im trying to stop

shirleyujest Contributor
shirleyujest
Posted

Don't give up sweetie! You're "in training" right now, and you've noticed some progress. Keep focused on that.

I'm right where you are, major bloating from either trace g or just processing old stuff outa my system. Stomach aches daily. Still I'm excited cuz more energy than two weeks ago. That's huge!

Buy some of the gluten-free pizza dough! Make it an adventure. Here's my pizza, I heat some Lucini olive oil (yum), sautee red bell peppers, zucchini, throw on mushrooms and maybe 3 cloves garlic (I use a press so it's fast, no vampires here), then tom. sauce, shredded mozz. cheese (I buy pre-shredded). They even have pre-made gluten-free crust in the fridge section of Whole foods. It's al-most as good but ... I'm so into the toppings -- oh I have to have sliced black olives -- yum. I don't miss the old crust.

Don't give up, you're just getting started.

oceangirl Collaborator
oceangirl
Posted

Some may be lucky and not find this so, but I cannot stress enough the importance of eating plain, whole foods you cook yourself- it's really not that hard! Trying to recreate your old diet with all the substitutes I found had little to no success particularly in the beginning, so you might want to forego the pizza and new grains for a bit. Here's what I would recommend: Fish, meats, chicken, turkey, bananas, a few fruits (they can cause bloating), cooked veggies like squash, sweet potatoes, greens, a few nuts (they can be rough) and NO grains. Once you heal (can take quite awhile) you could slowly add things back in, one at a time, and keeping a food log with symptoms to see how each thing is affecting you. You may want to eliminate dairy, soy, legumes and nightshades in the beginning as they can cause problems as well. It seems dire, but once your body has had time to heal and rejuvenate you'll most likely find you can add many foods back and then you may want to experiment with other grains.

Just my two cents. Hang in there; it will get better!

lisa

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OptimisticMom42 Apprentice
OptimisticMom42
Posted

The elimination diet would help you figure all this out.

Out of pure frustration I went to a liquid diet and then brought simple foods back into my diet one at a time to figure out which ones were causing which problems.

The liquid diet I used was ...... the broth from meat cooked all day in the slow cooker (with sea salt, pepper and onion), lemon juice concentrate, cherry juice concentrate, maple syrup as a sweetener, black coffee and lots of water. That was it for a couple days. Then I brought first poached eggs and then bananas back into my diet. Then I started testing other foods bringing them into my diet and taking them back out twice. If I got the same reaction twice that was good enough for me.

I learned a lot. It was interesting and made me feel more in control of what's happening to me. Control is important to my mental health! B)

I hope there is something in my experience that will help you,

Take Care, OptimisticMom42

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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