Saw A Gi This Morning. . .

[ptkds]

I saw a GI this morning because of some rectal bleeding, diarrhea, and stomach pain. I saw him a few years ago shortly before I was diagnosed with Celiac, but I didn't go back after my PCP told my I had celiac. I just didn't see the need.

I was discussing some of the symptoms of my kids, and mentioned how they vomit after they have had gluten. He told me that "vomiting is NOT a symptom of Celiac". I stayed very calm and told him that my kids (especially the littler ones) almost always vomit after they have been glutened, and he said "well, I'm not saying they don't have celiac, but vomiting is just not a symptom of celiac."

It is sad how little these doctors know about Celiac!

But on the other hand, he is running a whole bunch of tests, starting with a follow-through x-ray of my small intestines and a colonoscopy. He said he is looking for intestinal lymphoma. I am really worried about that now. I am really anxious to get the results.

Please pray that it is nothing serious! I looked up this cancer, and it has a very low survival rate.

[mushroom]

Praying for you that he does not find what he is looking for. But then, maybe he doesn't know a lot?? People with celiac don't vomit?? Extra tests can't hurt in ruling out other diagnoses

[ravenwoodglass]

Please let us know how you fare on the test. One word of caution, if they are using a bariun solution for this test make sure it is gluten free. The gluten free form is a thin liquid not thick and will have the consistancey of water.

[LDJofDenver]

Oh please! (throwing up is not a sign!) My poor son was throwing up his entire childhood, and I've spent my adulthood frequently doing the same, especially the older I got. Just blows me away at how little our front line of doctors know about this disease! When is this going to change?

My GI doc ordered a CT scan of abdominal and pelvic areas, looking for the same. Apparently there's a small percentage of celiacs that get this specific type of lymphoma. My CT scan was normal, all was good, but I know how scary it is to just be sent for something like that. It's one thing to read about it (the possibility), but entirely another to be the one sent for a test for it! Hopefully everything will be fine with you, and you'll feel relieved that you had the tests done. Think of how many people are walking around with something unknown inside of them - - at least I now have the benefit of knowing, and that peace of mind.

[ptkds]

Ok, I don't know if yall will believe this, but here goes.

Today the GI doctor CALLED ME to APOLOGIZE for telling me that vomiting is not a symptom. He said that after our conversation, he got to thinking and went and did a little research, and he found out that it IS a symptom. He said he wanted to apologize because he likes to tell patients about things that he knows for sure. He also said he didn't want me to lose confidence in him.

I couldn't believe he called me! That just blew my mind! I don't know if a doctor will EVER apologize like that to me agian! I now respect the man even more because this proves that he is willing to admit that he has made a mistake.

[ravenwoodglass]

Ok, I don't know if yall will believe this, but here goes.

Today the GI doctor CALLED ME to APOLOGIZE for telling me that vomiting is not a symptom. He said that after our conversation, he got to thinking and went and did a little research, and he found out that it IS a symptom. He said he wanted to apologize because he likes to tell patients about things that he knows for sure. He also said he didn't want me to lose confidence in him.

I couldn't believe he called me! That just blew my mind! I don't know if a doctor will EVER apologize like that to me agian! I now respect the man even more because this proves that he is willing to admit that he has made a mistake.

I believe you and it sounds like a doctor who is willing to learn. Good for him. My GI did the same when I was finally diagnosed as he didn't even consider doing an endo because my blood work was negative. It is nice when doctors are willing to admit they are human.