Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oat Contamination....


motherduck5

Recommended Posts

motherduck5 Newbie

Hello,

I'm new to the forum and have been reading some previous posts, and then wondered where in the heck have you all been the past 3 years? I'm so glad to find this forum!

I have a 3 yr. old with celiac. I had read that oats themselves were gluten free and it was the cross-contamination and the factories that "glutenized" them. My son loved oatmeal, but it took 6-9 months for him to react, but boy did he. He went back to sleeping all day, and all night, intolerance to any noise, and a new one, severe stuttering. Boy was that scary. When I pinned down oats and stopped feeding them to him, within 4 days the stuttering stopped along with everything else.

Now we're at the "purposefully feed your child a food that makes him sick to get a reaction" stage I HATE and I wondered something. If the contamination happens at the factory, what if I buy my own oat groats and flake them myself? If the oats themselves don't make him sick, than in theory, the home flaked oast won't either?! I own a flaker, and oat groats are WAY cheaper that gluten-free oats, so doing it won't be hard.

ANY comments would be welcome!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

I guess the big question would really be what happened to the groats before they came into your kitchen - how were they harvested, where were they stored, how were they packaged, etc. We don't fully understand why some people can tolerate them and others can't beyond the proteins being slightly different and technically not being gluten so it won't hurt and certainly would rule out cross contamination. I'd give it a try. Let us know how it works out!

irish daveyboy Community Regular
Now we're at the "purposefully feed your child a food that makes him sick to get a reaction" stage I HATE and I wondered something. If the contamination happens at the factory, what if I buy my own oat groats and flake them myself? If the oats themselves don't make him sick, than in theory, the home flaked oast won't either?! I own a flaker, and oat groats are WAY cheaper that gluten-free oats, so doing it won't be hard.

ANY comments would be welcome!

Hi,

The majority of the contamination occurs in the Field, Oat Crops are rotated with Wheat Crops!

'Rogue' wheat generally grows along side the oats and is gathered up with them during harvesting.

.

In theory. if you bought oats unhulled and could identify whole wheat among the oats and seperate and remove any wheat dust particles from the oats then they MAY be safe.

.

There are brands of 'Safe' 100% oat meal.

What's your childs health worth ??, Don't cut corners!!

.

Best Regards,

David

FMcGee Explorer

Right, it's field contamination that's the issue, not the processing. I just saw my dietician on Wednesday, and she told me she has many celiac patients (where are these Gainesville people, and why aren't they on the board?!) who eat oats with no problem. They buy the expensive uncontaminated oats. Apparently the problem for a lot of people is that their systems just can't handle food that's that hard to digest.

irish daveyboy - I admit I'm a bit hesitant to say this, but is it our job to tell a mom not to cut corners and guilt-trip her about her son's health? I had a knee-jerk reaction to your post, and I don't mean to offend you, but if I posted about my (hypothetical) son's health and someone tried to scare/guilt me, I don't know if I'd come back.

irish daveyboy Community Regular
irish daveyboy - I admit I'm a bit hesitant to say this, but is it our job to tell a mom not to cut corners and guilt-trip her about her son's health? I had a knee-jerk reaction to your post, and I don't mean to offend you, but if I posted about my (hypothetical) son's health and someone tried to scare/guilt me, I don't know if I'd come back.

Hi,

Never be afraid to speak your mind! I believe that's what the constitution is all about 'free speech'

.

I wasn't try to guilt trip anybody, maybe I shouldn't have made my comment so short and to the point.

.

Would this way have been better (I'm not being flippant here)

Please don't take chances with your childrens health, saving money is fine if,

it doesn't cause unnecessary suffering for those consuming it?

.

An old Irish saying 'save a penny and spend a pound or

save a cent on a purchase and spend a dollar on medication.

.

I need to correct slightly my previous post,

rotation crops with Oats can be either Barley or Wheat.

.

Best Regards,

David (posting with best intentions)

.

FMcGee Explorer
Hi,

Never be afraid to speak your mind! I believe that's what the constitution is all about 'free speech'

.

I wasn't try to guilt trip anybody, maybe I shouldn't have made my comment so short and to the point.

.

Would this way have been better (I'm not being flippant here)

Please don't take chances with your childrens health, saving money is fine if,

it doesn't cause unnecessary suffering for those consuming it?

.

An old Irish saying 'save a penny and spend a pound or

save a cent on a purchase and spend a dollar on medication.

.

I need to correct slightly my previous post,

rotation crops with Oats can be either Barley or Wheat.

.

Best Regards,

David (posting with best intentions)

.

Thanks for understanding the spirit in which I made my comment! I think we're all on the same page here.

swalker Newbie

MacCann's Irish oats are grown nowhere near wheat and are one of the expensive brands they're talking about. I just bought 50 pounds of oats from Honeyville Grains that are reportedly safe but I haven't opened and tried them to give you my own opinion. I did find that we weren't digesting any of our whole grains; I grind brown rice, teff, gluten free oats myself, until I started soaking the flour with the water from the recipe (minus 1/2 cup if I have to bloom yeast) with


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



irish daveyboy Community Regular
MacCann's Irish oats are grown nowhere near wheat

And Nowhere near Ireland either !!

.

Sorry I couldn't resist that, (I know it's only a brand name)

.

I'm in a funny Ha! Ha! humour today.

.

Best Regards,

David

ChemistMama Contributor

Swalker,

McCann's are not gluten free.

Open Original Shared Link

Also, it says so right on their web site.

Open Original Shared Link

"But we cannot guarantee that McCann

swalker Newbie

I am SOOO sorry. It was on this website that I originally heard about MCCann's and now I see both this site and MCCann's themselves have indicated they are cross contaminated.

sixtytwo Apprentice

There are, I think, those of use that just can't eat oats, too. I think I am one of them. It is specially interesting as I am gluten intolerant/not celiac. I just don't do oats either and feel much better.

curiousgeorge Rookie

I used to eat McCann's occasionally and would sometimes feel something. I recently made a purchase from Open Original Shared Link The oats are really yummy and tastier than any I've had before.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...