Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Results In, Postive For Celiac. Yaay, Another Autoimmune Disease


srthomas21

Recommended Posts

srthomas21 Explorer

Well , just got back form the Dr. and 3 of the 4 blood tests for Celiac were positve so I have an official diagnoses of Celiac.

Now, for you experts out there how long did it take to start feeling better. I don't have any gastro symptoms. I have all the weird symtpoms:

1. Headaches

2. Fatigue

3. Mind Fog

4. Feel like I'm starving when I get hungry

5. Stiff Neck

6. Post Nasal Drip

7. Sensitive to Light especially at night.

8. Muscle aches especially in legs

and other various weird stuff.

I just ate my last doughnut today :( Oh well, I'd rather feel good than eat gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

Most of the stuff will start to improve within a couple of days. The muscles aches take longer for me. I was using tart cherry juice to help reduce the inflammation and for the other mild aspirin effects. I ran out. Couldn't get more. Didn't need it anymore anyhow. Still taking magnesium for cramps in my feet at night. Skipped it last night. Mild cramping last night. But thats an absorbsion issue. I think I read that that can take a yr or longer to improve.

ravenwoodglass Mentor

Healing times can vary but you should notice some difference soon. The best way to heal the quickest is to eat as clean and unprocessed as you can. Fresh foods like fruits and veggies, freah meats with no broths added in processing, beans, rice, potatoes etc. Also you can have things like doughnuts and pizza etc. There are many brands but my own favorties are Kinnickinnick for doughnuts, italian bread and premade pizza shells. Foods by George makes really good brownies and of course there are other brands.

Welcome officially to the family and I hope you heal quickly.

srthomas21 Explorer

Thanks, I have a lot to learn. I just want this mind fog to go away and the overall feeling of blah. Looking forward to a gluten free life.

Foxfire62 Newbie
Well , just got back form the Dr. and 3 of the 4 blood tests for Celiac were positve so I have an official diagnoses of Celiac.

Now, for you experts out there how long did it take to start feeling better. I don't have any gastro symptoms. I have all the weird symtpoms:

1. Headaches

2. Fatigue

3. Mind Fog

4. Feel like I'm starving when I get hungry

5. Stiff Neck

6. Post Nasal Drip

7. Sensitive to Light especially at night.

8. Muscle aches especially in legs

and other various weird stuff.

I just ate my last doughnut today :( Oh well, I'd rather feel good than eat gluten.

Depends on your age. The younger, the better. For example, my blood results for ttg were 100+. I'm now down to 14. I started to feel great up through December. Then starting January/February, I started to feel full. My new GI doc thinks I got glutened again. I did begin experimenting with other supposedly gluten-free products (i.e., Kettle Chips and Kraft Oscar Meyer Weiner hot dogs). Ever since then, I've had constipation-related problems. I was so backed up, I didn't eat for a week, which put my whole body in a tail spin. It took over a week to get me unblocked. Then I put my female hormones out of whack, and I've been on progesterone, but now I wonder if I'm getting gluttened or if the constipation is just as a result of the product. Hard to say. Not yet recovered from my 2-month ordeal and am backed up again. I'm currently trying to get "un" backed up by taking Metamucil, since I was having problems digesting fiber.

Here's the problem when you are older and have been a celiac for quite a long time: your intestines become accustomed to not working properly. Then, they suddenly start working right, and you notice different problems occuring, like having difficulty digesting certain foods or slow digestion or dumping or (the list can go on and on). So, your body has to acclimate. Not to say everyone works this way, but recovery can sometimes be an ordeal for some people. Again, the younger you are, the better. Young adults can recover within weeks; older adults, it's anyone's guess. Depends on your body.

Foxfire62 Newbie

I totally agree with you...eat as clean as possible. That's what I've learned as well! Forget trying some of the products in the regular store that say "gluten-free." If you're extremely sensitive, it doesn't bode well. I've learned MY lesson!

srthomas21 Explorer

I'm 30 and I don't think I've had active celiac for more than a year. About 10 years ago I had my colon removed due to Ulcerative Colitis. So lucky (or unlucky) for me I don't have problems getting backed up :)

I had two last hurrah donuts today and I think I'm paying for them now.

I feel kind of clamy and my head feels weird. Almost flu like stuff.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.