Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diet Causing Breastmilk Issues?


columbakss

Recommended Posts

columbakss Newbie

I recently, within the past 3-4 dyas, has found out that my celiac disease has reactivated. I have two sons, the youngest who is 7 months old. I have already successfully breastfed my oldest and never had any supply issues. Since I started back on a gluten free diet my milk supply has diminished, and I know its not my son going through a growth spurt. Is it the diet I am now on or has anyone else had any problems with this? I was also put on glucophage to aid in the wieght lodd from another condtion I have that makes me insluin resistent and hard to put off weight...is it the med? Any info would be greatly appreciated! I eat every 2-3 hours and feel stuffed all the time, could I still be under eating though?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

I was only gluten-free while nursing one of my 3 kids. I only noticed supply dips when I wasn't getting enough calories. The rule of thumb is you need about 500 extra calories a day to maintain your supply. So I had to eat almost 3000 calories a day.

Also, make sure you're drinking enough water. I felt like I couldn't get enough water while nursing.

There are supplements you can take to help with supply. I'd talk to your OB or pediatrician about them if you're worried. GL!

cat3883 Explorer

What do you mean by reactivated? Once you have celiac disease you always have it and must stay on a gluten free diet. Even without symptoms you are causing damage to yourself if you are eating gluten. You may not be absorbing nutrients because of the damaged villi, therefore, your child will not either. I would suggest calling the pediatrician. You may have to do some supplementing. Good luck to you and your son.

strawberrynin Newbie

One thing I found while breast feeding was that yeast helped increase production. Possibly grab a gluten-free pizza crust kit with yeast and try it? Since I don't eat bread, my yeast intake is nearly zero on a gluten-free diet. I can only imagine most are the same.

  • 2 weeks later...
Tica Apprentice
I recently, within the past 3-4 dyas, has found out that my celiac disease has reactivated. I have two sons, the youngest who is 7 months old. I have already successfully breastfed my oldest and never had any supply issues. Since I started back on a gluten free diet my milk supply has diminished, and I know its not my son going through a growth spurt. Is it the diet I am now on or has anyone else had any problems with this? I was also put on glucophage to aid in the wieght lodd from another condtion I have that makes me insluin resistent and hard to put off weight...is it the med? Any info would be greatly appreciated! I eat every 2-3 hours and feel stuffed all the time, could I still be under eating though?

You can try an herb by the name of Fenugreek. It increases milk supply. You can research it in Breastfeeding.com

Tica Apprentice
What do you mean by reactivated? Once you have celiac disease you always have it and must stay on a gluten free diet. Even without symptoms you are causing damage to yourself if you are eating gluten. You may not be absorbing nutrients because of the damaged villi, therefore, your child will not either. I would suggest calling the pediatrician. You may have to do some supplementing. Good luck to you and your son.

I can tell you from personal experience that pediatricians, and doctors in general, are NOT very knowledgeable when it comes to breastfeeding. Your best bet is to find a lactation consultant (LC). Supplementing will lower your milk production even more. A lactation consultant will help you increase your milk production without having to resort to formula. Try calling 1800-LaLeche for a LC near you.

What your pediatrician can do is monitor your babies weight gain and growth while you are working with the lactation consultant to resolve your milk supply issues.

Good Luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.