Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Disappointed!


bump

Recommended Posts

bump Newbie

How many of you who are overweight felt like you got the short end of the stick when you found out being overweight was not typical for celiac disease? I had weight problems as a teen, found exercise and became tiny by the end of high school and the first part of college. started to gain weight after college became sick with anemia and was diagnosed in 2001 with celiac disease and gained 50 lbs!!! I did try the south beach diet and felt GREAT!! but if I even get the tiniest bit of gluten then I become ravenous for weeks. I am joining weight watchers and will see if I can get my diet under control while still getting the nutrients and satisfaction we all need from eating. Any advice???

I am so sick of feeling weak. I remember a fitter me that could easy run a 7 minute mile and not jiggle or faint. HELP!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

Hi Bump:

I have the opposite problem, but I tell you some people have thought I was anorexic and that's no fun either. I have even been asked if I did drugs! methamphetamines to be exact. I don't know, does it help at all to know that you are at least healthy?

I suppose I shouldn't of answered this, just trying to help..... :rolleyes:

bump Newbie

It isn't that I am not happy I found out I have celiac disease, truthfully I am happy I found out. I thought I had cancer I felt so lousy. It is just that I have not yet learned to temper the celiac disease with health. Being 50 lbs overweight is definitely not healthy for me. I am glad you responded to my post. I guess the symptoms are discouraging on both ends of the scale. All you can do is love yourself and by doing so encourage your body to comply with your wishes for health.

tarnalberry Community Regular

I'm one who's had more problems trying to lose weight, rather than gain. I find that a lot of it is just how stressed I am, and trying to follow the diet while there are other stressors in your life that suck up your time definitely makes me more stressed. As I see it, there's nothing to it but exercising that willpower - both to not pick up the food (my current addiction is mango!) and to get the exercise.

Rikki Tikki Explorer

That was nice to say bump! :D

CateK Newbie

To support my son (age 14) and make sure we didn't accidently contaminate him, I made my whole kitchen gluten-free and just started making gluten-free foods for the whole family. My hubby sort of rebels from time to time and so he has loaf of Whole Wheat up the cupboard but he's not allowed to use the toaster.

What is amazing to me is that within 10 days of going gluten-free myself, I started losing weight. I had been doing WW since early February and losing in little bits and drabs, but the weight is really dropping now (2 or more pounds a week) and I'm not doing anything drastic. If anything I'm actually eating a little more because the gluten-free breads, etc are higher in fat. I'm working on adapting some recipes so they are gluten-free, taste good and are low fat.

I have energy. I thought having energy was a myth reserved for people who didn't have children.

My bones don't ache at night anymore... and that odd rash on my legs and face is gone... hmmmm.

My bowel movements are NORMAL!

Well, I guess the kid got this disease from somebody... and now I guess I can't blame his father (my ex) anymore... <_<

Honestly, though, I didn't think I had celiac disease because I have always been overweight.

I'm kind of curious about how that works because it seems like we should all be underweight ... could it be our bodies are over compensating for the lack of nutrients by grabbing hold of everything it can get and not letting it go?

KaitiUSA Enthusiast
Honestly, though, I didn't think I had celiac disease because I have always been overweight.

I'm kind of curious about how that works because it seems like we should all be underweight ... could it be our bodies are over compensating for the lack of nutrients by grabbing hold of everything it can get and not letting it go?

Some people are overweight with it and gain instead of lose. Different bodies just react differently to the gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
PreOptMegs Explorer

I definately gain weight and no matter how few calories I eat, I am stuck at a particular weight. I have learned to read my body really well (I self-diagnosed this disease), and I really feel like my metabolism is in slow motion. Anyone else?

skbird Contributor

I was fine for the first 5 months or so. Then my pants got a little snug. I weighed myself recently and in the last month I've gained almost 10 pounds. Yes, I'm depressed. I'm not sure what the change is - everything got tighter when I had a gluten reaction about a month back, and I thought it was just bloat. But it's been a month now.

In my gut's defense, it's still not 100% so maybe it's still recovering, on some level, from being glutened (a whole month ago!!!) I have added flax meal to my diet again and though I am drinking tons of water, I am constipated every night, but am bordering on loose in the mornings.

I guess things just take their time. I have cut back on some of the treats I was eating and have been exercising a little more regularly but no help yet. Really just want to go back down that 5 poounds so that my belly doesn't bulge over my jeans all the time like it does now! <_<

Anyway, you're not alone in being bummed out about weight. I am currently 155, 5'10" and have gone up and down in my weight over the past 10 years twice now, gaining and losing 70 pounds, then 40 pounds. I loved it when I was 145 but would be happy to be 150.

Sigh.

Stephanie

PreOptMegs Explorer

That is so ironic, skbird. I am 5'10" as well, and this morning weighed 155. I was 149 not that long ago, so it just bugs the crap out of me that I am stuck and cannot go below 155 no matter what. The weight is all located in my lower stomach, so I definately want that to go away!!!

jenvan Collaborator

Bump-

Losing weight and having that feeling of helplessness with your weight is so frustrating. I hope weight watchers is a help to you. However, if it isn't, I would recommend LA Weight Loss. My brother has been overweight for years, partly from health problems, and has never been able to lose weight (having tried everything in the book!). Anyway, he has been doing LA Weight Loss for a while now and has been incredibly successful. From what he has told me, they have a philosophy on health/diet that goes deeper than most weight loss plans. They also use blood tests and medical histories etc to really understand your individual body and what will work for you specifically. If interested, I'd look into it. My brother has learned so much from the program and has made lifestyle changes, not just temporary "diet" changes that will fail him later.

Random thoughts: If you're not in the best of shape like you used to be.... have you tried walking, started light weight lifting, not eating late at night, portion size, not filling up on gluten-free carbs and sugars... ??

Good luck to you. B/c of health issues, and a past eating disorder, my weight has gone up and down over the years. I know it can be frustrating and oftentimes depressing thing to deal with.

skbird Contributor

PreOptMegs - We're twins! That is really funny!!! Well, it's sort of not. I mean we are supposedly in the perfect weight range for our size but mine's all in my belly right now, too, and all my pants are too tight. I'm really not ok with that.

Going low carb has helped me with this before but I'm thinking I must have some thing going on with my gut right now and that is why I'm a little larger at the moment. Why is it always that 5 pounds that is so hard to lose??? :)

Stephanie

luvs2eat Collaborator

I attributed my lack of weight loss to my early diagnosis. I only had diarrhea for about 2 months when I was tested and went gluten-free immediately. When I told people about Celiac disease and they asked me the symptoms... I said, "Unexplained weight loss..." and I'd sort of look down at myself and say, "Um... I didn't GET that one!"

Other people would ask me, when I told them the dietary restrictions, "Oh my... WHAT do you eat." Again, I'd look down at myself and say, "Plenty of stuff!"

I'm not chuckling about it anymore tho. I've gained about 25 lbs. since diagnosis and hate it!! I know that when I was diagnosed, I sort of went off the deep end eating foods I COULD have... like potatoes and rice (risotto is my fav food!!). Now I'm trying really hard to be low carb... more lean meats and fresh fruits and veggies.

UGH!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    2. - Mmoc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    5. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,159
    • Most Online (within 30 mins)
      7,748

    Werae71
    Newest Member
    Werae71
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.