Is This Celiac Disease

[Loubs56]

I was wondering if anyone could offer me any advice from your experiences of celiacs disease.

Basically, my 12 year old son has been suffering from terrible pain and on/off swelling to his calfs and knees and bone pain over the past few months. I took him to the GP nearly 2 months ago who ran some bloodtests which found that he has very high alkaline phospherate levels in his liver. On the advice of a consultant the GP ordered a second set of bloods to be taken last week, they found that although his AP levels had come down marginally he is now also aneamic.

An aunt of mine has celiac disease and the GP has ordered coelic tests be ran alongside his liver function test next week. Looking at the symtoms i am wondering if HArry might possibly have this eg, frequent nose bleeds, nasty bruising, aneamia, bone pain, high AP levels. He has also suffered from asthma and exzema since babyhood.

Aboslutly any advice much appreciated.

xxxxxxxx

[Mother of Jibril]

This is just my opinion...

The particular set of symptoms you mentioned -- anemia, joint pain, eczema, high liver enzymes, and a family history of celiac disease -- could definitely mean your son has celiac disease. Even if his tests come back "negative," a gluten-free diet would be worth a try. (Make sure you wait until the testing is complete though, otherwise you could easily get a false negative).

One thing to keep in mind, however, is that "joint pain" goes with a lot of autoimmune disorders (not just celiac disease)... hypothyroidism, lupus, rheumatoid arthritis... all of these are more common in people with celiac disease than in the general population. So... your son might have celiac disease. Or he might have something else. Or he might have a combination of autoimmune disorders My advice would be to keep searching until you feel like you have answers to all of his major symptoms. Don't let anyone (especially doctors) blow you off! It sounds like your son is having a rough time.

[Loubs56]

This is just my opinion...

The particular set of symptoms you mentioned -- anemia, joint pain, eczema, high liver enzymes, and a family history of celiac disease -- could definitely mean your son has celiac disease. Even if his tests come back "negative," a gluten-free diet would be worth a try. (Make sure you wait until the testing is complete though, otherwise you could easily get a false negative).

One thing to keep in mind, however, is that "joint pain" goes with a lot of autoimmune disorders (not just celiac disease)... hypothyroidism, lupus, rheumatoid arthritis... all of these are more common in people with celiac disease than in the general population. So... your son might have celiac disease. Or he might have something else. Or he might have a combination of autoimmune disorders My advice would be to keep searching until you feel like you have answers to all of his major symptoms. Don't let anyone (especially doctors) blow you off! It sounds like your son is having a rough time.

[Loubs56]

HI

Thankyou so much for your reply i really apprciate it, so far nobody seems to be able to offer much advice and i feel really cast out into the open with it. Thankyou for your suggestions and information, i feel it's really important now that i push forward for an appointment with a consultant as it's gone on for long enough and it really is making harry feel so miserable.

xxx