Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anemia/pica/fatigue


dtgirl

Recommended Posts

dtgirl Rookie

Hello all, I have some questions about anemia or related disorders.

On Thursday, I had to get my blood drawn throughout the course of 2 hours (a hormone test, another issue). I would not say it was a lot of blood really, every half hour about 3 vials. Anyways, my blood flows very slowly.. I always have very low blood pressure, dizzy, bruises all over my body (people have asked me if I am in an abusive r/s or play extreme sports!), extreme fatigue, dry skin/hair, very cold. I am not hypo or have any adrenal issue. When I stand up, often times I almost pass out (I have fallen a few times in the past few months), or the room goes black and I cannot focus for about 10 seconds. I also crave salt, ice, meat, and matches (yes.. matches!). So after my test, when I get home it was about 2pm and I slept until 10pm, woke up for an hour or so and slept another 16 hours. I've basically been sleeping since the test. In the past, my ferritin was 10 with a ref range of 15. I have amenorrhea so I am not losing blood. My mch was high, not low from what I recall. I am going to call the dr on monday I was too tired yesterday. Any insight into these issues?? thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Foxfire62 Newbie
Hello all, I have some questions about anemia or related disorders.

On Thursday, I had to get my blood drawn throughout the course of 2 hours (a hormone test, another issue). I would not say it was a lot of blood really, every half hour about 3 vials. Anyways, my blood flows very slowly.. I always have very low blood pressure, dizzy, bruises all over my body (people have asked me if I am in an abusive r/s or play extreme sports!), extreme fatigue, dry skin/hair, very cold. I am not hypo or have any adrenal issue. When I stand up, often times I almost pass out (I have fallen a few times in the past few months), or the room goes black and I cannot focus for about 10 seconds. I also crave salt, ice, meat, and matches (yes.. matches!). So after my test, when I get home it was about 2pm and I slept until 10pm, woke up for an hour or so and slept another 16 hours. I've basically been sleeping since the test. In the past, my ferritin was 10 with a ref range of 15. I have amenorrhea so I am not losing blood. My mch was high, not low from what I recall. I am going to call the dr on monday I was too tired yesterday. Any insight into these issues?? thank you.

I wish I could help you. I've had near-blacking out issues too, but it's usually as a result of being backed up and drinking water, which seems to cause me problems (heart palps, anxiety, lightheadedness). But I'm learning, through diet, to make myself feel better. I'm not perfect yet, but I'm getting there.

I also craved salt for awhile. Are you getting enough salt? I'm wondering.

I've heard that sometimes people with iron deficiency crave dirt. What were your numbers with regard to iron deficiency?

chatycady Explorer

Anemia can cause pica. I craved ice and salt. I had both iron anemia and B-12 (pernicious anemia). Eat red meat on a regular basis - iron supplements will irrate your digestive system - which you don't need right now.

Anemia causes the dizziness, blacking out, fainting, racing heart and sleepiness. Gluten can also cause the sleepiness. I too could sleep for days on end. I also had low blood pressure with this. It also caused extreme fatigue.

It will take some time, but you will get better. Have your vitamin D level checked too, it's probably real low.

Cook a hamburger and make a salad with tomato. The tomato (vitamin C) will help you absorb the iron from the burger.

trents Grand Master

Find out what's in the matches that you are craving? Sulfur? I might suggest using black strap molasses regularly. It is high in iron and sulfur. Tastes yummy, too. I used to just gulp a couple of tablespoons every evening.

dtgirl Rookie

Hello, thank you all so much for your replies. It means a lot :)

I do eat a lot of salt. I mean, sometimes I wake up at night and eat it from the jar.. I liberally salt my food.

My vitamin D is low, with a ref range of 34 I am 10. My iron was not low from what I recall, but at the time (a year ago when it was tested), I was taking a supplement. Here are those results: Vitamin b12 895 (200-1100)

Folate, serum 11.2 (normal is defined as greater than 5.4.) Also, my platletts are low 121 (140-400), Absolute Lymphocytes 685 (850-3900) and White Blood Cell 3.1 (3.8-10.8). Any thoughts?

My diet is very high in protein. I eat over 200grams a day. But I eat mostly extra lean ground turkey, egg whites, chicken breast and very little red meat. I also commit the sin of drinking black coffee. Black strap molasses, can you get that anywhere? I've never heard of it.

strawberrynin Newbie
Hello, thank you all so much for your replies. It means a lot :)

I do eat a lot of salt. I mean, sometimes I wake up at night and eat it from the jar.. I liberally salt my food.

My vitamin D is low, with a ref range of 34 I am 10. My iron was not low from what I recall, but at the time (a year ago when it was tested), I was taking a supplement. Here are those results: Vitamin b12 895 (200-1100)

Folate, serum 11.2 (normal is defined as greater than 5.4.) Also, my platletts are low 121 (140-400), Absolute Lymphocytes 685 (850-3900) and White Blood Cell 3.1 (3.8-10.8). Any thoughts?

My diet is very high in protein. I eat over 200grams a day. But I eat mostly extra lean ground turkey, egg whites, chicken breast and very little red meat. I also commit the sin of drinking black coffee. Black strap molasses, can you get that anywhere? I've never heard of it.

It sounds like iron deficiency causing improper blood creation. Do you have your hemoglobin and monocyte count? I'm going through the anemia myself right now. You should be seeing a hematologist based on your results, though. My guess is that they will transfuse iron. Vit D is low, which probably means iron is low as well.

And I'd suggest nutritionally to eat at least one steak a week. I usually do two, and spinach salads every few days.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.