Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where To Get "schooled" On Soy Intolerance?


David

Recommended Posts

David Explorer

Hey Everyone:

Well, I took a lot heat in an earlier posting in this forum for (heaven forbid) wanting to see a doctor to explain my multiple and undiagnosed food allergies and intolerances in addition to gluten (or at the very least to rule out that I don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
Hey Everyone:

Well, I took a lot heat in an earlier posting in this forum for (heaven forbid) wanting to see a doctor to explain my multiple and undiagnosed food allergies and intolerances in addition to gluten (or at the very least to rule out that I don

David Explorer
I really don't think there is a Soy 101 class; we pretty much have to be our own teachers; even the doctors and nutritionists don't have manuals for this kind of stuff.

Just to clarify, I didn

darkhorse Apprentice

Soy is a bit easier to avoid simply because it must be listed as one of the big 8 allergens. My best suggestion is to do a Google search with the terms "soy free" or "soy allergy" and read the information that comes up. You don't need much more than that. I don't know about you, but I tend not to eat many specifically soy products like tofu or the like. All of those are really unnecessary and easy to avoid. The only thing you should need an alternative for would be soy sauce since that is in so many sauces and products. I have seen soy free recipes for soy sauce but have never tried them. The harder thing is to avoid soy in processed foods and to do that you simply need to read labels. Earth Balance spread does make a soy free margarine that tastes great. You could also try ghee as a butter alternative, but I have never tried it so I can't really give an opinion. Soy really can't be hid because of the labeling laws.

Here is a list of soy products that I got from doing a Google search. I don't remember where I got it otherwise I would add a link. I hope this helps.

Edamame

Miso

Natto

Shoyu sauce

Soy bean products

Soy (fiber, flour, grits, nuts, oil, sprouts)

Soy (milk, yogurt, ice cream, cheese)

Soy protein (concentrate, hydrolyzed, isolate)

Soy sauce

Tamari

Tempeh

Textured vegetable protein

Tofu

Vegetable oil (almost always made from soy)

I have also heard that soy lecithin does not have to be labeled because people don't always react to it. So that is one thing you may have to avoid until you feel better and then try it out to see if it causes a reaction. But again, your best bet is to simply research on your own using those search terms from above.

AliB Enthusiast

David, I concur with 'Mushroom'. We didn't mean to be 'heavy' on this but we have been there, done it, and bought a whole heap of T-shirts! :rolleyes:

There are no easy answers. How we all wished that someone could just say 'do this or that and you will be better'. In reality of course, it doesn't work like that. The Medical Profession would have it that you just drop gluten and hey presto! you're well. In reality there are many for whom gluten-free alone is not the panacea they hoped for.

As Mushroom said, we are all different and we all work in different ways. What I lack, you may have an overload of. The way soy, or corn, or gluten, or any other 'reactor' hits you will undoubtedly be different to others, because, well, you're you.

By far the best thing you can do (as we have found from experience) is follow an elimination diet. that way you start at the bottom and work up. Otherwise it can be difficult to pinpoint what it is that you really are reacting to.

You think it may be soy, and it well might be, but then again it might be something else - or it might be soy AND something else, or several 'something else's'!

The reason you are feeling similar to the way you get with gluten is likely because your gut is still damaged. Although they may not necessarily set up reactions as radical as gluten, the fact that you are reacting to other things is an indicator that there is still damage going on. Your body is out of balance. Your gut flora is likely out of balance. While you are eating foods that keep the damage going, you keep the damage going.

If you want spread, why use margarine at all? Why not use butter, or ghee, or refrigerated coconut oil? All margarine is processed and highly likely contains chemicals or processing factors that are not healthy (although the label may tell you what's in it, it doesn't tell you what has been removed or what has been done to it!). I am dairy intolerant (although that has improved since I have been on the SCD) but I have always been able to tolerate butter, because it is mainly fat.

Any gluten-free carbs are highly likely to contain soy in some form or other. Or corn, which is another trigger food. We see so often on here ones who have removed say, soy from their diet only to find at some later stage they also start to react to corn. Gradually they find that they then have to remove other foods too one after another and so it goes on.

All we are suggesting with the elimination type of diet is that you cut to the chase and take out all the common trigger foods from the off. You then have 'clear decks' and can see more easily which foods are problematic.

Many of us have found by doing that and giving our digestive tract a break from those foods that we are then able to tolerate them, or at least some of them at a later stage when the gut has healed. It takes time, but then doesn't anything you want to make a good job of??!

David Explorer

Just wanted to give a quick update

AliB Enthusiast

That's great David. Glad you got over the resistance.........

Actually one thing that will be of real benefit is to remove the word 'restrictive' from the equation.

Think about what it is that is really restricting - feeling sick on 'normal' food or feeling well on a 'restricted' diet?

This diet is common to thousands of people around the earth - most of whom are far more healthy than we are. They do not view it as restrictive as they know no different. Eating natural, healthy food is part of their way of life.

It is the highly-processed rubbish and high-sugary foods that are making us sick. Many seem to think that once they are well they can go back to eating the rubbish again, but that is a no-brainer. It is eating that stuff that got them into the mess in the first place.......

I think that most who are following the SCD or other similar diets would likely concur with me that having 'tasted' better health as a result of the diet, few of us have any desire to return to the 'normal' Western diet in the future.

It is amazing too what you can do with that incredibly versatile huge range of foods on that 'restrictive' palate and how many amazing recipes there are out there - the biggest problem many have is that they have been reared on a diet of 'instant' food - 'open a packet and stuff it in' food, and the idea of having to cook or prepare food fills them with fear and trepidation!

It is a challenge, and a new concept, but once you get 'into' it, it's great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast
Just wanted to give a quick update
mushroom Proficient

Good on ya, mate! I am glad you are giving it a try. I hope the results are what we all expect for you. While the diet may at first seem restrictive, it becomes easier as you are able to add back in more and more foods until you get the oopsie, the other food(s) that bother you. I am soy intolerant and this seems pretty permanent (even soy lecithin). I am hoping to add back in some citrus after a while; I think I was just OD'ing on citric acid :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.