Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Type 1 Diabetes


Lisa

Recommended Posts

Lisa Mentor

Here is an interesting article regarding study tests vaccine-like therapy for Type 1 diabetes involving the immune system:

Open Original Shared Link

The article states "that scientists hope to control Type 1 diabetes by curbing the rogue immune cells that cause it. An injection revs up the subject's immune system, part of the a quest to create a vaccine-like therapy."

It goes on to state that "a "therapeutic vaccine" must shut down only the cells that erroneously attack a Type 1 diabetics, own pancreas. Body-wide immune suppression would leave patients vulnerable to other illnesses."

This sounds similar to the Celiac vaccine study in Australia.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

Thanks for posting this one -- forwarded it to my doc. They still cant decide if I'm 1 or 2!

Being celiac and diabetic is not fun but its better than dead!

Here is an interesting article regarding study tests vaccine-like therapy for Type 1 diabetes involving the immune system:

Open Original Shared Link

The article states "that scientists hope to control Type 1 diabetes by curbing the rogue immune cells that cause it. An injection revs up the subject's immune system, part of the a quest to create a vaccine-like therapy."

It goes on to state that "a "therapeutic vaccine" must shut down only the cells that erroneously attack a Type 1 diabetics, own pancreas. Body-wide immune suppression would leave patients vulnerable to other illnesses."

This sounds similar to the Celiac vaccine study in Australia.

neesee Apprentice
Thanks for posting this one -- forwarded it to my doc. They still cant decide if I'm 1 or 2!

Being celiac and diabetic is not fun but its better than dead!

Type 1s are usually thin at diagnosis. They can't control glucose levels with oral medications. They need insulin because their pancreas's no longer have the ability to make insulin. Type 2s do make insulin. For some reason their bodies no longer react to it. Type 1s get a condition called ketoacidosis when their glucose levels are out of control. Type 2s seldom do. When their sugar is out of control too long, the develop a condition called hyperosmolarity.

They are distinctly different. The damage is the same. My mom was type 1, my dad was type2, my brother is type2 and my husband is type 2. I'm pretty famaliar with both types unfortunately.

missy'smom Collaborator

Ken,

Have you had the fasting serum C-peptide test done? That is a basic measure of how much insulin you are putting out and can help determine if you are T1 or T2. My doc thought I was T2 and very insulin resistant. But, I thought differently and asked for the test. It was very revealing.

I've been reading about LADA which bears some striking similarities to celiac disease. It seems that something may trigger the autoimmune reaction. There is a test that can be done for this type too-to check for certain antibodies-GAD. It would be great if this immune reaction could be diagnosed early and a vaccine or something given to stop the killer cells from destroying the pancreatic beta cells.

Although neesee is right, it is wise to use diagnostic resources to determine types and not go too much by profiles, people can vary and there are more kinds of diabetes than just T1 and T2.

neesee Apprentice
Open Original Shared Link
missy'smom Collaborator

Here is a more detailed explanation of LADA for anyone who might be interested. ADA may not be officially using that term with their patients according to the above link but they are here Open Original Shared Link

and endos are doing the testing and giving DX using this term.

I hope you didn't take my comment as a personal slight neesee. My frustration is with the docs. Too many Docs go by the profiles and don't look further which is why I said what I said. I was litteraly laughed at by one and dismissed by many others when I mentioned my concerns, because I didn't fit the profile. If I take the risk assesment quiz at the ADA website, it shows that I have very little risk! :blink:

It is beyond me why Ken and I and many others can't get a straight DX from the beginning. The Docs. have all the resources they need to make an accurate Dx. Simple, clear, accurate tests. It's not rocket science! Managing BGs is another matter. I don't know why they play around with management before they collect all the data they need to make their decisions!

Sorry, I couldn't get a direct link to the article that I wanted to post. If you click on the one above and click on Diagnosing Diabetes at the top and then click on LADA, at the bottom there is a reference link to Diabetes Care-it will have the ADA logo on the top of the page.

kenlove Rising Star

Thanks neesee &'missy'smom'

I think part of my problem is the HMO-- I'm also focused on the Dr bernstein approach (Thanks again 'missy'smom' !) as well as what all the healers were telling me in south india. Bitter melon juice tastes terrible but it's amazing how well it works to bring the blood sugar down.

I'm also focusing on my wifes new health problems since mine is managable for now.

I dont remember which tests I had as it was before I left the country. I did ask for some updated tests to which he wrote back that waiting a little longer would be better. My guess is that they want to see how much weight I loose and what type of affect it has if any. I have lost 20- some pounds in 2 months.

Wish I knew if my grandparents were type one or 2 but I dont know if they knew the differences in the early 50s.

ken

Here is a more detailed explanation of LADA for anyone who might be interested. ADA may not be officially using that term with their patients according to the above link but they are here Open Original Shared Link

and endos are doing the testing and giving DX using this term.

I hope you didn't take my comment as a personal slight neesee. My frustration is with the docs. Too many Docs go by the profiles and don't look further which is why I said what I said. I was litteraly laughed at by one and dismissed by many others when I mentioned my concerns, because I didn't fit the profile. If I take the risk assesment quiz at the ADA website, it shows that I have very little risk! :blink:

It is beyond me why Ken and I and many others can't get a straight DX from the beginning. The Docs. have all the resources they need to make an accurate Dx. Simple, clear, accurate tests. It's not rocket science! Managing BGs is another matter. I don't know why they play around with management before they collect all the data they need to make their decisions!

Sorry, I couldn't get a direct link to the article that I wanted to post. If you click on the one above and click on Diagnosing Diabetes at the top and then click on LADA, at the bottom there is a reference link to Diabetes Care-it will have the ADA logo on the top of the page.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.