Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Can Something Be Gluten-free But Still Contain Wheat?


foodiegurl

Recommended Posts

foodiegurl Collaborator

My sister and I were having this discussion the other day since she has an actual allergy to wheat.

i was telling her how I saw gluten-free beer at Summerfest (in Miwaukee..New Grist beer), and she asked me if it had wheat in it. I responded.."of course not!" I know the gluten-free beers do not contain wheat, but she was saying how even if something going through the distilling process and is "gluten-free", but made with wheat, she would still react to it, even if a celiac without an allergy would not.

I guess, she is referring to wheat-basked vodkas?

I am still too nervous to try wheat-basked vodkas (my previous drink of choice), even though I have read by some it is safe.

Any thoughts on the gluten-free, but still containing wheat issue?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

A product cannot be gluten free and contain a detectable level of wheat.

A product can be wheat free, yet not gluten free.

foodiegurl Collaborator
A product cannot be gluten free and contain a detectable level of wheat.

A product can be wheat free, yet not gluten free.

This is exactly what I said, but she said that was not true....that something can actually be gluten-free, as in alchol, but still cause a reaction, because of the wheat <_<

ravenwoodglass Mentor
This is exactly what I said, but she said that was not true....that something can actually be gluten-free, as in alchol, but still cause a reaction, because of the wheat <_<

My experience is the same as your sisters. I definately have a gluten reaction to distilled gluten grains in alcohol and vinegars. I do not have a histamine (allergic) reaction the reaction is the same as it is when I accidentally ingest gluten. Fortunately for most though this is not the case and most celiacs are able to tolerate distilled gluten grains.

The only way you would have to know for sure would be to challenge and see if you react.

Lisa Mentor
This is exactly what I said, but she said that was not true....that something can actually be gluten-free, as in alchol, but still cause a reaction, because of the wheat <_<

Even though, distilled alcohol is considered safe for Celiac to consume, I have known several super sensitve who will react to distilled grain based fluids, even though no detectable level remains.

So maybe this debate may not have a conclusion? :( Maybe some people have to determine what level is safe for them.

tarnalberry Community Regular

a gluten-free label just means "no gluten detected" and that's usually subject to the test's limits, like 20ppm. a gluten-free label does *not* mandate "no gluten ingredients".

that being said, we've had the distillation discussion a number of times. the collective hive mind came to pretty much the conclusion that mamma goose left - in theory, a thorough distillation should remove all gluten, but <insert excruciating chemistry discussion here>, it may possibly allow for the tiniest levels of contamination that extraordinarily sensitive people react to.

of course, beer is not distilled, so that bit doesn't even come into play. so, if you see a gluten-free beer, it is *HIGHLY* unlikely to have ever had a wheat based ingredient in it.

darlindeb25 Collaborator

Any grain can be cross contaminated in the harvesting process. I am sure all grains have a detectable amount of gluten, be it 20ppm, 10ppm, or 5ppm. There are many of us who cannot tolerate any gluten above 5ppm. They can not test for any less than 5ppm, we just are not capable of it yet. Gluten free does not mean there is no gluten, it simply means the gluten falls below the FDA standard. I believe your sister is correct, they use corn for gluten-free beer, or sorghum, which is still a grain, and it can be CC's.

Open Original Shared Link

FDA Unveils the Draft Ruling for gluten-free Labeling.

On Jan 22, 2007 the Food and Drug Administration released the Proposed Rule for Food Labeling: Gluten-Free Labeling of Foods. (Docket No. 2005N-0279).

The draft ruling defines the guidelines for voluntary Gluten-Free labeling of foods.

A summary of the 95 page document:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mysecretcurse Contributor
This is exactly what I said, but she said that was not true....that something can actually be gluten-free, as in alchol, but still cause a reaction, because of the wheat <_<

Then it's not gluten free either. I wouldn't personally put anything that came from wheat in my body. I don't care how much it had been distilled.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      348

      Terrible Neurological Symptoms

    2. - Aretaeus Cappadocia replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

    4. - Scott Adams replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,995
    • Most Online (within 30 mins)
      10,442

    Jody Booker
    Newest Member
    Jody Booker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I respectfully disagree, @Scott Adams.   Thiamine deficiency (and deficiencies in other B vitamins) can cause unintentional weight loss.  The body will use stored fat and muscle to provide energy in thiamine deficiency.  This results in muscle wasting, fat loss, fatigue, and difficulty putting on muscle mass.  Using stored fat and muscle for energy requires less thiamine than the amount of thiamine required to process carbohydrates.  Thiamine deficiency causes gastrointestinal Beriberi, a localized thiamine deficiency in the digestive tract, which results in dysbiosis, inflammation, and abdominal pain.  Carbohydrates can remain undigested in the intestinal system, which bacteria feed on, encouraging SIBO, and prompting dysbiosis, leaky gut, and inflammation.  Following a low carbohydrate Keto diet, like the AutoImmune Protocol diet, can help because it removes excess carbohydrates that the bacteria feed on.  SIBO can cause weight gain due to inflammational edema of the intestines (water retention in the tissues of the intestines), gas, and slowed transit times.  SIBO bacteria can absorb nutrients from your food before you can, resulting in additional deficiencies of other B vitamins and nutrients.   Thiamine deficiency is corrected with high dose Thiamine Hydrochloride, Benfotiamine and/or Thiamine TTFD (tetrahydrofurfuryl disulfide).  High dose thiamine in the form Benfotiamine has been shown to promote intestinal healing.  It improves "leaky gut".  High dose Benfotiamine will improve the gut microbiome in favor of beneficial bacteria.  Thiamine TTFD is beneficial for neurological issues.  Thiamine TTFD improves brain function and is beneficial for mental health issues such as depression and anxiety, and other neurological problems like Ataxia and Brain Fog.    Methylated (activated) B Complex vitamins help correct Thiamine deficiency because all eight B vitamins work together.  Vitamin C and the four fat soluble vitamins (A, D, E, and K) are needed as well.  Minerals like Magnesium, Calcium, Iron,  Potassium, and others may need to be supplemented as well.  Thiamine and Magnesium make life sustaining enzymes together.   Supplementing with high doses of Thiamine and other water soluble B vitamins will lower pain and inflammation, improve fatigue, improve muscle mass gain, as well as regulate the intestinal microbiome!  So, @Stegosaurus, you can get healthier while improving gut dysbiosis at the same time! References: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dietary Vitamin B1 Intake Influences Gut Microbial Community and the Consequent Production of Short-Chain Fatty Acids https://pmc.ncbi.nlm.nih.gov/articles/PMC9147846/
    • Aretaeus Cappadocia
      You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test won't tell you if he has celiac, it can only tell you whether or not he is susceptible to getting celiac.)
    • JennMitchell79
    • Scott Adams
      That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable.
    • Scott Adams
      @Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with tummy pain, nausea, constipation, and diarrhea still going on. Anxiety can certainly add to gastrointestinal symptoms, but I can see why you would not want to assume that explains everything. It sounds like keeping an eye on things and being cautious with diet changes makes sense, especially if symptoms continue. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.