Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fibromyalgia And Food/proton Pump Inhib


Ivy

Recommended Posts

Ivy Rookie

I've been gluten-free for 3 years. Am about to be labelled with Fibromyalgia. Have had restless leg on and off for years so it wouldn't surprise me. Recently pain that seems to move around causing different parts of my body (shoulder, arm, hands, a hip) to hurt or go numb, or just not work right for a day or two, or three, has been worsening. I haven't had any of the drugs to treat any of this before and am really hesitant. So, I am wondering if anyone else with FM symptoms has been able to relate worsening of symptoms with anything they ingest whether it's food, some chemical in food, or even a medicine (OTC or otherwise). Also I was wondering what long term effects anyone has noticed from proton pump inhibitors as my Dr put me on one before my celiac disease dx and has left me on it.

Thanks any and everyone,

Ivy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I generally notice a fibro flare if I'm not "eating well". It's not a particular food that's the issue for me, it's an overall balance of fresh foods (and not too carby ;) ). Of course, not taking my supplements makes it worse too. :P

sixtytwo Apprentice

Although I still have flares occasionally, it is much better since being gluten-free and even better when I am eating a proper diet. It just occured to me when I was reading the most former post that a proper diet could make a difference as well as going gluten-free. I take Lyrica, only a smaller dosage, and that could be helping too, probably is. There are lots of side effects to all medications and Lyrica has them big-time, however, the problem seems to come when you get into high dosages of things. I also take something for cholesterol, but that is a very low dosage too and has no side effects in that range. I feel fortunates that the lower dosages of these medications is enough to solve the problems.

Barbara

AliB Enthusiast

I picked up this article by Scott that may be of interest to anyone with Fibromyalgia.

My Husband has been a lot better since going gluten-free. I have just started him on an elimination type diet and am interested to see if it will make any difference.

https://www.celiac.com/articles/118/1/Elimi...lgia/Page1.html

trents Grand Master

I have been taking a proton pump inhibitor for about 5 years now to control GERD. I take Protonix 40mg daily. It works very well to control the GERD. I do not notice any side effects. My concern, however, is that it will have a negagive effect on calcium absorption because of raising stomach PH. Calcim, iron and some other minerals need an acid environment (low PH) to be absorbed properly. Recently I went off the Protonix for about 3 months because of this concern and started developing esophagial pain. I had an endoscopy done and my esophagus had started to look like raw hamburger. Sacred me. I went back on the Protonix and the pain is gone. It's the lesswer of evils for me.

Ivy Rookie

I understand the lesser of evils and GERD, teaching myself to sleep on a wedge . The only thing I know long term on proton pump inhibitors is that it can lead to more food sensitivities. I didn't know if anyone else knew of anything else.

I read the article AliB, thanks. I did a lot of thinking about what exactly could have changed and I think it's corn. I've been letting corn creep back into the diet. Hard not to. I guess that would increase carbs wouldn't it? Oh well. So I'll start there. Logic just told me that with celiac disease being immunological that FM could be susceptible to foods causing greater inflammation.

...Just so long as it's not chocolate ;)

AliB Enthusiast

Whilst some settle down after removing gluten and are perfectly ok, there are many for whom gluten alone is not the answer.

Whilst other foods can cause reactions, often they typically are other carbohydrates, like corn or soy products.

I believe that when you remove one carb source, like wheat and other gluten-grains, for some, certain bacteria within the gut will turn their attention to another one and so it goes on. Carbohydrates, and particularly processed and refined ones are the foods that feed the beasties, and as our Western diet is so carb-heavy it is not surprising.

If you analyse the diets of healthy indigenous cultures they all eat protein in some form, a good supply of fats and oils - even saturated ones, but what they don't eat is anything like the quantity of carbs that we do and certainly nothing processed or refined or sugar-laden. Some cultures eat virtually no carbs at all, yet they are fit and healthy.

As a gluten-intolerant diabetic I am currently eating low-carb and higher fat. I have been doing this now for about 10 days and have not had to have any insulin for the last week. My blood sugars have been virtually normal. Carbs drive blood sugar, blood sugar drives insulin and insulin is the fat-laying hormone. An excess of carbs will encourage weight gain in some (and even weight loss in others). You don't have to be diabetic to be affected by insulin imbalances.

I was eating fairly low-carb anyway but have reigned it in even tighter, have upped my fat intake (good fats, butter, coconut oil, flaxseed oil, cod liver oil and olive oil) and am now losing weight (which I need to - 7lbs so far). I am now getting more vitamin D and A as a result too, and a lot more essential fatty acids.

It will be interesting to see if I can make any difference to my husband's Fibro if I can get him to take more fats and oils in his diet. We live in the UK and a shortage of vitamin D can be a problem.

Since I have been low-carbing I don't have any problems with acid reflux either.

Oh, and you know what? Since I have been taking the higher fat consumption I no longer crave chocolate - or have any compunction to nibble in the evenings when watching the TV (that was a big problem). Wonderful. Makes me wonder if it wasn't actually the chocolate I wanted, but the fat content in it! food for thought..............


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.