Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Had Negative Results From Dr Fine's Panel?

trying4faith

Anyone had negative results from Dr Fine's panel?  

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

trying4faith Apprentice
trying4faith
Posted

Just trying to find out if everyone who gets tested gets back a positive finding...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


minivanmama0300 Newbie
minivanmama0300
Posted

Well, my dd came in under 10 on all gluten sensitivity panels, so yes we have had a negative.

trying4faith Apprentice
trying4faith
Posted
  • Author

Hm. I'm guessing though, that despite your test results, you still get sick if you consume gluten? (or why would you still be on the boards when you can be out eating everything in sight :)

That's disconcerting... I would hope that the tests are accurate...

nikki-uk Enthusiast
nikki-uk
Posted

Hi, my husband had negative blood results,but 'positive' biopsy showing villous atrophy.

I'm not sure I understand why,and it makes my husband think the docs have got it wrong-especially as he's seen no improvement in health on the gluten-free diet.

It's all so confusing!...

skbird Contributor
skbird
Posted

My results came back under 10 on all counts but I had been eating gluten-free for 5 months and reduced gluten for two years before that. I do have a gluten-sensitive genotype, but not Celiac.

Stephanie

jools Newbie
jools
Posted

my test results came back negative as well, but i had been on a gluten free diet already for at least 6 months. i get sick whenever i encounter gluten so the doc said that it was safe to just stay on the gluten-free diet.

Lesliean Apprentice
Lesliean
Posted

Yep, I was gluten-free for 2 and 1/2 months and high normal on Enterolab's tests. I e-mailed Dr. Fine the day I received his report (saying that while my report was within normal I could try a gluten-free trial if I was having symptoms) to get his recommendation. He wrote back that day advising me to go gluten-free because I had such a resolution of symptoms gluten-free and two copies of DQ1. I have the neurologically presenting genes (DQ1) that can reek havic with the entire body while showing negative on blood work (sometimes) and biopsy (almost always) and I was gluten-free at the time of testing.

Because of this conservative yet professional and completely up to date response I think Dr. Fine is exceptional. He does report negative results and yet doesn't miss the up to 50% of Celiacs that serology and biopsy does. I know this is controversial and blood work has its place but so many of us are missed by current testing methods (says Dr. Alessio Fasano with the Center for Celiac Research in his May 6th meeting) and some genes that predispose towards gluten sensitivity aren't even recognized by GI's even though they account for 2% of documented Celiac disease and 20% of gluten ataxia.(Open Original Shared Link).

Leslie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted

People do test negative with Enterolab (while on a regular gluten diet), but you won't find many on this board. The only ones who will still be around are probably parents of kids who have tested positive, and they would most likely have at least one gene...

I have heard people say that when they had their whole family tested at least one member tested negative. But there is also that most of the people getting tested are symptomatic, which increases the amount of positives. If you didn't have symptoms, and didn't have family members who had it, why would you spend the money on the testing. Both the symtoms and the family propensity towards the disease increase the likelyhood of the results being positive.

God bless,

Mariann

snoopylian Apprentice
snoopylian
Posted

Leslie,

Does that mean you have two genes predisposing you to gluten sensitivity - like say 0501 and 1301 for example?

two copies of DQ1.

and

I have the neurologically presenting genes (DQ1) that can reek havic with the entire body while showing negative on blood work (sometimes) and biopsy (almost always) and I was gluten-free at the time of testing.
what does that exactly mean? Talk to me like I'm stupid :)

Thank you very much.

cindyann50 Newbie
cindyann50
Posted

My husband's tTg came back 6.5 and his endomysial ABY came back negative; he has no symptoms at age 71 with the exception of osteoporosis which was diagnosed 8 years ago. What does a low tTg indicate? I am ready to have Dr. Fine's testing done; we have a 21 year old daughter blood and biopsy diagnosed 1/05 and an autistic grandson age 12. I have 2 genes, DQ2 and DQ1, blood tests negative in 2000, all symptoms of DH. Any ideas?

kvogt Rookie
kvogt
Posted

cindyann50,

From your description, the osteoporosis clinches it for me. I'd bet he has celiac disease. I believe gluten sensitivity will be the cause of nearly all osteoporosis problems. How's his iron?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748
    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.