Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Not Able To Work Because Of Celiac Disease And Related Conditions?


GlutenGuy36

Recommended Posts

GlutenGuy36 Contributor

Just wanting to know if anyone has been feeling rough like me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mysecretcurse Contributor

There have definitely been times it has effected my work or made me not be able to work. This was all before I even knew I was celiac though and was still eating gluten every day and being deathly ill.

cmom Contributor

The job I have now as a teaching assistant ijs perfectly suited for me. If I have any intestinal flareups, I can excuse myself and tend to them. However, there are without a doubt, some jobs I could never hold such as assembly line worker, cashier in a busy store, highway worker, etc. I must have a job where I can hit the restoom if necessary. They did put me on a special needs bus for a short time but I started having problems and feeling ill and had to request to be taken off that duty. The ride was 1 1/2-2 hrs. long out throught the country where there were no public restrooms. Thank goodness my principal was so understanding. I was in line to check out a famous chain store one time, and the cashier was begging the supervisor to let her go toe restroom, and the supervisor refused. I thought this was absolutely horrible. (If there are alot of mistakes in this post, I apologize....I'm only wearing one contact!) :huh:

lovegrov Collaborator

Couldn't work for 10 weeks and after that only half time for a while. If my job had been more a physical one, it would have been even longer.

richard

JillianLindsay Enthusiast

I've been off work for 3 months after suffering seizures and extreme fatigue, dizziness, etc.

I was only diagnosed earlier this month and am hoping to go back to work in August.

I am slowly starting to feel better, but it has been a very rough journey. I've basically been sick for 7 months with no reprieve and it took them 6 months to figure out why.

Thankfully we've figured it out and I can hopefully start to get better. I hope you do as well.

Just wanting to know if anyone has been feeling rough like me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.