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Misdiagnosis

Lori and Kieran

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Lori and Kieran Rookie
Lori and Kieran
Posted

I was wondering if anyone's DH has ever been misdiagnosed as impetigo. Ever since I was a child I will break out in a rash which I think is poison ivy and when it eventually gets to the point of going to the doctor they tell me that I have impetigo. I keep myself clean so, I really don't think I should be developing impetigo on a regular basis. Thanks.

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mindyandy420 Apprentice
mindyandy420
Posted

Impetigo? I thought you can only get rid of impetigo with medicine? I had impetigo once (ex boyfriend and I go into a fight and he drug me across the floor and I got carpet burns this is how) and the only way to get rid of it was medicine. I dont think you can just break out with impetigo.

Just my opinion. Find a different dr next time.

Lori and Kieran Rookie
Lori and Kieran
Posted
  • Author
Impetigo? I thought you can only get rid of impetigo with medicine? I had impetigo once (ex boyfriend and I go into a fight and he drug me across the floor and I got carpet burns this is how) and the only way to get rid of it was medicine. I dont think you can just break out with impetigo.

Just my opinion. Find a different dr next time.

I was given medicine and it did eventually go away. I'm just so new at all of this. I'm trying to put all the pieces together. Thanks for your response.

angieInCA Apprentice
angieInCA
Posted

I had severe rashs when I was a kid that ran up and down my arms and down the back of my legs. I don't remember what was done about them but I do know I was never diagnosed with DH till I was 48. All my life I would get rashes or itchy bumps and I saw countless Dr.s and Dermatologists and none of them ever tested me for DH. I was given pleanty of creams and sent on my way to try them out. Of course the rash would clear up some and then I would break out again and be given yet another cream to try. It wasn't until I asked to be tested for DH that I was finally tested and diagnosed.

Lisa16 Collaborator
Lisa16
Posted

Once (a blister popped and got infected.) But mostly mine was misdiagnosed as shingles. I had "shingles" three different times within a short period.

A dermatologist figured it out. That's how I got diagnosed. Smart dermatologist.

declan Newbie
declan
Posted

I don

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes, my DH was misdiagnosed as 'poison ivy in my bloodstream' Although no doctor even called it impetigo I was sent home from school more than once during bad outbreaks because the school nurse was sure that was what it was. We had to get a note from my clueless derm stating that no it wasn't impetigo it was 'poison ivy'. Impetigo is an infection and can be cleared up with antibiotics.

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ang1e0251 Contributor
ang1e0251
Posted

Impetigo is a bacterial skin infection usually caused by the skin being scatched open then infected. This is because the child usually has an itchy rash or bug bite. Children can have nails with any kind of bacteria, but impetigo is either staph or strep depending on the type. If you had impetigo, then you may have had a rash, maybe DH?, then scratched it to infection. My friend's grandson has had it frequently as he suffers from skin rashes.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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