Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dont Know What To Do


Conec

Recommended Posts

Conec Newbie

Hi everyone. I'm new here and I wanted to talk to people here because I think I might have celiac disease. I have had various different symptoms all my life but over the last few weeks something has changed. Over the last few weeks I have had strong pains in my stomach.

I dont really know if anyone can help me here but I thought I could at least talk about my symptoms and see what people think. I'm aware that nobody can diagnose me here but I need to talk.

I usually get really strong cramps as soon as I finish eating my breakfast and then I usually have to run to the bathroom where I have an urgent need to pass a movement which varies between diarrarehia and just being soft but its always quite explosive.

I always feel full of gas. I have a very noisey stomach at all times, its actually embarrassing (quiet waiting rooms etc).

About 3 months ago I got this strange itchy burning rash, only on my wrists which were these tiny little blisters that would heal and come back again. I went to the doctor and he just told me I was allergic to something and gave me some cream. He couldnt tell me what I was allergic to. The rash seems to have healed now after using a strong steroid cream.

Then there was something else that caught mt attention, the description of Neuropathy - problems with nervous system not related to the spine. I have chronic pain with the nerves in my neck and my legs are constantly cramped and painful.

I have always suffered from headaches and migraines.

I have suffered from depression.

Another description was dental problems, the enamel just seem to ware away so quickly.

I have also been skinny but I have a pot belly.

So it just seems to me that all these unrelated issues I've been dealing with all my life seem to all come together with celiac disease.

I even got an allergy test done at a health food store a few years ago because I was so sick of my stomach and digestion feeling like there was a storm going on in my insides.

I wanted to ask advice because basically my doctor sucks, he plies you with perscriptions and shoves you out the door. I can imagine how I might find it quite difficult to convince him that I'm not making this up and that I would like to be taken seriously. Does anyone have any advice on how I can adress my concern with a doctor whos too busy to listen?

Any advice greatly appreciated. (sorry about the long post).

Conec - Ireland - age 30

Anyway thanks for reading.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

Go gluten free and find a new doctor. I doubt there's a way to convince the doctor unless he's open minded enough to do some research about celiac disease.

hannahp57 Contributor

I would go both gluten and dairy free. Go back to a safe diet of whole inprocessed foods. rice, corn, veggies and fruits, meat (plain or with little seasonings like salt and pepper). Everyone will recommend this as a good idea. you can see how much better you feel and then after a few months (it will take time and patience) you may start adding things in one at a time to see what the problem is.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,063
    • Most Online (within 30 mins)
      7,748

    JTL1976
    Newest Member
    JTL1976
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.