Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dont Know What To Do


Conec

Recommended Posts

Conec Newbie

Hi everyone. I'm new here and I wanted to talk to people here because I think I might have celiac disease. I have had various different symptoms all my life but over the last few weeks something has changed. Over the last few weeks I have had strong pains in my stomach.

I dont really know if anyone can help me here but I thought I could at least talk about my symptoms and see what people think. I'm aware that nobody can diagnose me here but I need to talk.

I usually get really strong cramps as soon as I finish eating my breakfast and then I usually have to run to the bathroom where I have an urgent need to pass a movement which varies between diarrarehia and just being soft but its always quite explosive.

I always feel full of gas. I have a very noisey stomach at all times, its actually embarrassing (quiet waiting rooms etc).

About 3 months ago I got this strange itchy burning rash, only on my wrists which were these tiny little blisters that would heal and come back again. I went to the doctor and he just told me I was allergic to something and gave me some cream. He couldnt tell me what I was allergic to. The rash seems to have healed now after using a strong steroid cream.

Then there was something else that caught mt attention, the description of Neuropathy - problems with nervous system not related to the spine. I have chronic pain with the nerves in my neck and my legs are constantly cramped and painful.

I have always suffered from headaches and migraines.

I have suffered from depression.

Another description was dental problems, the enamel just seem to ware away so quickly.

I have also been skinny but I have a pot belly.

So it just seems to me that all these unrelated issues I've been dealing with all my life seem to all come together with celiac disease.

I even got an allergy test done at a health food store a few years ago because I was so sick of my stomach and digestion feeling like there was a storm going on in my insides.

I wanted to ask advice because basically my doctor sucks, he plies you with perscriptions and shoves you out the door. I can imagine how I might find it quite difficult to convince him that I'm not making this up and that I would like to be taken seriously. Does anyone have any advice on how I can adress my concern with a doctor whos too busy to listen?

Any advice greatly appreciated. (sorry about the long post).

Conec - Ireland - age 30

Anyway thanks for reading.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

Go gluten free and find a new doctor. I doubt there's a way to convince the doctor unless he's open minded enough to do some research about celiac disease.

hannahp57 Contributor

I would go both gluten and dairy free. Go back to a safe diet of whole inprocessed foods. rice, corn, veggies and fruits, meat (plain or with little seasonings like salt and pepper). Everyone will recommend this as a good idea. you can see how much better you feel and then after a few months (it will take time and patience) you may start adding things in one at a time to see what the problem is.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.