Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Daily Migraines

Waiting

By Waiting
in Related Issues & Disorders

Recommended Posts

Waiting Newbie
Waiting
Posted

Hi everyone! I'm new here and new to Celiac. I have only been gluten-free since the very end of May (2009). My question is if anyone else suffers (or has suffered) from migraines, daily or otherwise. If so, has the gluten-free diet helped with the frequency or with the intensity? If so, how long was it before you noticed a difference? I'm so ready to say good-bye to this chronic pain!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eringopaint Newbie
eringopaint
Posted

I had chronic migraines for 35 yrs - during that time I tried EVERYTHING! or so I thought.

I went totally gluten-free in April 08 after greatly reducing my gluten intake for a few years. I guess it was about 4 months into being completely gluten-free that I saw a real drop in frequency - and duration - of my migraines.

After 6-7 months I saw a radical change --- I started to go weeks and then months without any migraines. This was unheard of in my 35 yrs I had migraines!

What I have learned is that even a small trace of gluten (like cross-contamination or gluten-free food made on shared equipment) can trigger my migraines. If I stay vigilant, my migraines remain a thing of the past.

It is well worth the effort!!!

Make sure you are not getting traces of gluten in something.

Good luck!

erin

ang1e0251 Contributor
ang1e0251
Posted

I do not have migraines but my daughter, my assistant's son and other friends do. I helped my daughter when I read about the benefits of feverfew for migraines. I already had her on B6.

This helped her but not as much as another herbal combination called Migraliev. It has feverfew, magnesium and roboflavin. These give her great relief. Much fewer migraines and shorter in duration.

Others we have told about this product have found relief from it. But my assistant's 13 YO son missed most of 2 years of school from migraines. He really had an ongoing headache all the time. She had him to all kinds of specialists with really no relief. I had read "The Miracle of Magnesium" in the meantime. Dr. Dean said of migraines that many suffer very low magnesium. Her recommendations were to eliminate any allergies or food sensitivities, add feverfew, B vitamins and feverfew. He went on the Migraliev, increased magnesium and the other vitamins mentioned. He still had problems on rainy days. He tends to have sinus issues so we found online a nasal spray with capscacian (hot peppers) and feverfew. This has been the final puzzle piece for him. He uses this at the start of a headache and it melts away. Along with the supplements, he has had the migraines under control and looks forward to starting high school.

tarnalberry Community Regular
tarnalberry
Posted

I developed chronic migraines years after going gluten (and dairy) free. I took topamax (daily preventative) for a long time. Supplements helped, but didn't fix the problem, which I think is related to stress and poor neck alignment.

RideAllWays Enthusiast
RideAllWays
Posted

I get migraines after being glutened

lsolatka Newbie
lsolatka
Posted

Tiffany-I noticed your "aka" comment on chocolate and that you continue to have migraines. Have you ever considered chocolate as a cause of migraines? My husband will get a migraine if he eats even one M&M! Just a thought. Lisa

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

My neurologist actually recommended butterbur (similar effect as feverfew) as well as riboflavin and magnesium.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
Tiffany-I noticed your "aka" comment on chocolate and that you continue to have migraines. Have you ever considered chocolate as a cause of migraines? My husband will get a migraine if he eats even one M&M! Just a thought. Lisa

Yup - I tried dietary tests for all common food triggers (and food allergens) before I went on the daily meds. None of them triggered a migraine for me. Addressing the neck issue has definitely helped (I'm off my meds, for the past 6 weeks), though I can't do anything about the weather affect. (Some people appear to be triggered by sudden day-to-day changes in temperature (possibly due to barometric pressure). I'm pretty sure I'm one of them.)

Waiting Newbie
Waiting
Posted
  • Author

Thanks to all! I initially noticed a difference, but the migraines have returned. Tiffany -- what are you doing for your neck? Daily preventatives (Topomax, sectral, etc.) and migraine meds (imitrex, treximet, etc.) do not work on me; in fact, they all make mine worse. Magnesium has not helped either. So discouraging!

tarnalberry Community Regular
tarnalberry
Posted

besides the magnesium, I also take calcium, a vitB, and (rather a lot of) omega-3's. my neck - I'm working with a chiropractor to reduce the forward head posture and regain curve in the cervical spine. (so, posture exercises, posture awareness during the day, some adjustments (not manual ones, I do *not* like having my neck cracked), and traction (which helps the most, but I hate the most - still do it though, because it really does help)).

ang1e0251 Contributor
ang1e0251
Posted
Thanks to all! I initially noticed a difference, but the migraines have returned. Tiffany -- what are you doing for your neck? Daily preventatives (Topomax, sectral, etc.) and migraine meds (imitrex, treximet, etc.) do not work on me; in fact, they all make mine worse. Magnesium has not helped either. So discouraging!

How much magnesium are you taking? Dr. Carolyn Dean who wrote the book I mentioned recommends around 600 mgs for normal adult patients. I notice I tend to need higher than average amounts of supplements to do the trick. I've built up to 660 mgs right now. That's the point where my bm's are soft. I don't want D so if I think I need more, I'll try the topical oil. It has helped a lot with my neck stiffness and I'm sleeping better as well.

Waiting Newbie
Waiting
Posted
  • Author

Hmmm...will try the higher magnesium. Also, I just found out that I glutened myself on Saturday, which is when my daily migraines (and joint aches) started again :o . DUH!! I guess it will take some time to get used to this ;) .

nasalady Contributor
nasalady
Posted
Hi everyone! I'm new here and new to Celiac. I have only been gluten-free since the very end of May (2009). My question is if anyone else suffers (or has suffered) from migraines, daily or otherwise. If so, has the gluten-free diet helped with the frequency or with the intensity? If so, how long was it before you noticed a difference? I'm so ready to say good-bye to this chronic pain!

I had major daily migraines until I went gluten free in November. Now I only have them when I've been glutened.

For me, it's been a long process to become completely gluten free. For example, yesterday I just realized that I may be glutening myself and my family (we all have gluten issues) by using my old Crockpot because the stoneware is porous. One more thing to replace..... :(

Waiting Newbie
Waiting
Posted
  • Author
I had major daily migraines until I went gluten free in November. Now I only have them when I've been glutened.

For me, it's been a long process to become completely gluten free. For example, yesterday I just realized that I may be glutening myself and my family (we all have gluten issues) by using my old Crockpot because the stoneware is porous. One more thing to replace..... :(

Oh, I know!! I just learned last night that I need different cookware. I bought I separate toaster for me today and replaced all of my cosmetics, lotions, soaps, shampoos, gels, and hairspray. Too bad I can't get back all of the money I spent on doctors!!! :lol: Oh geez, hadn't thought of the Crockpot...or the wok...or the....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,131
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.