Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scared To Get Pregnant!

reznicekk

Recommended Posts

reznicekk Newbie
reznicekk
Posted

I was recently diagnosed Celiac just a few months ago and am looking to start a family in about three years.

My menstrual cycles have always been normal and I've never had any issues with them. In fact, I've never missed a period or been way off on them. Should I be concerned about whether or not I will have healthy pregnancies? Do I have a high risk of infertility and miscarriage even if I am totally off gluten for three years prior to concieving? Please help, as I am really looking for some aleviation of my fears!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


karenhockley Apprentice
karenhockley
Posted

! had three healthy pregnancies and babies. They were a little smaller than most babies but nonetheless they were healthy, the only problem I had was a placenta previa. I was diagnosed when I was 9 months old. I never had any problems getting pregnant nor did I have any miscarriages. I was more vigilant with the gluten free diet since you tend to have odd cravings. I had a positive attitude towards everything and if someone wanted to tell me about their "hell" labor story I just told them I didn't want to hear it. I believe that a positive attitude can help you out that and I was physically active. Just make sure that all your blood work is where it should be and stay positive.

I know that getting pregnant is scary to begin with but read as much as you can get your hands on. Information is knowledge!

tarnalberry Community Regular
tarnalberry
Posted

as long as you maintain a gluten free diet (don't worry about the rare minor contamination, just don't try cheating), you should be just fine.

FMcGee Explorer
FMcGee
Posted

Oh, wow, am I ever in the same boat. I'm even hoping to start having kids in three years, and I'm worried, too. I haven't quite wrestled this celiac disease to the ground yet (see another post about my lamenations over Chex, hehe) but I'm hoping that by then it won't be a big deal. I'm also worried about passing celiac on to my kids, which is making me wonder about adoption, which I've always thought was cool anyway. (PLEASE NOTE: I am NOT NOT NOT saying that if you have celiac you shouldn't get pregnant/have kids. That's probably what I'm going to do, or some combination of adoption and pregnancy, depending on how many we have. I'm just saying I'm an over-thinker, is all!)

Anyway, I'm glad to know I'm not the only one worried about this! I'm also glad to read the other responses.

berylayn Newbie
berylayn
Posted

I was diagnosed celiac a little over a year ago. My mom is a celiac as well (self-diagnosed) and I have a sister who is non-celiac. She had two healthy pregnancies before she was even gluten free! My mom just admitted to me a few weeks ago that all she ate when she was pregnant with me was donuts. :rolleyes: I am not condoning gluten eating while pregnant AT ALL! I just found it amusing.

Anyway, I recently became pregnant with my first and I will admit it was pretty scary at first. I was concerning with the amt. of time it would take to concieve and the risk for miscarriage. I am now 12 wks. and everything is very healthy thus far. I am maintaining as strict a gluten-free diet as I can and I am excited about what's to come! I have come to peace with the fact that there is a 50/50 chance this baby could have celiac. If so, I am sure we'll get along fine. I seem to be doing alright being gluten-free and we'll just cross that way of living with little one if need be.

Anyway, good luck on your journey! I am sure after 3 years on a gluten-free diet your body will be more than ready for pregnancy. Enjoy!

Mother of Jibril Enthusiast
Mother of Jibril
Posted

If you're strict about the gluten-free diet then I don't think you have anything to worry about when it comes to celiac disease. However... before you get pregnant I think you would be very smart to get an ANA test and have your thyroid checked. Celiac disease is an autoimmune disorder and autoimmune disorders tend to cluster together. I'm not 100% sure that I have celiac disease (long story), but I do have at least two other autoimmune disorders... Hashimoto's disease and idiopathic anaphylaxis (my immune system has been making antibodies to my own mast cells). Hashimoto's disease, in particular, is very common and can cause a miscarriage. Untreated, it can even lower the IQ of your baby :( Some OBs are starting to routinely test all of their patients, but mine didn't and I had a loss when I was four months pregnant. ANA is a good marker for autoimmune activity in your body, but is not specific for any particular disorder. Just blood tests... not too expensive.

FMcGee Explorer
FMcGee
Posted
If you're strict about the gluten-free diet then I don't think you have anything to worry about when it comes to celiac disease. However... before you get pregnant I think you would be very smart to get an ANA test and have your thyroid checked. Celiac disease is an autoimmune disorder and autoimmune disorders tend to cluster together. I'm not 100% sure that I have celiac disease (long story), but I do have at least two other autoimmune disorders... Hashimoto's disease and idiopathic anaphylaxis (my immune system has been making antibodies to my own mast cells). Hashimoto's disease, in particular, is very common and can cause a miscarriage. Untreated, it can even lower the IQ of your baby :( Some OBs are starting to routinely test all of their patients, but mine didn't and I had a loss when I was four months pregnant. ANA is a good marker for autoimmune activity in your body, but is not specific for any particular disorder. Just blood tests... not too expensive.

That's good advice, and I, for one, will definitely keep it in mind.

I'm so sorry for your loss.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748
    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.