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Weight Gain Since gluten-free/some Good Advice Needed


penny-s

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penny-s Newbie

I have alot of post regarding weight gain/loss on gluten-free diets, I as well fall under the weight gain category. I don't eat hardly any pastas, I eat no bread. My diet consists of protein, from animal meats and beans, minimal fresh vegetables, some dairy, and very little fruit. My exercise is very minimal due to getting up early, working all day and into the early evening, contending with a 4 yr old, housework, etc. I am not a night person so I go to bed rather early because of my early start in the mornings. I read that someone does an email weightloss for Celiacs, if that person is reading I would love to get the link. I am only a few pounds over weight but I feel terrible. I initially losed a bunch of weight when I went gluten-free, plus I did a 30 day detox and lost more, since then I have gained it all back and then some. I dislike any of the rice pasta's and have yet to find a bread that is "tastey" and doesnt cost a fortune. I have found that my food bill has exploded since being gluten-free. Luckily I found a tastey pasta made of corn, but I fear that eating the corn could be what is putting weight on. My acupuncturist told me that corn puts alot of weight on woman around the mid section of their bodies--I have to believe her now. I hope someone can chime in on some advice for me. I am feeling rather frustrated since I am getting re-married next month and cant lose the weight.

For those who say this lifestyle isn't hard---bless them because where I live it's very difficult. Eating out does not occur, unless I eat salad. Oh Yippee!!! That would be great if I were a vegetarian, or vegan, but I am not, and to get meals specially cooked it cost a small fortune. So I make alot of my own meals, but as stated above time is limited so I can't prepare a ton of food ahead of time.

I sure hope someone has some really good advice for me. OH yes I have joined a celiac group but I only get newsletters because I can't make the meetings due to having to work, and this group is the only one in the area.


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tiggsy Newbie

Most celiacs do NOT lose weight on a gluten free diet, in fact many gain as their body is able to digest stuff that used to go straight through...

Losing weight is a matter of getting your metabolic rate up and not eating too many fatty foods (as these are higher in calories, a measure of the energy content).

The easiest way to get your metabolic rate up is to do 45 minutes of heartbeat raising exercise every 72 hours. You don't need to do it more often, as the rise in metabolism lasts that long.

You can eat steak at restaurants. That is my fall-back. A steak, a few fries and whatever veg goes with it (hold the battered onion rings). I could also have an omelette, but I make those at home when I'm in a rush, so I don't eat them when I'm out.

daphniela Explorer
I have alot of post regarding weight gain/loss on gluten-free diets, I as well fall under the weight gain category. I don't eat hardly any pastas, I eat no bread. My diet consists of protein, from animal meats and beans, minimal fresh vegetables, some dairy, and very little fruit. My exercise is very minimal due to getting up early, working all day and into the early evening, contending with a 4 yr old, housework, etc. I am not a night person so I go to bed rather early because of my early start in the mornings. I read that someone does an email weightloss for Celiacs, if that person is reading I would love to get the link. I am only a few pounds over weight but I feel terrible. I initially losed a bunch of weight when I went gluten-free, plus I did a 30 day detox and lost more, since then I have gained it all back and then some. I dislike any of the rice pasta's and have yet to find a bread that is "tastey" and doesnt cost a fortune. I have found that my food bill has exploded since being gluten-free. Luckily I found a tastey pasta made of corn, but I fear that eating the corn could be what is putting weight on. My acupuncturist told me that corn puts alot of weight on woman around the mid section of their bodies--I have to believe her now. I hope someone can chime in on some advice for me. I am feeling rather frustrated since I am getting re-married next month and cant lose the weight.

For those who say this lifestyle isn't hard---bless them because where I live it's very difficult. Eating out does not occur, unless I eat salad. Oh Yippee!!! That would be great if I were a vegetarian, or vegan, but I am not, and to get meals specially cooked it cost a small fortune. So I make alot of my own meals, but as stated above time is limited so I can't prepare a ton of food ahead of time.

I sure hope someone has some really good advice for me. OH yes I have joined a celiac group but I only get newsletters because I can't make the meetings due to having to work, and this group is the only one in the area.

What are you drinking? If soda, that will make you gain weight. You have to watch your liquid calories too. All I drink is water and iced tea and occasionally 100% juice. I have lost weight. I also eat mainly vegetarian with only meat at dinner. Sometimes I even eat vegetarian at dinner. I eat things like spaghetti with zuchinni and no meat, vegetable lasagna, and beans and rice dishes. I also have tried quinoa. The brown rice pasta is good. When I do eat meat, it is usually chicken or turkey. Hamburger on occasion as a treat. You have to let yourself have things you like to eat or you won't stick with it. I let myself have candy bar. I eat 3 Muskateers cause its lower in fat and calories. Chocolate covered fruit. Think of it as a lifestyle change not a diet. Cause you will gain the weight back if you go back to your old eating habits.

Penny-M Newbie
Most celiacs do NOT lose weight on a gluten free diet, in fact many gain as their body is able to digest stuff that used to go straight through...

Losing weight is a matter of getting your metabolic rate up and not eating too many fatty foods (as these are higher in calories, a measure of the energy content).

The easiest way to get your metabolic rate up is to do 45 minutes of heartbeat raising exercise every 72 hours. You don't need to do it more often, as the rise in metabolism lasts that long.

You can eat steak at restaurants. That is my fall-back. A steak, a few fries and whatever veg goes with it (hold the battered onion rings). I could also have an omelette, but I make those at home when I'm in a rush, so I don't eat them when I'm out.

thanks for your reply back, however I don't eat steak, never could get myself to eat red meat other then hamburger as long as it's freshly ground from the butcher, I pretty much only treat myself to shrimp scampi over rice, at least that I know is safe. I truly believe I have a metabolism problem, and I think that is my next step. As for exercise of any kind that is out right now due to dr's orders, because I have achilles tendonitis as well as something else going on with my feet. I am waiting for more test results to come back.

Penny

Penny-M Newbie
What are you drinking? If soda, that will make you gain weight. You have to watch your liquid calories too. All I drink is water and iced tea and occasionally 100% juice. I have lost weight. I also eat mainly vegetarian with only meat at dinner. Sometimes I even eat vegetarian at dinner. I eat things like spaghetti with zuchinni and no meat, vegetable lasagna, and beans and rice dishes. I also have tried quinoa. The brown rice pasta is good. When I do eat meat, it is usually chicken or turkey. Hamburger on occasion as a treat. You have to let yourself have things you like to eat or you won't stick with it. I let myself have candy bar. I eat 3 Muskateers cause its lower in fat and calories. Chocolate covered fruit. Think of it as a lifestyle change not a diet. Cause you will gain the weight back if you go back to your old eating habits.

I drink a ton of water and herbal tea's, I don't drink soda too often, I do drink some flavored seltzer on occasion. I eat alot like you, vegetarian meals during the day and a meat meal at night. Unless I take leftovers to work from the day befores suppper. I make zucchini bakes with rice, now that the zucchini is ready for picking. I eat pasta maybe 1-2 times a week. I do not eat fried foods alot unless it's my infamous fried potatoes but even those are pretty healthy. I find myself eating alot of beans-refried beans, garbonzo beans, green beans, etc. My weakness is potato chips. I really think I have a metabolism problem and that is my next step with the dr. Unfortunately my current dr just left town and so I am in search of a new dr and I am rather frustrated seeings how this will be my 5th dr in the past 3 yrs. I am tired of rehashing everything and having the new dr do all the same test I have already been through. I have done that and I am not going through it again. I am lucky in the aspect of having insurance that allows me to see whoever I want without referrals. At least for now, I think that will change come next year. Who knows it could be due to my age, I am in my 40's and I know my mother and sister ballooned when they hit 40. Maybe it's genetics. Whatever the reason is I am not liking it and I am going to fight it every step of the way.

Thank you for responding I truly appreciate the feedback

AliB Enthusiast

I beg to differ on the fats issue.

Try reading Gary taubes' 'Good Calories, Bad Calories'.............

Contrary to popular opinion, many, both professional and lay people are coming around to realising that it is not fat that makes you fat, but carbs.

In the laws of thermodynamics it is not what you take in, but the kind of food you take in and how the body uses it. The body burns fat as fuel far more efficiently than carbs.

As I often illustrate, you only have to look at the Inuit. Their diet consists of raw and cooked fish, meat and blubber(fat). They eat little or no carbs of any kind, yet they are fit and healthy and do not suffer with our 'Western' diseases. Their diet consists of as much as 50% fat or more in the form of animal fats and fish oils. It is calorifically very high yet they are not fat.

The body stores carbohydrates in readiness for 'famine' or the lean Winter months, but of course neither the 'famine' nor the lean Winter months ever come in our carb and sugar-laden Western diet. Not only that but we eat a huge amount of the stuff. Never before in human history have we ever eaten the quantity that is now consumed, neither has it been highly processed and adulterated (and rendered nutritionally devoid) to the nth degree. Some of it not only doesn't provide the body with any nutrition but it actually robs the body of valuable nutrients!

There are, of course, bad fats. Trans-fats, hydrogenated and heated vegetable oils (ever tried to scrape the fat off a fryer? Just imagine what that is doing to your insides!) are best avoided, but animal fats, butter, ghee coconut and olive oil are good fats and can be safely heated without turning into something evil. Fish oils and cod-liver oil are good sources of Omega oils and essential fatty acids - elements that are now recognised to be very necessary.

The body needs fats and oils. The brain is made up of something like 60% cholesterol and without enough fat the body can't make enough cholesterol for repair and rejuvenation. There needs to be cholesterol in the bloodstream. It is used to repair damage in the arteries.

I post on a low-carb forum. Many are saying that when they have gone low-carb, low to medium protein and higher fat not only have they lost weight (even though they are actually having a lot more calories), but their blood sugars have stabilised and lowered in the case of those who are Diabetic or borderline (which would also help those who suffer with hypoglycemia because they are triggered by the same thing - too many carbs) and their cholesterol levels have readjusted to much better levels.

I have really reigned in my carbs and try to keep them under about 40gms per day with most coming from fruit and veg (not starchy veg like potatoes, parsnips or more than a small amount of carrot), cooked and raw. I have also upped my fat intake and am drinking more water. The weight is starting to shift again.

Another plus is that the higher fat intake has resulted in me no longer craving the carbs and sugar or having the urge to snack and because I am no longer eating 'dead' carbs and my body is able now to get the nutrition it needs from the good food I am eating, I actually need less food. The more nutrition we can get from our food the less food the body actually needs.

Logical ain't it! Shame I never realised it years ago..................

It is really quite liberating................

shirleyujest Contributor
thanks for your reply back, however I don't eat steak, never could get myself to eat red meat other then hamburger as long as it's freshly ground from the butcher, I pretty much only treat myself to shrimp scampi over rice, at least that I know is safe. I truly believe I have a metabolism problem, and I think that is my next step. As for exercise of any kind that is out right now due to dr's orders, because I have achilles tendonitis as well as something else going on with my feet. I am waiting for more test results to come back.

Penny

What about swimming? Easier on the joints/connective tissue and you're not putting weight on your feet. Just an idea. Regarding diet, you said you eat minimal veggies and fruit. I eat a lot of both, from 3 - 6 cups a day of fresh/cooked. I use convenience, eg bagged romaine lettuce & pre-cut veggies which are pricier but it's a healthy indulgence bc I eat more if don't have to chop. You obviously have a very hectic lifestyle w/work and a 4-yr-old and your feet challenges going on. Can you cook big batch of healthy foods on weekends eg pasta sauce w/lots of veggies, casseroles and soups then freeze in portions to pull down during the week when you're zonked. I make chicken soup from a rotisserie chick from groc store, using boxed broth and add onion/veggies/rice; tastes homemade but cheat a lot. ;) Upping the proportion of veggies/fruit and enjoying carbs but in limited quantities is easiest way to change diet w/o rethinking everything. Can you invest in a food processor to cut prep time? Cooking from scratch is only sure way to be gluten-free, I just got glutened this week from potatoes in a local cafe.


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shirleyujest Contributor
What are you drinking? If soda, that will make you gain weight. You have to watch your liquid calories too. All I drink is water and iced tea and occasionally 100% juice. I have lost weight. I also eat mainly vegetarian with only meat at dinner. Sometimes I even eat vegetarian at dinner. I eat things like spaghetti with zuchinni and no meat, vegetable lasagna, and beans and rice dishes. I also have tried quinoa. The brown rice pasta is good. When I do eat meat, it is usually chicken or turkey. Hamburger on occasion as a treat. You have to let yourself have things you like to eat or you won't stick with it. I let myself have candy bar. I eat 3 Muskateers cause its lower in fat and calories. Chocolate covered fruit. Think of it as a lifestyle change not a diet. Cause you will gain the weight back if you go back to your old eating habits.
t sin

3 Muskateers is also my treat. I rarely ate them before but read here it's a gluten-free candy and I;ve had one almost every day for 2 months now and love it. That's my only dessert, rest of diet healthy so w/that regimen I've lost 4 pounds. Could lose a few more still but NOT giving up my candy bar. B)

shirleyujest Contributor
I drink a ton of water and herbal tea's, I don't drink soda too often, I do drink some flavored seltzer on occasion. I eat alot like you, vegetarian meals during the day and a meat meal at night. Unless I take leftovers to work from the day befores suppper. I make zucchini bakes with rice, now that the zucchini is ready for picking. I eat pasta maybe 1-2 times a week. I do not eat fried foods alot unless it's my infamous fried potatoes but even those are pretty healthy. I find myself eating alot of beans-refried beans, garbonzo beans, green beans, etc. My weakness is potato chips. I really think I have a metabolism problem and that is my next step with the dr. Unfortunately my current dr just left town and so I am in search of a new dr and I am rather frustrated seeings how this will be my 5th dr in the past 3 yrs. I am tired of rehashing everything and having the new dr do all the same test I have already been through. I have done that and I am not going through it again. I am lucky in the aspect of having insurance that allows me to see whoever I want without referrals. At least for now, I think that will change come next year. Who knows it could be due to my age, I am in my 40's and I know my mother and sister ballooned when they hit 40. Maybe it's genetics. Whatever the reason is I am not liking it and I am going to fight it every step of the way.

Thank you for responding I truly appreciate the feedback

Maybe when you have a craving for pot. chips (it could be the salt and crunch you're drawn to) eat some salted nuts or seeds? I eat blue diamond roasted almonds w/sea salt. Nuts have fat but it's the kind your body needs. It sounds like you're on the right track talking w/your doc... maybe get some nutritional testing? Sometimes vitamin deficiencies cause us to eat more. HTH

happy2bme Newbie

...

happy2bme Newbie

Its frustrating to have to add unhealthy items to gain weight. Keep on going on the testing and I wish you the best. I recommend parasite testing done in a stool test as well. Feel lucky. Not only are my child and I gluten intolerent but we also cannot have soy, dairy, potatoes,zuccini, eggs, rice, corn, most beans besides garbanzo and mung, any fruit or sugar, red meat and tomato sauce. Also no alternatives to grain. Drinking chicken broth and adding our favorite veggies sometimes throughout the day helps us keep on the weight. Lots of chicken. Maybe you could try cassava chips, rice crackers and gluten free cerials with almond, hemp or rice milk if you can have them. Some cardio is great as well. Oh and make sure you are totally gluten free. It can be hiding in bulk nuts and other grains, yellow mustard is a no no unless you buy a rice vinegar one. Many say they are gluten free because of the way it is processed but I have heard a lot of people who still had issues. I would stay away from going out to eat as well. Outback Steak House, PF Changs and a few others have a gluten free menu but many people have more sensitivities than they realize and other things may be adding to the problem??? Goodluck to you. =)

  • 2 weeks later...
RESO Apprentice

I really think I have a metabolism problem and that is my next step with the dr. Unfortunately my current dr just left town and so I am in search of a new dr and I am rather frustrated seeings how this will be my 5th dr in the past 3 yrs. I am tired of rehashing everything and having the new dr do all the same test I have already been through. I have done that and I am not going through it again. I am lucky in the aspect of having insurance that allows me to see whoever I want without referrals. At least for now, I think that will change come next year. Who knows it could be due to my age, I am in my 40's and I know my mother and sister ballooned when they hit 40. Maybe it's genetics. Whatever the reason is I am not liking it and I am going to fight it every step of the way.

Hi Penny,

As far as getting a new dr., make sure your old dr. sends your records to the new one, that way they will have all the info. In fact, insist on it so you don't have to deal with that, you have enough to worry about.

Have you had your thyroid tested? Hypothyroid and celiac go hand in hand, from what I have been told. That could cause the weight gain.

Good luck and I hope you feel better soon,

R

celiac-mommy Collaborator

I don't know if I'm the one you were referring to, with the weight loss info. I have helped out a few people here in the past and I do have a whole work-up of what I did to lose 100# and keep it off. I would be happy to share it with you as well, but-not to offend at all (!!!)-I don't think it will be what you're looking for. Exercise is a big part. Not just for the weight loss, but for mental well being also. I'm not talking about joining a gym, just moving (and sweating!!) 30-60 minutes a day, 4-6 days a week. I have 2 kids (4 and almost 8), I work full time and I get up an extra 30-60 minutes, depending on the day, to get my workout in. I'm like you, I'm not a night person and I like to go to bed early. As far as what we eat, I am (husband too) about 90% raw and vegetarian. I eat fruit all morning, have veggies of some sort with a sprouted corn tortilla and some avacado for lunch with an olive oil based dressing if I have a salad or a salad with a BIG handful of raw nuts and raisins. I usually have fruit and 70% chocolate for an afternoon snack and fish with more veggies for dinner, and amazing hot chocolate made with almond milk, Dagoba chocolate and honey (it DIVINE!!). I have read the book Raw Food Detox Diet and it's amazing. I hate HATE to use the word "diet" because it really has to be a lifestyle change forever, but you have to go easy on yourself and expect to have those nights where you eat whatever the hell you want (!!) and start over the next day. My husband wanted to read this book, he was referred by a friend, and I was totally supportive, because he needs to lose about 70#. I said I would be his cheerleader and do it with him, and I can honestly say, I've never felt better, had more energy, and I didn't think I needed to lose any more weight, yet I've lost 8# without even trying-and I'm eating ALL THE TIME!!! If I can help with anything or you want me to email you my weight loss plan, let me know, I'd be happy to help.

Erin Elberson Newbie

The bottom line is calories in vs calories out. You say you are fairly inactive, so chances are your calorie needs are fairly low. A fried potato here, a 3 musketeers there, shrimp scampi (which is loaded in butter), they add up. Research has shown that people underestimate their food intake by 50%. More than likely it's not a metabolism issue, although it could be, it's an issue of eating less and moving more. Not an easy answer, I know, but there is no magic pill or bullet.

A couple quick suggestions:

-If is has more than 3 ingredients don't eat it. Keep food as whole and unprocessed as possible. If it doesn;t have a label (ie;fruits, veggies, meats, potatoes) that's a good start.

-Write down what you eat. Every bite, if it goes in your mouth, it counts. Portion size is a huge (literally) issue in the US. Consider weighing your food, or at least become familiar with actual serving sizes.

-Do not drink any caloric beverages. None. Lots of water, tea, coffee. If you add milk or cream to your coffee be prepared to measure it and account for it in your daily calories.

-Eat plenty of lean protein-chicken, fish, lean red meat, eggs/egg whites, lowfat dairy

-Keep portion sizes under control especially with carbs like quinoa, oats, rice

-Monitor fat intake, esp trans fats. Healthy fats like nuts, olive oil, OK in small amounts

-Watch for caloric condiments like salad dressings, mayo, BBQ sauce. Get creative with mustards and vinegars, fresh and dried herbs, lemon and lime juice, garlic, for flavor

-Move. Walk. Stand. Get it in somehow. Expend some energy.

-Keep healthy food easily accessible and available so you have it when you are hungry.

Hope this helps, I know it's alot. Main thing is just to start. Make changes as you can, and keep moving forward.

Good luck!

Aellaraven Newbie

When I went gluten-free 5 years ago I gained about 20 pounds in one month, but since I had lost 35 lbs when undiagnosed I guess the 20 lb gain wasn't so bad. It just happens so quickly. I don't know anyone who loses weight when gluten-free because when we're undiagnosed, our metabolism slows right down and we are not taking in any nutrients/minerals. I was highly symptomatic and reacted very badly to gluten for 3 years before being properly diagnosed, so I lost 35 lb off my 6'1" frame...I was skeletal. So I gained the weight right back and I had to rush to eat healthy again. Eventually diet and weight balance if you eat enough veggies/fruit (I force myself to eat these since I do love carbs).

Also, exercise is key. I HIGHLY suggest PILATES! You work your core and stay off your feet. I got in shape post-diagnosis with pilates and biking. I love the Gaiam series with Ana Caban - check it out!! It works wonders, and each workout is only 30 minutes.

About the fries with steak from a previous post - every celiac who is sensitive should stay away from deep-fried foods at restaurants. Fries are usually deep-fried with other flour items (like onion rings) and the gluten stays in the oil and gets on the fries, or they are all tossed together. Also, some oils contain beek stock which has wheat in it, like McDonald's fry oil. And usually oil is filtered (poorly) and reused, so you can't be sure the oil is gluten-free. So I always get chicken (or other meat), veggies, and fruit bowls when eating out. I've never had trouble custom-ordering at any restaurant...always ask for chicken and salad, even when it's not on the menu (like at pasta restaurants). ;) You'd be surprised how accomodating restaurants are when they want your money!

Good luck with your health! We've all been there and next to finding gluten-free food, it's the next toughest challenge! :)

Chuck8268 Rookie
I have alot of post regarding weight gain/loss on gluten-free diets, I as well fall under the weight gain category. I don't eat hardly any pastas, I eat no bread. My diet consists of protein, from animal meats and beans, minimal fresh vegetables, some dairy, and very little fruit. My exercise is very minimal due to getting up early, working all day and into the early evening, contending with a 4 yr old, housework, etc. I am not a night person so I go to bed rather early because of my early start in the mornings. I read that someone does an email weightloss for Celiacs, if that person is reading I would love to get the link. I am only a few pounds over weight but I feel terrible. I initially losed a bunch of weight when I went gluten-free, plus I did a 30 day detox and lost more, since then I have gained it all back and then some. I dislike any of the rice pasta's and have yet to find a bread that is "tastey" and doesnt cost a fortune. I have found that my food bill has exploded since being gluten-free. Luckily I found a tastey pasta made of corn, but I fear that eating the corn could be what is putting weight on. My acupuncturist told me that corn puts alot of weight on woman around the mid section of their bodies--I have to believe her now. I hope someone can chime in on some advice for me. I am feeling rather frustrated since I am getting re-married next month and cant lose the weight.

For those who say this lifestyle isn't hard---bless them because where I live it's very difficult. Eating out does not occur, unless I eat salad. Oh Yippee!!! That would be great if I were a vegetarian, or vegan, but I am not, and to get meals specially cooked it cost a small fortune. So I make alot of my own meals, but as stated above time is limited so I can't prepare a ton of food ahead of time.

I sure hope someone has some really good advice for me. OH yes I have joined a celiac group but I only get newsletters because I can't make the meetings due to having to work, and this group is the only one in the area.

Our lifestyle is hard indeed,but we eat btter than most!A classic celiac will actually gain wight,post diagnosis,dur to the fact that you are now absorbing nutrients.

I dont trust eating out,even if its a gluten-free menu,remember,those COOKS are usually 16-18 yr. olds that want a paycheck,not making sure you havnt been cross-containenated!

Chuck

  • 2 weeks later...
sancan Newbie

penny_s - you aren't alone! I find myself in a similar situation. I have struggled with my weight my whole life - never obese but always "chunky" - and was diagnosed last year after 15 years of incorrect diagnoses. Going gluten free made all my GI symptoms disappear almost overnight but in the following months, I had the typical weight gain as my intestines healed. I suspect that there was some change in my caloric intake as I tried the gamut of gluten-free foods available at various health food stores but otherwise there was no change in my general eating patterns.

So fast forward a year. The 20 pounds gained last year hasn't budged; the doctor and nutritionist both say there's no reason why I shouldn't be losing weight given my eating and exercise habits; thyroid tests come back fine. So, now what? I can't realistically up my exercise as I'm currently training for an Olympic distance triathlon (1mi swim, 24m bike, 6m run) and already train 6-8 hours per week. I can't realistically cut calories below the 1500-1800 per day that I'm consuming without messing up my training. I do my best to get enough sleep, rarely eat anything packaged and don't drink soda.

I don't know what else to do and I'm working hard to accept that I am healthy and should be happy but the closet full of clothes that I fear will never fit me again does tend to depress me.

RESO Apprentice
penny_s - you aren't alone! I find myself in a similar situation. I have struggled with my weight my whole life - never obese but always "chunky" - and was diagnosed last year after 15 years of incorrect diagnoses. Going gluten free made all my GI symptoms disappear almost overnight but in the following months, I had the typical weight gain as my intestines healed. I suspect that there was some change in my caloric intake as I tried the gamut of gluten-free foods available at various health food stores but otherwise there was no change in my general eating patterns.

So fast forward a year. The 20 pounds gained last year hasn't budged; the doctor and nutritionist both say there's no reason why I shouldn't be losing weight given my eating and exercise habits; thyroid tests come back fine. So, now what? I can't realistically up my exercise as I'm currently training for an Olympic distance triathlon (1mi swim, 24m bike, 6m run) and already train 6-8 hours per week. I can't realistically cut calories below the 1500-1800 per day that I'm consuming without messing up my training. I do my best to get enough sleep, rarely eat anything packaged and don't drink soda.

I don't know what else to do and I'm working hard to accept that I am healthy and should be happy but the closet full of clothes that I fear will never fit me again does tend to depress me.

I know how you feel about exercising and caloric intake and not losing weight. While you are training for something like a triathlon/marathon, etc. you should not try to lose weight. You may actually gain a few pounds but don't worry, it's extra muscle and will drop off as soon as you stop training. This is not just my opinion, you can ask your doctor and nutritionist for backup.

Doctor and nutritionist say there's no reason you shouldn't be losing weight? Gee, thanks, that's helpful, right? Do they both know you're training for a triathlon? Every person on my marathon team gained weight, from the 22 year old thin and in-shape vegan soccer player to the slightly overweight woman in her 50s. But, funny enough, most of us lost pants sizes! Forget the scale for now and start measuring your waist, etc. to see if your composition changes. Every person on my marathon team also lost that weight after they quit training at that level.

Good luck with your triathlon, I hope it goes really well! and good luck with everything else too.

Renee

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    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
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