Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bowel Incontinence

Lynayah

Recommended Posts

Lynayah Enthusiast
Lynayah
Posted

Hello,

I know that diarrhea is a symptom of Celiac disease, but I am wondering: Has anyone here also suffered from bowel incontinence -- leaks that occur? Augh! Gross, I know. Sorry about that, but I just have to know if I'm not alone.

Thank you for any assistance.

Best,

Lyn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


digmom1014 Enthusiast
digmom1014
Posted

Definately! Especially when I get into glutten somehow. I have been gluten-free for almost 2 yrs. and it still happen's occasionally. Give yourself a chance to heal and check for hidden gluten in your foods. I also recently have started doing kegel excercises-you know the one's your supposed to do to get your muscle tone back after pregnancy. I read somewhere that they are supposed to help so, I figured it couldn't hurt to try.

Sometimes, it is just nice knowing that other's are struggling with the same problem's you are.

daphniela Explorer
daphniela
Posted

I had that after my gallbladder was removed. I always thought that was why I had issues.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes it can, especially if it has attacked the nervous system. I got a lot of help with this from a physical therapist who specialized in patients with issues of that type. My nerve damage was severe so I do have some residual issues but I am much better than I was. Your doctor can give you a script for the PT and insurance should cover it.

Lynayah Enthusiast
Lynayah
Posted
  • Author
Yes it can, especially if it has attacked the nervous system. I got a lot of help with this from a physical therapist who specialized in patients with issues of that type. My nerve damage was severe so I do have some residual issues but I am much better than I was. Your doctor can give you a script for the PT and insurance should cover it.

Thank you so much for this information. I do probably have nerve damage - numbness in toes and tingling in legs and arms. Told carpal tunnel for years, and perhaps that's true but I'm wondering if Celiac might have more to do with it. Time will tell.

I would be interested in hearing more about your nervous system issues.

Wow, can't believe how long you went without a proper diagnosis . . . or maybe I can . . . I'm 55 and just now beginning to understand what might have been wrong with me for so many years, including dangerously low Vit. D count - chronic, less than 6 (50 - 70 is good), which also caused problems.

Not sure if the Vit D thing caused the possible Celiac or vice/versa. So much to learn, here.

THANK YOU SO MUCH! I hope others will post here as well.

sixtytwo Apprentice
sixtytwo
Posted

Glad to hear there are other people with this problem. It seems to happen to me if I get glutened or if I eat a lot of things with artificial sugar, like candy that is sugar free. It is so uncomfortable that it can happen and we are out among the public.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you so much for this information. I do probably have nerve damage - numbness in toes and tingling in legs and arms. Told carpal tunnel for years, and perhaps that's true but I'm wondering if Celiac might have more to do with it. Time will tell.

I would be interested in hearing more about your nervous system issues.

Wow, can't believe how long you went without a proper diagnosis . . . or maybe I can . . . I'm 55 and just now beginning to understand what might have been wrong with me for so many years, including dangerously low Vit. D count - chronic, less than 6 (50 - 70 is good), which also caused problems.

Not sure if the Vit D thing caused the possible Celiac or vice/versa. So much to learn, here.

THANK YOU SO MUCH! I hope others will post here as well.

With the numbness and the tingling going on you should get some sublingual B12. Make sure it is gluten free and make sure it is sublingual (dissolves under the tongue). The B12 should help with that and it will help your nerves 'heal' more quickly as it helps them to fire correctly.

My nervous system issues impacted me much like MS, in part because I have gluten ataxia and because of that I have issues with balance. I also had memory problems and mood issues, some of which has resolved but not completely.

Celiac can cause nutrient deficincies so it is likely the celiac caused the low D not vice versa.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lynayah Enthusiast
Lynayah
Posted
  • Author
With the numbness and the tingling going on you should get some sublingual B12. Make sure it is gluten free and make sure it is sublingual (dissolves under the tongue). The B12 should help with that and it will help your nerves 'heal' more quickly as it helps them to fire correctly.

My nervous system issues impacted me much like MS, in part because I have gluten ataxia and because of that I have issues with balance. I also had memory problems and mood issues, some of which has resolved but not completely.

Celiac can cause nutrient deficincies so it is likely the celiac caused the low D not vice versa.

Thank you for the advice on the sublingual B12. I will try it.

Counting the days here until I see the Doc. I just want to know!

Lynayah Enthusiast
Lynayah
Posted
  • Author
Glad to hear there are other people with this problem. It seems to happen to me if I get glutened or if I eat a lot of things with artificial sugar, like candy that is sugar free. It is so uncomfortable that it can happen and we are out among the public.

Yes, it can be a real nightmare. You're soooooo not alone!

Lynayah Enthusiast
Lynayah
Posted
  • Author

Ravenwoodglass,

I want to thank you most dearly for all your posts -- here and elsewhere. They have helped me so much.

ravenwoodglass Mentor
ravenwoodglass
Posted
Ravenwoodglass,

I want to thank you most dearly for all your posts -- here and elsewhere. They have helped me so much.

Your welcome. I had such a long road to diagnosis and so much damage. Trying to help others not have to go through the same thing makes it seem those years of pain had a purpose. I hope the B12 helps you and if the incontinence continues even after your bowels are more regular do not be afraid to ask for a referral to a physical therapist that specializes in those issues. The PT I went to was the one who was really responsible for my finally getting a diagnosis. I had given up by then and she nagged me for over a month to see an allergist. His prescribed elimination diet was able to pinpoint the gluten issue and then my GI finally listened and I was able to be diagnosed.

  • 3 weeks later...
Lynayah Enthusiast
Lynayah
Posted
  • Author
Glad to hear there are other people with this problem. It seems to happen to me if I get glutened or if I eat a lot of things with artificial sugar, like candy that is sugar free. It is so uncomfortable that it can happen and we are out among the public.

I've since talked with others who have the same problem. We're sooooooo not alone. Problem is, we never want to talk about it, so it goes hidden. I'm so glad for the responses to this post.

Thanks again.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
    2. tiffanygosci
      - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache...
    4. trents
      - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women...
    5. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,974
    • Most Online (within 30 mins)
      7,748
    LRB
    Newest Member
    LRB
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.