Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Milk Issues


txplowgirl

Recommended Posts

txplowgirl Enthusiast

Hi evryone,

I've got a question. Still new to this gluten-free thing. My sweetie and I are having a disagreement. I have been drinking 2% milk for years but it looks like I might be having milk issues, so my question is would going to lactose free milk work? My sweetie is telling me he thinks just going to totaly skim milk would be ok or watering the 2% down or even getting milk powder should work ok. He dosen't want me to drop milk altogether and/or drink the lactaid milk because he dosen't think it's neccessary. I don't seem to be having any other dairy problems except with block cheese, any ideas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jststric Contributor

I don't know that lowering your fat content will solve your problem, but everyone is different. I started out being lactose-intolerant before my gluten issues kicked it. I was living in WI at the time (LOVED all my cheeses, frozen custards, etc.) and as it kicked in only choice items was bothering me. It took years for all of it to be a problem. ANd I was dairy-intolerant 15 yrs before the glutens and other food suddenly kicked in. Since doing online research I've learned that many Celiacs and gluten-intolerant folks are also dairy-intolerant. There are many options with the lactose-free products and also other kinds of milks like soy, rice, almond, hemp, etc. You will just have to do some experimenting. Good luck!

The Fluffy Assassin Enthusiast
Hi evryone,

I've got a question. Still new to this gluten-free thing. My sweetie and I are having a disagreement. I have been drinking 2% milk for years but it looks like I might be having milk issues, so my question is would going to lactose free milk work? My sweetie is telling me he thinks just going to totaly skim milk would be ok or watering the 2% down or even getting milk powder should work ok. He dosen't want me to drop milk altogether and/or drink the lactaid milk because he dosen't think it's neccessary. I don't seem to be having any other dairy problems except with block cheese, any ideas?

There are two possible problems from milk, lactose and casein. If your problem is with lactose intolerance, just buy Lactaid pills (or store-brand equivalent). There isn't any such thing as lactose-free milk; they just add lactase (which is what's in Lactaid).

If your problem is casein intolerance (or sensitivity or allergy), then you're going to have to cut out all dairy. Casein is actually more concentrated the less fat there is in the milk, so your 2% milk has more casein than whole milk does. I was using powdered skim milk on my cereal; it has the most of all. You might want to switch to whole milk to see if your symptoms get better or skim milk to see if they get worse. Do it along with the Lactaid to make sure it isn't just lactose intolerance.

Many many celiacs develop lactose intolerance; as you'll see from my signature, mine went away eventually. I only recently figured out that I'm casein intolerant, though; the symptoms and signs are much more subtle.

Good luck to you, and I hope you find your answer soon.

Becci Enthusiast

I have a problem with milk, and cannot drink regular milk at all.

I drink Blue Diamond Almond Breeze Almond Milk.

It is really good!!! :D They have regular, chocolate and vanilla

But I would not drink milk at all.

Takala Enthusiast

Almost all adults become somewhat lactose (milk sugar) intolerant after age 40.

Earlier is another sign of celiac and gluten intolerance.

You may be able to still tolerate gluten-free yogurt or hard aged cheeses, where the lactose is aged out. Diluted yogurt can be used on cereal.

Watering down regular milk won't do a thing. Skim or milk powder also will not help.

If you are noticing more problems with fatty products, it's because another symptom of gluten intolerance is the liver and gall bladder having trouble handling the fats, which may go away over time as you stick to a gluten free diet.

If it is casein, milk protein, you can't work around it and will either have to substitute or suffer the consequences.

JayinUT Newbie

I am a celiac with lactose intolerance. My gastro told me I'll probably always be lacto intolerance. I've tried Soy Milk but my wife gets diarrhea with it so we went to Rice Milk (she is allegeric to nuts so no Almond milk though I like it!). Then I tried lactose free milk with no problems.

Warning!!!!! I have an email from the makers of the lactaid pills that their product is gluten free (if you want a copy, I can forward it, let me know). However, the store generics are NOT always gluten free. I assumed because Lactaid was gluten free that the generic would be and bought a bottle of Western Family from local grocery store and began using it. Two weeks later I knew I had been fighting a gluten issue and couldn't figure out where I was getting it (we are gluten free in the home). I then read the generic lactaid and in small print (and dummy me, I know better) I read that wheat was a component. At that point I decided to pay the extra for Lactaid regardless. I know based on their email they are gluten free. That was three weeks ago and I am just now starting to feel better. Lesson learned.

newlyfoundglutener Newbie
I have a problem with milk, and cannot drink regular milk at all.

I drink Blue Diamond Almond Breeze Almond Milk.

It is really good!!! :D They have regular, chocolate and vanilla

But I would not drink milk at all.

Can't say that I understand the cravings for glutens necessarily. Apparently, I've had this most of my life and tended to avoid most breads and pastas. But I wanted to let you know what I've done with a small budget. If you have a Walmart near you, they have great deals on frozen tilapia. Here it's about $11 or $12/box but you get a lot of fish for that price. Also, we stock up whenever there is a sale on canned veggies. They really come in handy and give you the nutrients you need. As for breading, my dear hubbed has learned to use potato flakes or rice flour or even potato chips! :-> He's the cook in the family. I also have fibromyalgia and tend to forget what's on the stove or where I am in a recipe.

Oh and if you like peanut butter (and can have it and eggs), there's always peanut butter cookies.

1 cup peanut butter

1 cup sugar

1 egg

Cream sugar and egg together then mix in the peanut butter. Bake at 350 degrees for 10-12 minutes. Yummmmmmmmm.

I also have a great recipe for crab cakes if anyone wants it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ENF Enthusiast

I stopped consuming all cow's milk product several years ago, and have used Vance's DariFree potato milk as a substitute.

Goat's milk products are more easily digestible by people who have problems' with cow milk. I've had it in the past, and plan on getting some goat milk cheese, and yogurt, later today. Recent studies suggest that it is healthier, for many people, than cow's milk.

Crayons574 Contributor

would you be willing to switch to a rice milk, soy milk (if you are not intolerant to soy), or almond milk? there are some good gluten free ones out there. i use Pacific rice milk with no problems. it's gluten free and casein/dairy free. good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    3. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    5. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.