Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time For Exhaustion To Go Away


Knoppie

Recommended Posts

Knoppie Apprentice

When I first went off gluten, my stomach stopped bloating after about 5 days, but I felt much less tired after about 2.

Now I'm tired again and I've been off gluten for about a month now. Is this normal? I've tried to see if there's any way gluten might still be sneaking into my diet. I read that it can be in teabags but I still used those when I first felt better. The bloating has stopped but I can't seem to rid myself of the exhaustion.

Does anyone have an explanation or advice? and how long does it take then to start feeling less tired?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Have you had your B12 tested? Or your iron level? Most people with a gluten intolerance also have low levels of B12. Do you take vitamins?

The fatigue never went away for me. I didn't realize how bad it was until my neuro diagnosed sleep apnea. I thought the way I felt was "just me". I have been gluten free for 9 years, and have been searching for years for a reason why I feel the way I do.

Get your B12 tested, and let us know what the level is. Most doctors will tell you a level of 200 is good, but it isn't, it's too low. They tell me my level is wonderful, but if I stop taking my B12 for even 3 days, I can tell. My level is 1018, and I take more B12 now than I did 3 years ago when my level was 1237. I will have to take B12 forever.

OptimisticMom42 Apprentice

I've been gluten free (not counting learning curve mistakes) for five months. I've just started seeing a difference. I'm getting more work done and sleeping a lot less. I even stay up and watch a movie with my teenagers now and then. :rolleyes:

Everybody is different so........ Good Luck, I hope you are feeling chipper soon!

OptimisticMom42 Apprentice

Are there other signs that it's a B12 issue? I've been thinking about adding some but I'm not going to another dr., barring an emergency, until the bills have all been paid.

Thanks RA

Knoppie Apprentice
Have you had your B12 tested? Or your iron level? Most people with a gluten intolerance also have low levels of B12. Do you take vitamins?

The fatigue never went away for me. I didn't realize how bad it was until my neuro diagnosed sleep apnea. I thought the way I felt was "just me". I have been gluten free for 9 years, and have been searching for years for a reason why I feel the way I do.

Get your B12 tested, and let us know what the level is. Most doctors will tell you a level of 200 is good, but it isn't, it's too low. They tell me my level is wonderful, but if I stop taking my B12 for even 3 days, I can tell. My level is 1018, and I take more B12 now than I did 3 years ago when my level was 1237. I will have to take B12 forever.

Both my iron and B12 levels are low. I started taking injections for B12 which I used to take but stopped. I also started taking an iron supplement again which i stopped because I was afraid it might have gluten in it, I can't find out if it's in medication in Egypt. The others are way too expensive. If I get my iron up how soon should I start feeling better? Will my iron levels stay up or will I have to keep on taking iron like I always had to do?

tarnalberry Community Regular
Both my iron and B12 levels are low. I started taking injections for B12 which I used to take but stopped. I also started taking an iron supplement again which i stopped because I was afraid it might have gluten in it, I can't find out if it's in medication in Egypt. The others are way too expensive. If I get my iron up how soon should I start feeling better? Will my iron levels stay up or will I have to keep on taking iron like I always had to do?

B-12 and iron levels being low will certainly make you tired. Do try to find out if there's any iron supplement you can take, or consider getting one shipped from overseas. You can also start cooking with a cast iron pan in order to get more iron (particularly if cooking acidic foods).

Whether levels will stay up or not depends on why the levels were down in the first place. You may not need to, but you might. Generally, low iron is not a 'cause' all of its own, something is causing the body to either not store, or use up, too much iron. (Though, the cause can just be diet related, it can also be a physiological process.)

ang1e0251 Contributor

I didn't see a dr to take sublingual B12 (methyl type). You can't overdose on it, extra just flushes out of your system. I tried it and I feel so much better. If I skip, forget, a couple of days, I'm draggin' my tail again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748

    Melissa McGowan
    Newest Member
    Melissa McGowan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.