Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time For Exhaustion To Go Away


Knoppie

Recommended Posts

Knoppie Apprentice

When I first went off gluten, my stomach stopped bloating after about 5 days, but I felt much less tired after about 2.

Now I'm tired again and I've been off gluten for about a month now. Is this normal? I've tried to see if there's any way gluten might still be sneaking into my diet. I read that it can be in teabags but I still used those when I first felt better. The bloating has stopped but I can't seem to rid myself of the exhaustion.

Does anyone have an explanation or advice? and how long does it take then to start feeling less tired?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Have you had your B12 tested? Or your iron level? Most people with a gluten intolerance also have low levels of B12. Do you take vitamins?

The fatigue never went away for me. I didn't realize how bad it was until my neuro diagnosed sleep apnea. I thought the way I felt was "just me". I have been gluten free for 9 years, and have been searching for years for a reason why I feel the way I do.

Get your B12 tested, and let us know what the level is. Most doctors will tell you a level of 200 is good, but it isn't, it's too low. They tell me my level is wonderful, but if I stop taking my B12 for even 3 days, I can tell. My level is 1018, and I take more B12 now than I did 3 years ago when my level was 1237. I will have to take B12 forever.

OptimisticMom42 Apprentice

I've been gluten free (not counting learning curve mistakes) for five months. I've just started seeing a difference. I'm getting more work done and sleeping a lot less. I even stay up and watch a movie with my teenagers now and then. :rolleyes:

Everybody is different so........ Good Luck, I hope you are feeling chipper soon!

OptimisticMom42 Apprentice

Are there other signs that it's a B12 issue? I've been thinking about adding some but I'm not going to another dr., barring an emergency, until the bills have all been paid.

Thanks RA

Knoppie Apprentice
Have you had your B12 tested? Or your iron level? Most people with a gluten intolerance also have low levels of B12. Do you take vitamins?

The fatigue never went away for me. I didn't realize how bad it was until my neuro diagnosed sleep apnea. I thought the way I felt was "just me". I have been gluten free for 9 years, and have been searching for years for a reason why I feel the way I do.

Get your B12 tested, and let us know what the level is. Most doctors will tell you a level of 200 is good, but it isn't, it's too low. They tell me my level is wonderful, but if I stop taking my B12 for even 3 days, I can tell. My level is 1018, and I take more B12 now than I did 3 years ago when my level was 1237. I will have to take B12 forever.

Both my iron and B12 levels are low. I started taking injections for B12 which I used to take but stopped. I also started taking an iron supplement again which i stopped because I was afraid it might have gluten in it, I can't find out if it's in medication in Egypt. The others are way too expensive. If I get my iron up how soon should I start feeling better? Will my iron levels stay up or will I have to keep on taking iron like I always had to do?

tarnalberry Community Regular
Both my iron and B12 levels are low. I started taking injections for B12 which I used to take but stopped. I also started taking an iron supplement again which i stopped because I was afraid it might have gluten in it, I can't find out if it's in medication in Egypt. The others are way too expensive. If I get my iron up how soon should I start feeling better? Will my iron levels stay up or will I have to keep on taking iron like I always had to do?

B-12 and iron levels being low will certainly make you tired. Do try to find out if there's any iron supplement you can take, or consider getting one shipped from overseas. You can also start cooking with a cast iron pan in order to get more iron (particularly if cooking acidic foods).

Whether levels will stay up or not depends on why the levels were down in the first place. You may not need to, but you might. Generally, low iron is not a 'cause' all of its own, something is causing the body to either not store, or use up, too much iron. (Though, the cause can just be diet related, it can also be a physiological process.)

ang1e0251 Contributor

I didn't see a dr to take sublingual B12 (methyl type). You can't overdose on it, extra just flushes out of your system. I tried it and I feel so much better. If I skip, forget, a couple of days, I'm draggin' my tail again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    2. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    3. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    4. - pdm1981 replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    5. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,850
    • Most Online (within 30 mins)
      7,748

    Roselle
    Newest Member
    Roselle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dawn Meyers
      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
    • Dawn Meyers
      Mayo is great and yes I had the same experience.  They take you seriously and they check everything.  I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.  
    • pdm1981
      When I went to the Mayo Clinic back in 21' it was pretty amazing. The doctor sat and went over everything with me for a couple hours. I finally had to ask him if he had other patient to see. He said that not until he was done with me. I went back to my hotel room that day after some blood work and then got an itinerary of tests to be done over the next 5 days. It was unbelievable. I had what would've been 4 years of testing back home done in 5 days. I went home at the end of 5 days and got my results a week later on a zoom call. EPI and rapid gastric emptying syndrome. I do have celiac disease but that wasn't the cause of my continued symptoms. Those people up there are great. Wouldn't that be amazing if all medical care was like that?  That's weird that the antibodies are that high. Hopefully it's not refractory celiac disease. Good luck.
    • Dawn Meyers
      Antibodies my number is in 500's. COVID hit and I was  layed off from my job so no insurance (was in Arizona) so couldn't complete all the other testing they wanted to do. Back home and contacted Minnesota Mayo and they take my new insurance so considering going back in spring. 
×
×
  • Create New...