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This Normal For Gluten Intolerance?

loxleynew

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loxleynew Apprentice
loxleynew
Posted

So is it normal for people with gluten intolerance to be able to eat gluten in moderation? Ive been testing it out and seemingly I can eat it as long as it's in moderation and there are no ill effects. Maybe i'm not even gluten intolerant and the doctor was retarded?

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TiffLuvsBread Rookie
TiffLuvsBread
Posted
So is it normal for people with gluten intolerance to be able to eat gluten in moderation? Ive been testing it out and seemingly I can eat it as long as it's in moderation and there are no ill effects. Maybe i'm not even gluten intolerant and the doctor was retarded?

You may have gotten a false positive if you were tested (?), I can't even eat peanuts that say "manufactured on shared equipment with wheat" or I get violently ill. If I were to even eat bread in moderation I would swear I was dying. I took a bite of a bratwurst last month (no bun obv.) and swallowed it before I realized it tasted like pure beer - sick as a dog - one bite.

But with that said all people are different. But the way this works in your body I don't know that you could eat 'in moderation' without feeling some kind of effect, unless you are a sleeper Celiac which I hear also exists. To me they are like unicorns ( :P ) but I do hear that people can have it without actually feeling the effects.

If this is the case, you need to still be very very strict with your diet if you had a positive test, because even if you don't feel symptoms your small intestine is still breaking down and you expose yourself to a myriad of health-issues that you really won't want to deal with (higher cancer rate, infertility . . .)

Just my 2c! Best of luck!

Penny-M Newbie
Penny-M
Posted

I have to ask if you were diganosed with Celiac or not. Myself, I am not a "common celiac". I have been tested to where myself and my father carry the genetic marker but we show no signs of other celiac indicators. However, I have been skin tested to where I am highly allergic to wheat, oats, barley and rye. I tried an accupuncture and she gave up because I showing no signs of over coming the allergy. s I do have scarring on my intestines which is a sign of damage from Gluten. I get extremely bloated with intense abdominal pain. I do not vomit, havent since I was a baby, so I remain ill for days after eating anything with gluten. When I first started on this trek, I experimented with different wheat products, and I found that I thought I could eat some things with wheat however everytime I would experience a different symptom, sometimes different from what I was used to, so I wouldn't think it was related. After going to a gastrointestinal dr and I told him of this, he told me to never eat gluten again because even though I may not feel the same symptoms the end result is damage to my internal organs. He did do the endoscopy and that is where we found the damage. I also believe that due to the fact I have an auto immune deficiency I don't absorb nutrients properly which doesn't help. My father suffers from abdominal pain, bloat and gas but he continues to eat wheat. So I have to say it's what you are willing to do for yourself. Just keep in mind that you could be damaging your organs with every bite you take. I dont want to scare you but I feel being honest is what you are looking for.

ang1e0251 Contributor
ang1e0251
Posted

How were you diagnosed?

loxleynew Apprentice
loxleynew
Posted
  • Author
I have to ask if you were diganosed with Celiac or not. Myself, I am not a "common celiac". I have been tested to where myself and my father carry the genetic marker but we show no signs of other celiac indicators. However, I have been skin tested to where I am highly allergic to wheat, oats, barley and rye. I tried an accupuncture and she gave up because I showing no signs of over coming the allergy. s I do have scarring on my intestines which is a sign of damage from Gluten. I get extremely bloated with intense abdominal pain. I do not vomit, havent since I was a baby, so I remain ill for days after eating anything with gluten. When I first started on this trek, I experimented with different wheat products, and I found that I thought I could eat some things with wheat however everytime I would experience a different symptom, sometimes different from what I was used to, so I wouldn't think it was related. After going to a gastrointestinal dr and I told him of this, he told me to never eat gluten again because even though I may not feel the same symptoms the end result is damage to my internal organs. He did do the endoscopy and that is where we found the damage. I also believe that due to the fact I have an auto immune deficiency I don't absorb nutrients properly which doesn't help. My father suffers from abdominal pain, bloat and gas but he continues to eat wheat. So I have to say it's what you are willing to do for yourself. Just keep in mind that you could be damaging your organs with every bite you take. I dont want to scare you but I feel being honest is what you are looking for.

I did genetic testing and they said I did not have the markers for it and that means i ahve a 90% chance of not ever having celiac. Then I did a blood and stool test which said I was allergic to gluten. So whatever i'm lost and confused. This is retarded and everything.

loxleynew Apprentice
loxleynew
Posted
  • Author
How were you diagnosed?

Through blood and stool test. Genetic blood test was negative.

ang1e0251 Contributor
ang1e0251
Posted

Was your blood test a celiac panel? Can you post the results here?

You said you did not have the genetic markers for celiac disease. CAn you also post those results here? The medical community recognizes different genetic markers in different parts of the world. It might help your confusion if you post your results here for a "second opinion".

Also back to your original question, yes, some can have celiac disease or GI and still not have symptoms. Some people are asymptomatic but still get the internal damage without feeling it. You want to avoid the organ damage if you are intolerant or have celiac disease.

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    • rei.b
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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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