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New Member To The Glueton Free Life

Stiffy

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Stiffy Newbie
Stiffy
Posted

Hey I just got back from the VA (veterans affairs) hospital and they got the results back from a upper endosocpy that tested positive for celiac disease. I am a Iraq vet with no history of this in my family, or any symptoms. If anyone could give me some help on anything and everything that would be awesome of you thanks.

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Krysten Newbie
Krysten
Posted

I would get elisabeth Hasselbeck's book on the gluten-free Diet because she talks about how to grocery shop & things to watch out for so you don't get sick in restaurants and how to avoid getting sick from cross contamination (like if you put your gluten-free toast in a toaster that has wheat crumbs in it). Basically the book gave me info that drs didn't tell me when I 1st found out I had celiac. I wrote a review on it & basically I felt that if I had that book when I 1st got diagnosed, it would have saved me a lot of grief.

CeliacAlli Apprentice
CeliacAlli
Posted

Elizabeth Hasselback's book really does have some great information on celiac disease. It explains basically everything you need to know and should help you a lot!

If you have any questions feel free to ask!

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Celiacs Disease:A Hidden Epidemic was very helpful. It really explains what is happening inside your body. I'm stubborn, I always follow the rules if I know why I have to! Being military you are probably less rebellious than I am but it's still good to know why the diet works and why you can not cheat.

tarnalberry Community Regular
tarnalberry
Posted

I encourage you to spend a little time around here reading everything you can.

I'm not really sure where to direct any help.

Do you have an idea of what foods you should and shouldn't eat?

Do you have an idea of how you're going to change what you have in your home?

Do you know about cross-contamination in your kitchen, and in other foods?

Do you know how you're going to handle this with friends/family?

Do you have special considerations (a job with travel, etc.) that complicate things?

  • 2 months later...
Paul Jackson Rookie
Paul Jackson
Posted

A new, online support group serves communities along I-105, including Norwalk, California. In response to your request, "Stiffy," I'd like to invite you to visit, and to consider joining this group:

Open Original Shared Link

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    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
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