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New Member To The Glueton Free Life


Stiffy

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Stiffy Newbie

Hey I just got back from the VA (veterans affairs) hospital and they got the results back from a upper endosocpy that tested positive for celiac disease. I am a Iraq vet with no history of this in my family, or any symptoms. If anyone could give me some help on anything and everything that would be awesome of you thanks.


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Krysten Newbie

I would get elisabeth Hasselbeck's book on the gluten-free Diet because she talks about how to grocery shop & things to watch out for so you don't get sick in restaurants and how to avoid getting sick from cross contamination (like if you put your gluten-free toast in a toaster that has wheat crumbs in it). Basically the book gave me info that drs didn't tell me when I 1st found out I had celiac. I wrote a review on it & basically I felt that if I had that book when I 1st got diagnosed, it would have saved me a lot of grief.

CeliacAlli Apprentice

Elizabeth Hasselback's book really does have some great information on celiac disease. It explains basically everything you need to know and should help you a lot!

If you have any questions feel free to ask!

OptimisticMom42 Apprentice

Celiacs Disease:A Hidden Epidemic was very helpful. It really explains what is happening inside your body. I'm stubborn, I always follow the rules if I know why I have to! Being military you are probably less rebellious than I am but it's still good to know why the diet works and why you can not cheat.

tarnalberry Community Regular

I encourage you to spend a little time around here reading everything you can.

I'm not really sure where to direct any help.

Do you have an idea of what foods you should and shouldn't eat?

Do you have an idea of how you're going to change what you have in your home?

Do you know about cross-contamination in your kitchen, and in other foods?

Do you know how you're going to handle this with friends/family?

Do you have special considerations (a job with travel, etc.) that complicate things?

  • 2 months later...
Paul Jackson Rookie

A new, online support group serves communities along I-105, including Norwalk, California. In response to your request, "Stiffy," I'd like to invite you to visit, and to consider joining this group:

Open Original Shared Link

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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