Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac's & Menstrual Issues

amh04

By amh04
in Related Issues & Disorders

Recommended Posts

amh04 Newbie
amh04
Posted

I have been Gluten Free for 3 years now, I'm 24 years old. Previously I was on Birth control, but have been birth control free for about 1 year. In the past 3 or so months I have only had one period, its absolutely impossible that I'm pregnant. Prior to birth control I maintained a regular period. I have never been tested for Celiac's, but wondering if prior to going Gluten Free had I possibly done internal damage beyond repair that could being causing my menstrual issues. Maybe this is totally unrelated and it could be another health issue i.e. thyroid issues which run in my family. However curious if any others could lead me in the right direction or know of any links between celiacs and menstrual issues. Also, should be noted I maintain a normal weight, prior to gluten free I was actually a little heavier, but I'm very active, eat well and maintain a normal healthy weight, so missed menses is not because I'm underweight.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CaraLouise Explorer
CaraLouise
Posted

I am also 24 years old and I have not had a real period in over 5 years. They contributed it to hypothalamic dysfunction, however I am not sold on the idea. I was really overweight and then underweight, now I am on the low side of the weight scale, but I am healthy and eat right. I was on birth control for awhile, but it made me feel awful, so I quit taking it (haven't told my doctors yet). Feel free to message me more, it is nice to know someone my own age who is experiencing this.

amh04 Newbie
amh04
Posted
  • Author
I am also 24 years old and I have not had a real period in over 5 years. They contributed it to hypothalamic dysfunction, however I am not sold on the idea. I was really overweight and then underweight, now I am on the low side of the weight scale, but I am healthy and eat right. I was on birth control for awhile, but it made me feel awful, so I quit taking it (haven't told my doctors yet). Feel free to message me more, it is nice to know someone my own age who is experiencing this.

Hi, Cara

I just looked into hypothalamic dysfunction because I hadn't heard of it before, I'm wondering if you suffer from the frequent urination as well? I'm at a loss at this point, and now I'm also without insurance and not sure I can afford to get to the bottom of this. I thought I had pinpointed Gluten as the culprit but with the lack of period now along with other systems I no longer believe are "normal" I'm wondering what this could be. How long have you been Gluten Free and did you notice changes with the diet? Did you notice your weight loss after going gluten free? I was about 15 pounds heavier before gluten free on a small 5"2 frame, but all that weight loss was pure inflammation from what I believe to be the gluten. Also good to have found someone my age that is can relate, good luck and hope to hear from you.

NicoleAJ Enthusiast
NicoleAJ
Posted

The problems may not be related to celiac at all. I'm 29 and used to have regular periods, but then I went on the Nuvaring when I started to have ovarian cysts bursting frequently. I've been off of birth control for about 9 months, and in the past 110 days, I've only ovulated once. I just went to my obgyn two weeks ago, and she said everything looks normal and my pap was fine, but I have oligoovulation--it's not really something that's dangerous, and it doesn't necessarily stem from something more serious (after running all of the appropriate tests). She said it's not really a problem, except that it can be more of a challenge to conceive since you never really know when you're ovulating. My grandmother, who's not from the side of the family that the celiac came from, used to have the same problem, and she ended up having 4 children, so for now I'll just cross my fingers that I'll ovulate again soon, but I won't really worry about it too much. The doctor said if I'm really anxious to get pregnant, I can try Clomid, but that at my age, it's not necessary.

daphniela Explorer
daphniela
Posted

I am 29 years old. I have always had issues with my period. I have never had regular periods. I have gone 18 months without a period. I started to have regluar periods about 45 days apart after going gluten free. Now I am not having any. The doctors don't know the cause. I was on birth control when I was 16 to reglulate my periods. I took myself off of it because I had severe PMDD with it. I would literally blackout and not remember anything I said or did. I was told on an amenorrhea forum not to use birth control for this problem. It can make you become infertile. It is better to practice Natural Family Planning.

CaraLouise Explorer
CaraLouise
Posted

We must be about the same size. I am 5'2" as well and yes I do have frequent urination. I was on medication for awhile but it didn't help a whole lot and I like you believe my overweight (I lost 80 lbs in like 4 months - don't know how, I guess I just deflated) was from inflammation. Let me know what you find out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    2. Scott Adams
      0

      Gluten-Free Cantonese Steamed Fish with Ginger, Scallions, and Sizzling Oil

    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin...
    4. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    5. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.