Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lingering Symptoms?


healthyagain

Recommended Posts

healthyagain Newbie

i am new to this blog, and looking for answers. i spent the better part of last week hospitalized with abdominal pain and fever, and was finally released with no answers as to the cause of my pain. and the pain has not diminished, although i no longer have the fever. i have not been diagnosed with celiac (i finally have an appt on monday), but have been told i have a sensitivity to gluten. my question is-can symptoms remain even after i have removed gluten from my diet? i would appreciate any information anyone has that may help me. thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast
i am new to this blog, and looking for answers. i spent the better part of last week hospitalized with abdominal pain and fever, and was finally released with no answers as to the cause of my pain. and the pain has not diminished, although i no longer have the fever. i have not been diagnosed with celiac (i finally have an appt on monday), but have been told i have a sensitivity to gluten. my question is-can symptoms remain even after i have removed gluten from my diet? i would appreciate any information anyone has that may help me. thank you.

The short answer is yes. Some people take months or years to heal. The big thing to know is that to be diagnosed formally with celiac disease, you have to keep eating gluten. As you have already been told that you are sensitive to gluten, this would probably be a bad idea. It would be best to go gluten-free now, and perhaps spend your Monday appointment exploring other possible sensitivities or possible explanations for your abdominal pain. Or you can try the Mayo Clinic's Symptom Checker: Open Original Shared Link (You don't have to put checks under Caused by or Relieved by; I checked since you clearly indicated that the doctors hadn't found a cause and the pain hasn't been relieved.)

burdee Enthusiast
i am new to this blog, and looking for answers. i spent the better part of last week hospitalized with abdominal pain and fever, and was finally released with no answers as to the cause of my pain. and the pain has not diminished, although i no longer have the fever. i have not been diagnosed with celiac (i finally have an appt on monday), but have been told i have a sensitivity to gluten. my question is-can symptoms remain even after i have removed gluten from my diet? i would appreciate any information anyone has that may help me. thank you.

I agree that you can have lingering intestinal/abdominal symptoms after being diagnosed with celiac disease and abstaining from gluten. After I abstained from gluten, my lingering symptoms motivated me to get the ELISA (blood) test for delayed reaction food allergies. That test diagnosed my 6 other food alergies. However, I still had lingering symptoms, whcih I later learned were caused by bacterial infectioins. If you ever took antibiotics, but did not follow that treatment with probiotics, you could have bacterial imbalance or infection. I've had 3 bacterial infections, a parasite and candida (fungus). My last infection was from clostridium difficile or 'c-diff' which is very common (and very contagious) in hospitals.

I suspect your 'fever' is more indicative of a bacterial infection, than food intolerance or allergy. Ask your doctor to give you a stool test for bacterial imbalance. If you do have a bacteria and treat that with an antibacterial drug, be sure to take probiotics afterwards to restore the good bacteria, which the antibacterial drug destroys.

healthyagain Newbie
The short answer is yes. Some people take months or years to heal. The big thing to know is that to be diagnosed formally with celiac disease, you have to keep eating gluten. As you have already been told that you are sensitive to gluten, this would probably be a bad idea. It would be best to go gluten-free now, and perhaps spend your Monday appointment exploring other possible sensitivities or possible explanations for your abdominal pain. Or you can try the Mayo Clinic's Symptom Checker: Open Original Shared Link (You don't have to put checks under Caused by or Relieved by; I checked since you clearly indicated that the doctors hadn't found a cause and the pain hasn't been relieved.)

thank you for replying to my original post. i had my appt this morning and the doctor ordered an endoscopy and a colonoscopy. he said he doesn't think i present with celiac symptoms, but also ordered a blood test to be sure. i asked if certain foods could be causing my problems. he said it could be food, but that there are no tests to check for food sensitivities. just wondering if that is true, and if so, how do i know if food is causing my distress? also, is a blood test the way to test for celiac? thanks so much.

The Fluffy Assassin Enthusiast
thank you for replying to my original post. i had my appt this morning and the doctor ordered an endoscopy and a colonoscopy. he said he doesn't think i present with celiac symptoms, but also ordered a blood test to be sure. i asked if certain foods could be causing my problems. he said it could be food, but that there are no tests to check for food sensitivities. just wondering if that is true, and if so, how do i know if food is causing my distress? also, is a blood test the way to test for celiac? thanks so much.

If he's a gastroenterologist, he could give you the hydrogen breath test for fructose malabsorption or for lactose intolerance. You might also consider consulting an allergist to see if you have any food allergies (or other allergies) that might be causing problems. He's right that there aren't tests that will detect most food sensitivities. The main way you find them is by keeping a food diary and running a series of elimination diets. Most of us find that the first thing to eliminate is milk, with soy running second.

Just curious: how did he determine you had a sensitivity to gluten, or did somebody else tell you that you're sensitive?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

    2. - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

    3. - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

    4. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

    5. - Scott Adams replied to oscarbolduc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Advice while waiting for testing


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    catsrlife
    Newest Member
    catsrlife
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.