Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Do If You Can't Cook


ranger

Recommended Posts

ranger Enthusiast

It occurred to me replying to someone, that if I were to become incapacitated or land in the hospital that I would either starve to death or be glutinized frequently. My DH does not cook, and everything my daghters have made for me (gluten free) I've gotten cc'd. I keep a couple of meals in the freezer for emergencies, but they wouldn't last long. Anyone have a contingency plan in case of this type of incident?

ps Our local hospital is gluten contaminated. I couldn't even eat a plain bowl of lettuce there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star
It occurred to me replying to someone, that if I were to become incapacitated or land in the hospital that I would either starve to death or be glutinized frequently. My DH does not cook, and everything my daghters have made for me (gluten free) I've gotten cc'd. I keep a couple of meals in the freezer for emergencies, but they wouldn't last long. Anyone have a contingency plan in case of this type of incident?

ps Our local hospital is gluten contaminated. I couldn't even eat a plain bowl of lettuce there.

I feel pretty fortunate that my husband can get around in the kitchen. He is so much more versed than when we got married. He has even had me dinner ready before. We eat all our evening meals together gluten free (with the exception of pasta) and he is pretty aware of the cc possibility. I have not got cc yet by him. I do have to remind him to clean up his part of the counter from the toaster, but at least it is on the other side of the kitchen away from our shared area. The local hospital that I work for said at one point they could accomidate gluten free, but things can change. I would not eat off the lunch line or salad bar for the visitors or staff anymore. I would have to ask for something made separate. Luckily I work nights and everything is closed so I take my own food anyway. If I was a patient I would have to really ask alot of questions or have hubby bring me food. This has sparked an intrest for me to check on our brands of barium for x-rays and ct to find out the gluten status.

mamaw Community Regular

Most hospitals are not gluten-free friendly...... at home I suggest an emergency food storage plan. Their are many canned soups from Progresso that are gluten-free. If you need the list let me know. Plus there are several frozen entrees that are gluten-free.

I would also keep gluten-free crackers, canned meats ,veggies & canned fruits around. We have a whole closet filled for emergencies.

I was in our local hospital for ten days ICU, no gluten-free food except fake eggs, grilled chicken, salad or a hamburger patty. Pretty sick huh! My husband brought me gluten-free food from home every day even water!

Pretzels Tortilla chips , popcorn are good things also to keep on hand.

I have to run for now but if you need any other suggestions let me know & I will post them later this week.

blessiings

mamaw

ranger Enthusiast

Good ideas. I don't eat much canned food, but am going to stock on some, just in case. Better canned than none! Thanks

YoloGx Rookie

On that line, I suggest making extra and generally freezing food at home just in case. You could also train your husband more if that is possible. You could also get a little mini refrigerator and hot plate for your room. Though really this situation with the hospitals has got to change. Kaiser for instance is better than the were but not at all perfect--better for someone who hasn't gone off all trace gluten. Maybe celiac support groups should help each other in case someone is in the hospital? I may try to suggest something like that around here.

ranger Enthusiast
On that line, I suggest making extra and generally freezing food at home just in case. You could also train your husband more if that is possible. You could also get a little mini refrigerator and hot plate for your room. Though really this situation with the hospitals has got to change. Kaiser for instance is better than the were but not at all perfect--better for someone who hasn't gone off all trace gluten. Maybe celiac support groups should help each other in case someone is in the hospital? I may try to suggest something like that around here.

zolo

Thats is an excellent idea. Next time I get to our local meeting, I'm going to bring it up. We have several good cooks and I, for one, would be glad to cook for someone in the hospital. My Dh is a lost cause. In the kitchen, that is! I do keep some emergency meals in my freezer along with several kinds of breads, but it would not be practical to keep enough for any length of stay. Thanks so much.

mushroom Proficient

Our hospital in Reno (Renown) assures me they have a full gluten-free menu :) :) And dh is well-trained in the kitchen; in fact over the last year when my back has been bad he has handled the bulk of the cooking. Fortunately he is gluten free too, although has no concerns about soy and corn, so I have to check what he buys :unsure: Guess I'm pretty lucky!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie
Our hospital in Reno (Renown) assures me they have a full gluten-free menu :) :) And dh is well-trained in the kitchen; in fact over the last year when my back has been bad he has handled the bulk of the cooking. Fortunately he is gluten free too, although has no concerns about soy and corn, so I have to check what he buys :unsure: Guess I'm pretty lucky!!

Yeah, you are very lucky--esp. with that man! Though with the hospital I wouldn't completely trust the gluten free menu. There is gluten-free and gluten-free! if you know what I mean...Best to check it out. Many people really don't get the whole problem with CC or little things like natural flavors, and additives and fillers if they aren't obvious.

NicoleAJ Enthusiast

When I was in the hospital for 8 days, I was assured that I would have gluten free foods. I even talked to the nutritionist on staff about it, but as she said, her orders do not always go through, particularly when it comes to issues of cross contamination. They kept sending me pasta, bread, rubbery-looking salisbury steak. Of course I was also on a liquid only diet while I was there, and so the food selection was particularly inappropriate for my needs. My husband brought me gluten free broth, gluten-free popsicles, and ensure, which the nurses kept in their fridge in the nurses' station and heated up for me at meal time. I worked out find since I couldn't eat solids anyway, but I realized just how vulnerable I would be without my husband there to bring the food in for me.

Nancym Enthusiast

I'd probably see about getting a personal chef familiar with gluten free cooking. Not sure how much that would cost though. Another thought is finding a restaurant you trust and having their meals delivered. Another thing that might help would be to just eat once a day. Then at least you don't have to worry 3x a day! Or perhaps I'd try to live on protein shakes for my stay.

If you knew ahead of time you could prepare frozen meals in advance and possibly get the hospital to microwave them for you.

On the other hand, your odds of landing in the hospital without advance knowledge are probably pretty small if you're not already dealing with serious health issues.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    2. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748

    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.