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Wearing Medical Alert Bracelet?

mytummyhurts

By mytummyhurts
in Gluten-Free Restaurants

Recommended Posts

Kurly Newbie
Kurly
Posted

SKBird I would highly reccomend you get a medID bracelet, I am currently going to school for EKG and phlebotomy and one of the antiseptics frequently used it betadine. If for any reason you are not conscience and they need to start an IV you don't want them to use the betadine, plus all the other antibiotics that you are also allergic to. Although your reactions until recently have been just hives, if you are having a crisis, that reaction could be hightened and you don't want any added complications. The celiac part of the medID is the least of your concern, but once getting one, might as well add it.

Kaiti, I had a very interesting allergy testing experiences. I had done many years ago the skin prick test and had been told that I was allergic to some airborn stuff (mold, dust, cockroaches, ragweed...), recently when I got sick I saw a new allergist who did a blood test. The weirdest thing... I came back as being allergic to NOTHING! It turns out I have very reactive skin but not actually allergic to anything. I have reactive airways and apparently gluten sensitivity (extremely sensitive!) My skin reacts to almost anything and everything! The new allergist said that for people like me with reactive skin the prick test gives false negatives. So happy to hear you are having the blood tests.

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psawyer Proficient
psawyer
Posted

*** Old Topic Alert ***

This topic was dormant for more than six years. The post above revived it. Please be aware that information here may be out of date, and most of the previous participants are no longer active members of the board.

  • 1 month later...
Betty Wheaton Newbie
Betty Wheaton
Posted

I picked up a frozen Amy's mac and cheese,thinking it was the gluten free which I always buy.The container looked the same,but I hadn't notice that it didn't say gluten free. I went into shock a while later,was alone,scared,and couldn't move to get to the phone.Finally I was able to get to the bed,and laid there until I felt better. I had never read about this,and have been a Celiac for most of my life.I also have followed a gluten free diet,and had never eaten a meal of gluten until recently. Is it necessary to keep an epi-pen with me from now on,and also being very careful with my diet?

sariesue Explorer
sariesue
Posted

I picked up a frozen Amy's mac and cheese,thinking it was the gluten free which I always buy.The container looked the same,but I hadn't notice that it didn't say gluten free. I went into shock a while later,was alone,scared,and couldn't move to get to the phone.Finally I was able to get to the bed,and laid there until I felt better. I had never read about this,and have been a Celiac for most of my life.I also have followed a gluten free diet,and had never eaten a meal of gluten until recently. Is it necessary to keep an epi-pen with me from now on,and also being very careful with my diet?

Epi-pens only work for allergic reactions so it would not be helpful in a celiac reaction unless you also have a wheat, barley, or rye allergy.

mamaw Community Regular
mamaw
Posted

I purchased the Care USB bracklet for other serious life threating allergies I have. I do carry a epi-pen for my angio lymphatic edema that happens quickly as well.As an adult I wouldn't have even considered the bracklet if my only issue was celiacbut since I had other severe issues I decided & my doc thought it would be a good idea. Esp.if I was alone or in a car accident & there was no one who could speak for me...

I do agree with another poster that small kids need to use a brackletif they react strongly to gluten. I know a small child that becomes violently ill from gluten & ends up in the hospital every time...not a normal case for sure but the bracklet states the violent

reaction...They also have asthma ...

I believe if a person is not following the gluten free lifestyle they have no reason to understand the issues with gluten.. which I think is understandable...

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    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
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      Stomach burning and neuropathy

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    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
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