Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I've Been Glutened....


amandabear20

Recommended Posts

amandabear20 Rookie

Last night, my boyfriend Kevin and I were at a friend Ryan's house. Ryan's son was eating pretzels. Kevin had a few of those pretzels. Later that night when we were saying goodnight, I kissed him...forgetting that he had eaten pretzels. Not too long after that when I got home, My head started hurting pretty bad, and I felt nauseas and dizzy, and weak. This morning, I didn't feel any better. Im assuming this is going to last for a while, because I have felt fatigued, weak, tired, dizzy, sick all day. I even had to leave work early because it was bothering me that bad.

I was very careful today with what I ate....I'm still feeling icky. At work my moods starting changing. I got very irritable and depressed at the same time. This is the first time I've been seriously glutened since I started eating gluten free.

This is getting hard to deal with, because people at work don't understand what's going on. Even Kevin's mom is ignorant about it. It's really annoying and frustrating =(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

This has happened to me so many times. It really is a learning curve. It helps determine who you can really trust and who not. Mainly though you have to train your boyfriend etc. Let him know how awful you feel when cross contaminated (CC) with gluten this way and its probable cause. Not to make him feel guilty but to get him to be extra careful. If he cares he will improve and also be there to remind you. If he doesn't care--well, do you really need him?

Try to make it a habit to wash your hands before putting anything to your mouth when around gluteny others etc. especially after say they have shaken your hand. From my experience I have found it is wise make a habit to bring my own food and drink. I have even gotten glutened by a boyfriend who "graciously" "helped me" by opening my bottled water. Now if someone hands me bottled water (esp. by the top) I excuse myself and go wash the bottle off (I politely I don't tell them of course unless its an already established boyfriend etc.)--or just don't drink it. Its just easier however to bring my own in the first place however...

Its necessary to learn since not only can these CC situations make you temporarily really out of it but it puts one at much greater risk of getting some stray bug. It may be hard socially (and hey it really is!) but its worse to get sick unnecessarily...

jststric Contributor

yes, it's a learning thing, but you'll get it and life does get some easier. I've been dealing with mine for about 3 yrs and really have only gotten a decent handle on it in the past 6-8 months. CC is SO individual. You and the pp sound VERY sensitive. But I did have to start asking my husband to brush his teeth before we got intimate because it was the only possible thing left to some of my lingering symptoms. And it helped! I admire ANY boyfriend/girlfriend that tries to live and deal with someone like us!! It's alot to ask of people that aren't already part of the family!! My own mother doesn't get it and gets irritated by my "high-maintenance" anymore. Just let people like that roll off your back. Some people are just not capable of understanding. Oh! There's is a GREAT gluten-free pretzel made by Glutino! : ) Best wishes!

leadmeastray88 Contributor

This has happened to me so many times :)

Even just last night my boyfriend and I went out for supper and he had a chicken club sandwich...and I made him use mouthwash before I'd kiss him goodnight :)

It's just a habit that you have to get into! And if he's worth it he won't mind :)

amandabear20 Rookie

Thanks everyone for the support! It was kind of like....I really wanted to kiss him and I totally forgot about the pretzels for that moment. It's hard when all I wanna do is kiss him! He has been brushing his teeth after meals for me, but if he forgets he wont let me kiss his mouth, just cheek kisses and forehead kisses. We've been together for almost 2 years so he had no problem adjusting to the way I have to eat. He just wants to help me.

So mouthwash will work if he doesn't want to brush his teeth yet? I never thought of that.

I have the same thing with my mom not understanding completely....she doesn't fully get it. And people at work are just ignorant about it. I try to explain it to them, but they just deny that its true and they think im making it up. Im just starting to ignore them.

I'm starting to feel better, I still feel a little wiped out and tired. I've been sleeping till late morning ever since that night. I'm hoping work isn't too bad tonight. My mood seems better....just a little brain fog-ish.

I really appreciate everyone's support. It really helps.

:)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,601
    • Most Online (within 30 mins)
      7,748

    rita jean
    Newest Member
    rita jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.