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Are These Celiac Symptoms?


Mirt

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Mirt Newbie

My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?


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nu-to-no-glu Apprentice
My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

Yes, definitely sounds like it could be celiac, especially with your daughter having the same condition. I have both types of reactions...sometimes instant and sometimes within hours or days. If you search around on here, you'll see that everyone's reactions to gluten are very different and unique, even within families. I hope you find health and answers :)

runningcrazy Contributor
My daughter, age 22, was diagnosed with Dermatitis Herpetiformis :CELIAC CAN RUN IN A FAMILY nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, joint pain is a common symptomas well as stomach pain and "queasiness" after eating wheat products.this as well Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.gas is common

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.diarrhea is very common

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.vitamin deficiencys are very common among celiacs

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

Everyone is different, although im not confirmed celiac, i feel better of wheat and dairy.

My main problem was constipation. I was losing weight, about 20 lbs under weight(i am 13, 5'4.5, and i got down to 80lbs) I was having stomach pains, and low iron and daily headaches

Other people have diarrhea, weight gain, joint pain, some people have no symptoms at al! But you definately fit in with closer to the "standard" symptoms with diarrhea and joint pain. Gas and stomach pain as well. Vitamin D deficiency,is also very common.

redsidekick Apprentice

I think it would be worth it getting the celiac blood work. What you described (stomach issues after eating wheat) were the beginning of the symptoms for me. I didnt think anything of it until things got worse.

JillianLindsay Enthusiast

Everyone has very different symptoms, and you seem to be aware of the genetic component of celiac disease :) My DR recommended family members get tested at the silghtest symptom because celiac disease is highly genetic. Before making any diet changes it certainly doesn't hurt to get the blood test.

If I were to eat a pretzel I would probably have immediate stomach pains and upset stomach, then fatigue and brain fog for 3-4 days following.

Vitamin deficiency is also a symptom and it's worth getting checked out because of the health risks related to vitamin deficiencies.

Good luck,

Jillian

My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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