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My Stomach Will Not Stop Bubbling!


SteubensMom

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SteubensMom Newbie

I have been 100% gluten free since July 14, 2009. I think based upon what I have read I went through the withdrawls and feeling like a dead zombie but now, this week, my stomach will not stop bubbling. Does that mean I am unknowingly getting glutened?

Being new to the forum, joined last night, I am still trying to understand how and where to post comments. I posed this in the food arena and got great ideas for recipes, but still need help understanding my diagnosis as well as a DD and a DH and so forth.

I was diagnosed as celiac by my nutritionist after receiving my lab results by Kimball in July 2009. She said that since I carry the celiac gene and was having celiac related symptoms I should consider myself a celiac. I am not sure but would love to know which strand of my DNA, alpha or beta, tested positive. I also do not understand what the difference is between DQ2 and DQ8. How can you be gluten intolerant and not celiac? Here are my test results.

DQ2 (DQA1*05/DQB1*02 Positive

DQA1*0501 or *0505 Detected

DQB1*0201 or *0202 Detected

DQ8 (DQB1*0302): Negative

DQ1*0302 Not Detected

My daughters were put on a gluten-free diet in 9/05 due to celiac-like symptoms. I have been mostly gluten-free since then but earlier this year began struggling with fatigue and daily bowel issues. Finally scraped up enough to pay for the Kimball test in 07/09 for myself, out of pocket since Kaiser will only do a blood test, will test the children when finances allow.

I am in the learning curve and still stuck in a bit of denial right now.

Throw out cut plastic bowls and plates? Do not allow gluten in my home? Check ingredients in my make-up? Have a biopsy done to determine how bad the villi look and what stage of damage I am in?

Any help would be appreciated! :huh:


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ravenwoodglass Mentor

For myself that burbling is a symtom that I have been glutened. The gluten free diet is not something that you can do 'sort of'. It needs to be strict otherwise the antibodies will remain active. You do need to check your all meds and supplements, both OTC and script, makeup, toiletries, be careful of cross contamination, replace any porous kitchen tools that have been used for gluten foods, have a dedicated gluten-free toaster etc. You have found a good place to learn about the gluten free life, welcome. Read as much as you can here and ask any questions you need to ask.

jkr Apprentice

Yes, my stomach gurgles a lot lately. I'm trying to be gluten free but I believe I am getting cross contaminated. I think I have lots of other food allergies and would like to be tested.

runningcrazy Contributor

Before I went gluten free by our own decision about a month ago, my stomach would be gurgling and popping and making freakish noises every night as i lay in bed. Sometimes we would put a microphone to my stomach to really amplify the weirdness. It was really funny.

But now im gluten free i havent noticed any of that, so my first guess is that you are getting gluten some how. In april i went glluten free, but my pediatrician told me i didnt need to. When I was gluten free then, i was using the same toaster, vitamins with oat fiber and barley grass, and eating lindor truffles which i didnt realize had malt in them.

So check everything and maybe stick to a bland diet where you know you wont be getting gluten.

Good luck-

And have you cut out dairy? I didnt cut it out the first time and i cut it out this time and i think it is making it easier.

VioletBlue Contributor

You may also experience that gurgling sound if you're eating something else you're intolerant of. Additional intolerances are not uncommon among us here. The gurgling and gas happens to me too if I eat peppers or eggplants or too much tomato. For some reason potatos don't bother me. The best way to figure out what is bothering you is to keep a log of everything you eat. By doing that you should be able to spot patterns.

It seems that once you remove gluten from your diet other intolerances and allergies become more pronounced, or perhaps just more noticable.

Ahorsesoul Enthusiast

I vote for making your kitchen gluten free. Then keep a food (and brand name) diary. After a few day you should find out what food/foods are causing your problem.

If you write out everything you put in your mouth, your will figure it out. Remember things like gum and candy and soda all might contain hidden traces of gluten.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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