Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Concerned!


SkinnyT

Recommended Posts

SkinnyT Newbie

After being nuts for so long because of celiac I feel almost embarassed and extremely hostile about so many things.

It is hard to explain really, I was hoping some people might just understand what I am talking about.

My school basically screwed me, I almost failed out of uni and paid out the ear to stay in. I feel abused and against their system on a fundamental level because basically as I see it I almost died from malnutrition, definitely went insane and had the worst few years of my life under the eye of their establishment... Which has been a huge struggle I am still trying to get money back from classes I did not even go to nevermind the 5 or so that I dropped and paid for in full.

relationships with family and friends have been stressed, went thru a lot of drugs when I was depressed and darned myself up even more.

Now I know to look forward but it is like I have to adapt a new way of thinking while a few years of my life were just written right off.

I am concerned about my capabilities. Am I less mentally able after what I went through? Was my development "retarded" because of the disease.

I guess it is hard to measure these things... But my physical reactions to the experience only leave me guessing about psychological/neurological problems.

Gray hairs, balding at 22... always been underweight finally starting to gain. Was always tired for a while, did not sleep at all for a whole month. Was unable to read at one point because I could not focus on a full sentence and remember it.

I feel so much better now but I realize little things mostly social things which make me feel ... stupid!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wildwood Apprentice
After being nuts for so long because of celiac I feel almost embarassed and extremely hostile about so many things.

It is hard to explain really, I was hoping some people might just understand what I am talking about.

My school basically screwed me, I almost failed out of uni and paid out the ear to stay in. I feel abused and against their system on a fundamental level because basically as I see it I almost died from malnutrition, definitely went insane and had the worst few years of my life under the eye of their establishment... Which has been a huge struggle I am still trying to get money back from classes I did not even go to nevermind the 5 or so that I dropped and paid for in full.

relationships with family and friends have been stressed, went thru a lot of drugs when I was depressed and darned myself up even more.

Now I know to look forward but it is like I have to adapt a new way of thinking while a few years of my life were just written right off.

I am concerned about my capabilities. Am I less mentally able after what I went through? Was my development "retarded" because of the disease.

I guess it is hard to measure these things... But my physical reactions to the experience only leave me guessing about psychological/neurological problems.

Gray hairs, balding at 22... always been underweight finally starting to gain. Was always tired for a while, did not sleep at all for a whole month. Was unable to read at one point because I could not focus on a full sentence and remember it.

I feel so much better now but I realize little things mostly social things which make me feel ... stupid!!!!

I am sorry things have been so difficult for you. I think you are correct to realize you must adapt to a new way of thinking, but please don't just write off the past few years of your life. We all learn so much from difficult times and without realizing come out stronger and better equipped to face what lies ahead. The important thing may be to walk away with having learned many lessons, appreciate these lessons and look forward. I have found that when you dwell on the past too much it becomes a detriment to your future and holds you back. The past is the past and it cannot be changed. It serves noone to hold resentments, it only keeps you yourself down and alienates those around you. Take it one day at a time and stay as positive as you can. Look for the postive things that are all around you and build upon those. When you start to feel anger and hostility over the past don't let that be an excuse to fail. Remind yourself that what you have now is your present and future and to have a bright and positive future, you must have a bright and positive outlook. Be kind to others, be happy, be grateful and all will fall into place. Keep learning from your mistakes along the way. We all make mistakes and errors in judgement. I am not saying it will be easy, but once you let go of the past you may find the present and future much more pleasant and worthwhile.

ang1e0251 Contributor

We are a product of our experiences and our personalities. A lesser person would have used those years as an excuse to whine the rest of their lives and not be productive. But you've taken the first step toward a productive and happy future by expressing a desire for a new outlook. You can do it too. Focus on every new fealing of health and good experience. Relive those feelings and experiences in your mind and you will draw more and more good things to you. I can see a great future ahead for you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748

    Sarahmegan
    Newest Member
    Sarahmegan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.