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Any Symptomatic Relief Suggestions For My 3 Yr Old Son

RoccosMOM

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RoccosMOM Newbie
RoccosMOM
Posted

My son was recently diagnosed with Celiac - I am a 42 yr old Celiac mom. I was diagnosed 9 years ago. I manage my symptoms when I really need to with some meds. Nausea responds well to Dramamine if I take it within a certain window of time before it becomes too strong I can actually guard it off before throwing up. However, when my son gets sick it just saddens me beyond imagination to not be able to give him some relief. Anyone have any suggestions for me. He throws up violently and the diarrhea - well we all know how bad that is... :blink:

Thank you.

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celiac-mommy Collaborator
celiac-mommy
Posted

Poor guy! I feel your pain. Ours is usually lower gi with both kids. I will sometimes give immodium to alleviate the d, and I try to feed them binding foods and drink lots of water.

RoccosMOM Newbie
RoccosMOM
Posted
  • Author
Poor guy! I feel your pain. Ours is usually lower gi with both kids. I will sometimes give immodium to alleviate the d, and I try to feed them binding foods and drink lots of water.

Thanks Rachelle - It's soooo sad to see how hard it hits him. I actually don't have an official diagnosis other than the MyCeliac ID genetic test which came back high risk red zone probability - this last incident over the weekend was actually the second traumatic incident involving both upper and lower GI symptoms - but, they were exactly alike except the second one was much more severe with symptoms - he also has anxiety issues not classified as age appropriate - so I try to help him deal with that as well. It just feels good to talk to other parents who are dealing with children with celiac - sometimes when he is having his bad moments especially when it breaks out in the middle of the night I feel so alone like I'm the only celiac parent with a celiac child to care for. Thank God my husband is soo good with Rocky when he gets sick MIke is right there holding him while I manage the mess. Anyway - thanks for your feedback.

Ronnie

chiroptera Apprentice
chiroptera
Posted

I'm so sorry your son is not feeling well. Just wanted to say that when me or my kids have horrible glutenaches, as we call them, we put a hot water bottle or heating pad on low/medium over the tummy and it helps takes the edge off..

good luck! :)

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Hello,

On the advise of a pharmacist, I started using childrens liquid Rite Aid brand clear antihistamine for my DH. I was surprised to find that it also shortened the length of time my GI upset lasts.

Hope this helps

RA

RoccosMOM Newbie
RoccosMOM
Posted
  • Author
Hello,

On the advise of a pharmacist, I started using childrens liquid Rite Aid brand clear antihistamine for my DH. I was surprised to find that it also shortened the length of time my GI upset lasts.

Hope this helps

RA

Beautiful idea!!! Thankyou sooo much from me and my son. :rolleyes: It kills me to see him suffer and anything I can do to help get him through a rough time is a life saver for me. TY again.

Veronica and Rocco

RoccosMOM Newbie
RoccosMOM
Posted
  • Author
I'm so sorry your son is not feeling well. Just wanted to say that when me or my kids have horrible glutenaches, as we call them, we put a hot water bottle or heating pad on low/medium over the tummy and it helps takes the edge off..

good luck! :)

Another great suggestion - his pain gets soo bad he can't sit still he stands there crying and whining and pacing at times - holds onto my leg and keeps repeating mama im sick ..its awful. Ty again for the suggestion.

Veronica and Rocco :)

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amysmom Newbie
amysmom
Posted

I don't know if this will help or not, but when my daughter had her endoscopy they found out the celiac caused gastropareisis. It takes longer for her to digest her food. Before we went gluten free every so often she would wake in the middle of the night with excruciating stomach pains that lasted for a few hours and then she would vomit and be fine. Once it happened I know she was eating fresh coconut and her body could not digest it so it had to go back out. The gluten free diet has stopped the vomiting, but she still has problems with heart burn, indigestion and reflux. After she was diagnosed, we had to watch her diet for any foods that were difficult to digest - fresh fruits and vegetables, etc. the fruit skins were bothersome. As we proceed with gluten free diet, her symptoms slowly improve. We have been gluten free (except for a few mishaps) for 8 months now. Good Luck and I hope he feels better soon.

RoccosMOM Newbie
RoccosMOM
Posted
  • Author
I don't know if this will help or not, but when my daughter had her endoscopy they found out the celiac caused gastropareisis. It takes longer for her to digest her food. Before we went gluten free every so often she would wake in the middle of the night with excruciating stomach pains that lasted for a few hours and then she would vomit and be fine. Once it happened I know she was eating fresh coconut and her body could not digest it so it had to go back out. The gluten free diet has stopped the vomiting, but she still has problems with heart burn, indigestion and reflux. After she was diagnosed, we had to watch her diet for any foods that were difficult to digest - fresh fruits and vegetables, etc. the fruit skins were bothersome. As we proceed with gluten free diet, her symptoms slowly improve. We have been gluten free (except for a few mishaps) for 8 months now. Good Luck and I hope he feels better soon.

Thank you soo much for your feedback i appreciate all the advice I can get. Hopefully as he adjusts to the gluten free diet these issues will resolve themselves.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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